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Sightsavers' approach to making health services inclusive for everyone

Sightsavers
April 2019

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Sightsavers has produced a new film that sets out our work to make health care services accessible and inclusive for everyone. It focuses on our programmes in Bhopal, India and Nampula, Mozambique. This highlights how we work and share learnings globally, but also shows how programmes can be made locally relevant by working with partners with direct experience.

The film showcases some of the people who work hard to make our inclusive health programmes a success, from Sightsavers experts and government health workers to leaders of disabled people’s organisations.

To find out more our inclusive health work and how we are developing best practice in terms of inclusive health programmes, visit our website: https://www.sightsavers.org/disability/health/

Disability and global health: Special issue of International Journal of Environmental Research and Public Health

KUPER, Hannah
POLAK, Sarah
Eds
2019

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Papers included in this special issue are:

 

The inclusion of persons with disabilities in EU-funded humanitarian aid operations.DG ECHO Operational Guidance

EUROPEAN COMMISSION
January 2019

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This guidance has been developed as a tool to reach the goal that all EU-funded humanitarian partners be required to take the needs of persons with disabilities into account in their projects.


It concentrates on mainstreaming the needs of persons with disabilities across all types of humanitarian interventions, hence not dealing with targeted actions specifically. As such, this guidance is a complementary tool to existing Thematic Policies, in particular to Thematic Policy n°8 on Humanitarian Protection

 

The guidance consists of three main parts. Part II presents disability mainstreaming in programming in detail and provides a series of concrete examples and illustrations. It also provides tools to collect data and measure disability inclusion. Part III of the guidance is a short document that that can be easily used in the field for either programming or monitoring.

Realisation of sustainable development goals by, for and with persons with disabilities: UN flagship report on disability and development 2018

UNITED NATIONS DEPARTMENT FOR ECONOMIC AND SOCIAL AFFAIRS (UNDESA)
December 2018

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This report represents the first UN systemwide effort to examine disability and the Sustainable Development Goals (SDGs) of the 2030 Agenda for Sustainable Development at the global level. The report reviews data, policies and programmes and identifies good practices; and uses the evidence it reviewed to outline recommended actions to promote the realization of the SDGs for persons with disabilities. Over 200 experts from UN agencies and International Financial Institutions, Member States and civil society, including research institutions and organizations of persons with disabilities, contributed to this report. The report covers new areas for which no global research was previously available, for example, the role of access to energy to enable persons with disabilities to use assistive technology. It also contains the first global compilation and analysis of internationally comparable data using the Washington Group on Disability Statistics short set of questions. Reviews of legislation from 193 UN Member States were conducted and analysed for this report to highlight good practices and to assess the current status of discriminatory laws on voting, election for office, right to marry and others

Disability and HIV

UNAIDS
August 2017

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This report highlights existing key evidence on the relationship between disability and HIV. It discusses the concrete steps needed for a person-centred, disability-inclusive HIV response that allows for increased participation of people with disabilities and integrates rehabilitation within the continuum of HIV care. Globally, it is estimated that 1 billion people (15% of the world’s population) have a disability. Of those aged over 15 years, approximately 110–190 million (2.2–3.8%) experience significant disabilities. Disability is increasing in prevalence due to ageing populations, trauma, accidents and the increase in chronic health conditions, including HIV. Persistent discrimination against and exclusion of people with disabilities, in particular women and girls with disabilities, increases their vulnerability, including their risk of HIV infection.
 

Disability and HIV

UNAIDS
January 2017

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This report highlights existing key evidence on the relationship between disability and HIV. It discusses the concrete steps needed for a person-centred, disability-inclusive HIV response that allows for increased participation of people with disabilities and integrates rehabilitation within the continuum of HIV care.

Priority assistive products list

WORLD HEALTH ORGANISATION (WHO)
May 2016

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The Priority Assistive Products List (APL) aspires to follow in the footsteps of the WHO Model List of Essential Medicines, which creates awareness among the public, mobilises resources and stimulates competition. The Priority Assistive Products List is similarly intended to be a catalyst in promoting access to assistive technology. It is not a restrictive list but aims to provide each Member State with a model from which to develop a National priority assistive products list. 

