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“They Stay until They Die” A lifetime of isolation and neglect in institutions for people with disabilities in Brazil

RIOS-ESPINOSA, Carlos
et al
May 2018

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This report documents a range of abuses against children and adults with disabilities in residential institutions in Brazil. The research is based on direct observations during visits to 19 institutions (known in Brazil as shelters and care homes), including 8 for children, as well as 5 inclusive residences for people with disabilities. In addition, Human Rights Watch researchers interviewed 171 people, including children with disabilities and their families, adults with disabilities in institutions, disability rights advocates, representatives of non–governmental organizations, including disabled persons organizations, staff in institutions, and government officials.

 

Research was carried out between November 2016 and March 2018 in the states of São Paulo (including São Paulo and Campinas), Rio de Janeiro (including Rio de Janeiro, Duque de Caxias, Niteroi and Nova Friburgo), Bahia (Salvador) and Distrito Federal (including Brasilia and Ceilândia).

INCLUDE US! Good practices in the inclusion of persons with disabilities in Myanmar

HUMANITY & INCLUSION (HI)
2018

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In 2015, Humanity & Inclusion HI began the project: “Empowering persons with disabilities to contribute to equal access to basic social services and local policymaking processes in under-resourced areas of Ayeyarwady and Mandalay”. The project supported Disabled Peoples Organizations and other civil society groups to participate in the development of inclusive regional policies and programmes, and to promote good practices contributing to greater access to services for persons with disabilities. An aim was also to document, publish and disseminate these good practices throughout Myanmar, increasing awareness and understanding in order to sensitise people to disability inclusion and influence policy change. Rather than focusing on what is not working, this report seeks to shift attention to what has worked locally and how it could be replicated in other parts of the country, providing constructive, practical recommendations to decision-makers, service providers and other community groups in Myanmar. The report is related to two projects. The second is “Advocacy for Change: Fostering protection and rights of men and women with disabilities in Myanmar”. 

 

There are global recommendations. There are seven good practices:

  • Related to education:  Case Study I: Promoting Inclusion of children with disabilities in Middle Schools of Ayartaw. Case Study II: How the development of the teacher training promotes inclusion of all children in education
  • Related to economic life: Case Study III: How partnerships between private companies and organizations of people with disabilities can improve access to employment and vocational training
  • Related to social/community life: Case Study IV: Giving the Myanmar Deaf Community access to information.  Case Study V: How parental advocacy can make a difference
  • Related to political life: Case Study VI: Community advocacy in obtaining the National Registration Card. Case Study VII: Supporting people with disabilities to participate in Myanmar elections

 

Inclusive education advocacy

KAPLAN, Ian
LEWIS, Ingrid
PINNOCK, Helen
Eds
2015

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This newsletter features selected inclusive education case studies around the world from Armenia to Indonesia. The case studies highlight how these initiatives have worked and how advocates might be able to use the practical examples in their work to fill the information gaps and further inclusion in education settings

Enabling education review, special issue

Inclusive Tanzania network : access to education and political participation of persons with disabilities

LIGHT FOR THE WORLD
Ed
October 2014

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MTAJU - Inclusive Tanzania was a pilot project aiming to empower persons with disabilities through inclusive education and political participation that ran from November 2005 to December 2010. MTAJU is a network of Tanzanian Disabled People’s Organizations (DPOs) and Pro Disability Organizations (PDOs), who campaign together for an inclusive society where people with disabilities enjoy the same rights as other citizens. The project's main aims were the legal, political and social establishment of the right to education of children with disabilities and the right to political participation of persons with disabilities. This short learning guide is based on the full project report and highlights the key lessons learned by the project team. This guide would be very useful for anyone interested in the access to education for children with disabilities and the participation of disabled people in public and political life in Africa in particular and the global south in general

Learning Guide, 2/2014

Childhood disability and malnutrition in Turkana Kenya : a summary report for stakeholders and policy

KISIA, James
et al
2014

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This study aimed to assess whether children with disabilities were included within humanitarian and food security response programmes and whether there was an association between disability and malnutrition. The fieldwork was conducted in 2013 in the Turkana region of Kenya, a region repeatedly classified as experiencing a humanitarian emergency, and used both qualitative and quantitative methods. The key finding of the report is that children with disabilities are more likely to be malnourished and the key recommendations are that children with disabilities should be targeted in food aid and food assistance programmes, and that further efforts are needed to include children with disabilities in education.   The report is intended for stakeholders to inform policy

Research summary : childhood disability and malnutrition in Turkana Kenya

KISIA, James
et al
2014

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This report summarises a study that aimed to assess whether children with disabilities were included within humanitarian and food security response programmes and whether there was an association between disability and malnutrition. The fieldwork was conducted in 2013 in the Turkana region of Kenya, a region repeatedly classified as experiencing a humanitarian emergency, and used both qualitative and quantitative methods. The key finding of the report is that children with disabilities are more likely to be malnourished and the key recommendations are that children with disabilities should be targeted in food aid and food assistance programmes, and that further efforts are needed to include children with disabilities in education.  The report is intended for stakeholders to inform policy 

Children and young people with disabilities : factsheet

UNITED NATIONS CHILDREN’S FUND (UNICEF)
May 2013

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"This Fact Sheet on children with disabilities provides a global snapshot of the key issues affecting the lives of children with disabilities and an overview of evidence currently available. It is not a comprehensive review, but rather is intended to provide a starting point for approaching policies and programmes that can make a difference in the lives of these children, their families and their communities. Knowledge and understanding of the barriers and challenges faced by children with disabilities is essential if their rights are to be realised"

Promoting inclusive teacher education : advocacy guides

KAPLAN, Ian
LEWIS, Ingrid
March 2013

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“This publication set is a series of five guides designed for anyone who wants to do advocacy to bring about improvements in pre-service teacher education towards more inclusive education. They discuss challenges and barriers to inclusive education in different areas of teacher education and outline ideas for advocates to consider and adapt according to their specific contexts for effective advocacy towards more inclusive practices.” The five guides promote inclusive teacher education outlined in introduction, policy, curriculum, materials and methodology booklets

Young voices : our statement to the world

YOUNG VOICES MEMBERS
2013

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The report presents a shared call for action from Young Voices members across the world who came together to agree a common statement of what they think needs to change to make the rights of disabled people a reality. Covering a broad range of issues, including education, employment, health and political participation, the publication also features case studies of how Young Voices groups have taken action to promote equal opportunities for disabled people

Using the human rights framework to promote the rights of children with disabilities : discussion paper|An analysis of the synergies between CRC, CRPD and CEDAW

UNITED NATIONS CHILDREN’S FUND (UNICEF)
2013

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"This paper provides an analysis of the synergies of three human rights treaties from the perspective of the rights of children with disabilities: the Convention on the Rights of the Child, the Convention of the Rights of Persons with Disabilities and the Convention on the Elimination of All Forms of Discrimination against Women. It has been developed to encourage understanding of how the three treaties mutually reinforce each other, and can be used to strengthen advocacy in respect of children with disabilities"

Good practices in the inclusion of persons with disabilities in the Tibet Autonomous Region, China : how to ensure the rights of persons with disabilities are promoted and respected?

HANDICAP INTERNATIONAL
November 2012

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The report is a collection of good practices of inclusion of people with disabilities in the Tibet Autonomous Region of China, compiled through the ‘Support to DPOs’ project. Making It Work methodology was used to collect good practice of social integration and participation by people with disabilities; good practice in terms of working methods to ensure partner ownership and long term sustainability; and good practice in terms of process, such as participative working methods to ensure the long-term ‘real’ inclusion of persons with disabilities. The target of the report is the Disability Working Committee, the key Government body in decision making on disability issues. The report considers 13 case studies on such topics as DPO activity, inclusive education, community participation, rehabilitation and livelihoods. For each case study, influencing factors (positive and negative) are identified, and possible improvements and recommendations for replication suggested. This collection of good practices gives a diverse range of possible actions for the enhanced inclusion of persons with disabilities; combining access to services (early education, mainstream education, and rehabilitation), arts and culture, awareness-raising, and active participation in political and social life