The List includes hearing aids, wheelchairs, communication aids, spectacles, artificial limbs, pill organizers, memory aids and other essential items for many older people and people with disabilities to be able to live a healthy, productive and dignified life.

The APL is part of the Global Cooperation on Assistive Technology (GATE)

Sightsavers disability disaggregation project : India mid-term review report

JOLLEY, Emma
THIVILLIER, Pauline
September 2015

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‘This Mid Term Review (MTR) report contains information on the first six months (July – March) of the disability disaggregation pilot project taking place in Bhopal, India. The report includes information on the processes in place at the different locations to collect data disaggregated by disability and initial results. It also captures attitude, knowledge and experiences of programme managers, decision makers and data collectors around disability, their challenges, and the experiences of Sightsavers’ implementing staff’

Report of the Special Rapporteur on the rights of persons with disabilities (theme: the right of persons with disabilities to social protection)

DEVANDAS-AGUILAR, Catalina
August 2015

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'In the present report, the Special Rapporteur, Catalina Devandas-Aguilar, provides a study focusing on disability-inclusive social protection as a prerequisite for the universalization of social protection. She stresses that social protection is fundamental for achieving the social inclusion and active participation of persons with disabilities, and promoting their active citizenship. She also argues that to achieve disability-inclusive social protection, States must move away from traditional disability-welfare approaches towards embracing the innovative rights based model'

Disability in humanitarian context : views from affected people and field organisations

HANDICAP INTERNATIONAL
July 2015

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This report is based on the results of a global consultation carried out in 2015 as a contribution to the World Humanitarian Summit and is intended to better identify the changes needed for a disability inclusive humanitarian response. A total of 769 responses were collected through 3 online surveys targeting persons with disabilities, disabled people's organisations (DPOs) and humanitarian actors. The results demonstrate that while most humanitarian actors pledge to target vulnerable persons in crisis time, few of them are putting in place specific mechanisms and procedures to effectively reach to, and taking into account, persons with disabilities in their programmes. Addressing these challenges is a human right imperative and has also to do with an effective implementation of principled humanitarian aid. This ambition requires changes in policies and practices within the humanitarian community as a whole

Expanding universal design process : Thailand

SAWADSRI, Antika
Ed
June 2015

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This issue of the Design for All Institute of India’s monthly newsletter higlights universal design process in Thailand. A range of topics are discussed, such as, universal design, related research, accessibility in places of worship and classrooms, and individual perspectives on accessibility from a wheelchair-user and a person with a visual impairment

Vol 10, No 6

Disability and the global South (DGS) 2015, Vol. 2 No. 3

DISABILITY AND THE GLOBAL SOUTH
2015

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This journal presents six articles in this collection about disability in several countries. Articles include research on typhoon Haiyan in the Philippines, analysis of policy that aims to reduce the mental health treatment gap in Africa, research on inclusive education in Kenya and others

Disability & the global South (DGS), Vol. 2 No. 3

A home-based rehabilitation intervention for people living with HIV and disability in a resource-poor community, KwaZulu-Natal : study protocol for a randomized controlled trial

COBBING, Saul
HANASS-HANCOCK, Jill
MYEZWA, Hellen
2015

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In this paper, the researchers develop a needs-based home-based rehabilitation programme for people living with HIV in order to improve their quality of life and functional ability. The study aims to  provide rehabilitation professionals and researchers with evidence that can be utilised to improve existing rehabilitation interventions for people living with HIV.

The paper outlines a randomised control trial to test the programme, to be conducted at a public hospital in KwaZulu-Natal, South Africa. The trial will assess the participants’ quality of life, perceived level of disability, functional ability and endurance

Trials 16:491

Disability disaggregation of data : baseline report

JOLLEY, Emma
THIVILLIER, Pauline
SMITH, Fred
December 2014

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“This baseline report contains information on the initial steps (prior to the start of data collection) undertaken to include disaggregation of data by disability in two projects in Tanzania and India. The report includes information on project selection, development of an Monitoring and Evaluation (M&E) plan, adaptation of data collection tools and training of Country Office staff, partners and data collectors. This baseline also captures the knowledge, attitudes and practices of programme managers, decision makers and data collectors around disability, the availability of data, and the experiences of Sightsavers’ implementing staff”

Note: The user has given permission for the uploaded document to be reproduced and made publicly available on the Source website

Equal access : how to include persons with disabilities in elections and political processes

ATKINSON, Virginia
AZELTON, Aaron
FOGG, Ken
April 2014

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This publication provides governments, civil society and the donor community the requisite tools and knowledge to promote the participation of persons with disabilities in elections and political processes.