Towards and AIDS-free generation : promoting community based strategies for and with children and adolescents with disabilities

MERESMAN, Sergio
July 2012

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This resource highlights that children and adolescents with disabilities are critical to achieving an AIDS-free generation. It provides information about family- and community-based responses for a disability-sensitive AIDS-free generation, and specific recommendations for working with children, adolescents and young people with disabilities in HIV programmes. Opportunities and entry points for implementation are given, as well as examples of materials developed by adolescents with disabilities and community-based organizations

Parent’s participation in the social inclusion of children with disabilities in Bosnia and Herzegovina and Croatia

BECIREVIC, Majda
DOWLING, Monica
February 2012

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"This study examines the attitudes and actions of parents of children with disabilities in Bosnia and Herzegovina (BiH) and Croatia. Part of the former Yugoslavia, these two Southeastern European countries have undergone major economic and socio-political changes since the early 90s. Historically disabled children with disabilities suffered high levels of social and educational exclusion in these countries whereas now a public discussion of inclusion and children’s rights prevails"

Human rights for women and children with disabilities

HUMAN RIGHTS WATCH
2012

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This report highlights various human rights abuses against women and children on the following topics: sexual and gender-based violence targeted at women and girls with disabilities; discrimination in health and reproductive rights, including forced sterilization and HIV and disability; barriers to education for children with disabilities; violence against children with disabilities in schools; and abuses in institutions. This resource is useful to anyone interested in human rights of women and children with disabilities

Disability inclusion in drought and food crisis emergency response

CHRISTOFFEL BLINDENMISSION (CBM) AUSTRALIA
et al
July 2011

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"This factsheet provides base level information to practitioners for awareness raising, training, advocacy, project design and proposal writing. The information may be used and sent out widely, with reference to the Kenya Red Cross, The Association of the Physically Disabled of Kenya, CBM and Handicap International. The overall information in this factsheet is also applicable to older persons and other vulnerable groups"

Out from the shadows : sexual violence against children with disabilities

ELLERY, Francis
LANSDOWNE, Gerison
CSÁKY, Corinna
2011

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This document is an advocacy report on sexual violence against children with disabilities. It is based on evidence generated from a literature review and primary research in four African countries. Adults with disabilities who had been abused as children were interviewed, as well as carers, lawyers, judges, police, social workers, teachers and members of disabled people's organisations. The report concludes with a set of recommendations, developed in consultation with children, young people and professionals working globally on this issue

ARC resource pack : user guide

ACTION FOR THE RIGHTS OF CHILDREN (ARC)
2009

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"The ARC resource pack provides an essential collection of information and training material on CD-ROM, to strengthen people’s capacity: to tackle the root causes of children’s vulnerabilities; to build effective child protection systems for use in emergencies and long-term development; [and] to ensure that no activities inadvertently compromise children’s rights or safety....The pack includes the latest standards and best practices and reflects the realities of present-day emergencies, with increased emphasis on natural disasters and internal displacement.....This guide explains what is on the CD-ROM and the range of users for whom it is relevant. It will help you to decide how to build ARC materials into your work and outlines the relationship between the ARC resource pack and other materials"

Youth disability advocacy service

YOUTH DISABILITY ADVOCACY SERVICE (YDAS)

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"The Youth Disability Advocacy Service (YDAS) is raising voices, expanding choices and creating change for young people with disabilities in Victoria, Australia. YDAS works alongside young people with disabilities between the ages of 12 and 25 to raise awareness of their rights and to support them to achieve what they want." This website gives information about their services, projects and advocacy activities. Links are provided to resources, news and events. This resource is useful for people interested in advocacy services for youth with disabilities in Australia

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