It draws on international standards, such as the United Nations Convention on the Rights of Persons with Disabilities, and presents four mutually reinforcing strategies to increase the political participation of persons with disabilities: Empower persons with disabilities and disabled persons' organizations (DPOs) through trainings on technical elections issues as well as organizational and advocacy skills; Support government institutions such as election management bodies and legislatures to create inclusive and accessible legal and regulatory frameworks; Include DPOs in broad-based civil society coalitions, such as election monitoring groups; Assist political parties to conduct meaningful outreach and encourage inclusion of persons with disabilities in leadership positions and as candidates. Good practices from around the world are highlighted throughout the manual.

The executive summary is presented in easy to read format, and the publication is available in plain text for those who use screen readers

Disability action plan

WORLD HEALTH ORGANIZATION (WHO)
April 2014

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The Action Plan is based on the recommendations of the WHO and World Bank World report on disability and in line with the Convention on the Rights of Persons with Disabilities. It was developed in consultation with Member States, United Nations organizations and national and international partners including organizations of people with disabilities.

The Action Plan has three objectives : to remove barriers and improve access to health services and programmes; to strengthen and extend rehabilitation, habilitation, assistive technology, assistance and support services, and community-based rehabilitation; to strengthen collection of relevant and internationally comparable data on disability and support research on disability and related services

Where can design have the greatest impact in the next five years?

CASEY, Valerie
Ed
April 2014

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This special 100th journal issue focuses on women, design and social impact. The concept of "Design for all" is that the starting point should be the needs of people with activity limitation, such as physical, sensory and mental or cognitive limitation, and spaces, buildings and products should be designed to be accessible to all without losing the aesthetic or adding to cost.

The Journal contains 10 short essays by designers addressing issues such as: the need to assess the requirements of users first; exploring the political and social aspects of design; the responsibilities of designers; design as a problem solving tool;design to improve the lives of the poorest; sustainability; development; technology; and the environment

Design For All Journal​, Vol 9, No 4 

Evacuation of people with visual impairments

Sørensen, Janne Gress
2014

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This Study aimed to increase knowledge and data on evacuation characteristics of vulnerable people and with a special focus on blind and visually impaired people.

 

An experimental program designed to obtain data on walking speeds horizontally and descending stairs, interaction between participants and their interaction with the building environment. Experiments were conducted in different buildings including office buildings, an institutional building and a tunnel. In total 148 people have participated in the experiments. Parallel to the evacuation experiments participants were interviewed not only about their experience with the experiments but also their use of different building types and the difficulties they meet.

Checklist for integrating people with disabilities and others with access and functional needs into emergency preparedness, planning, response & recovery

KAILES, June Isaacson
2014

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When it comes to including people with disabilities and others with access and functional needs in emergency plans, strategic plans are rarely enough. Non-specific language and broad planning steps carries a substantial risk of discriminatory response and failure. It is the detail, the who, what, where, when, why, and how embedded in the tactical plans that make the difference. These details should also be incorporated into that standard operating procedures of departments and agencies, job aids, checklists, field operation guides, and training.


This checklist is for emergency planners, managers, responders, and public information officers (PIOs) who have responsibility for developing, maintaining, testing, delivering and revising emergency plans and services. Use it to help:

Evaluate current capacity of critical elements that integrate people with disabilities and others with access and functional needs into emergency planning, response, and recovery.
Develop inclusive emergency plans, policies, processes, protocols, training, job aids/checklists, standard operating procedures and exercise programs.
Periodically evaluate progress and identify elements that have been implemented, and areas that continue to need attention.

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