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“We can also change” Piloting participatory research with persons with disabilities and older people in Bangladesh

BURNS, Danny
OSWALD, Katy
November 2014

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Sightsavers, HelpAge International, ADD International and Alzheimer’s Disease International worked together with the Institute of Development Studies (IDS) to bring the perspectives of those who live in poverty or who are highly marginalised into post-2015 policy making. The aim of the research was to understand better the experiences of social, political and economic exclusion of persons with disabilities and older people in Bangladesh from their own perspectives. Two groups (community and NGO) of peer researchers collected 70 stories from poor and/or excluded persons with disabilities and older people from each of the two sites: Bhashantek, an urban slum in Dhaka; and Cox’s Bazar, a rural area in southeast Bangladesh. From the stories collected and analysed in workshops, the peer researchers identified 13 priority areas that affect persons with disabilities and older people: accidents and disasters; livelihoods; access to education; medical treatment; family support; exclusion and mistreatment; superstition; access to services; mobility; marriage; land; rape and sexual abuse; the role of grassroots community-based organisations. Recommendations from the researchers are made in each area. The peer research programme was evaluated and guidelines for its use are provided.

Freedom to read: A personal account of the ‘book famine’

WATERMEYE, Brian
2014

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Even in the digital age, access to literature and other information for people with print impairments remains extremely poor, especially in the developing world. Reading access holds cascading implications for education, economic empowerment, social participation and self-worth. In June 2013 member states of WIPO (the World Intellectual Property Organization)concluded a landmark treaty to reduce copyright impediments to the dissemination of literature to print impaired people. Its effectiveness is not yet clear. Meanwhile, critics hold that disability studies’ analyses have too often lacked insight into the personal and psychological ramifications of exclusion. This article provides an account of the ‘book famine’ from the perspective of a print impaired South African disability researcher, arguing that thorough investigation of the impressions of exclusion is necessary for change. The account highlights the personal, even malignant psychological reverberations of deprivations such as the ‘bookfamine’, which may carry traumatic effects which cement the status quo.

Disability, CBR and inclusive development (DCID), 2014, Vol. 25 No. 4

2014

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Original Research Articles

  • Narratives Around Concealment and Agency for Stigma-reduction: A study of Women affected by Leprosy in Cirebon District, Indonesia
  • Exploring a Model of Effectual Learning for a Student Speech Pathology Placement at a Community-Based Rehabilitation (CBR) Centre in Malaysia
  • Community Mobilisation in a CBR Programme in a Rural Area of Sri Lanka
  • Barriers to Early Diagnosis, Intervention and Social Integration of Children with Developmental Disabilities: A Qualitative Study from Rural Villages and a Poor Urban Settlement of Bangalore, South India.
  • Assessing Parental Role as Resource Persons in Achieving Goals of Early Detection and Intervention for Children with Hearing Impairment
  • Disability Inclusion in Primary Health Care in Nepal: An Explorative Study of Perceived Barriers to Access Governmental Health Services
  • Knowledge and Beliefs about Ear and Hearing Health among Mothers of Young Children in a Rural Community in South India

Letters to the Editor

  • The Application of Focus Group Discussions and Interviews in Community Physiotherapy

Disability, CBR and inclusive development (DCID), 2014, Vol. 25 No. 3

2014

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Original Research Articles

  • Knowledge Management-based Classification Method for Disability-Inclusive Business
  • Perceived Needs Related to Social Participation of People with Leprosy-related Disabilities and other People with Disabilities in Cambodia: A Qualitative Study
  • A Transect Walk to Establish Opportunities and Challenges for Youth with Disabilities in Winterveldt, South Africa
  • Characteristics and Quality of Life Among People Living with HIV at Drop-in Centres and Shelter Homes in Malaysia
  • Fatigue and Functional Capacity in Persons with Post-Polio Syndrome: Short-term Effects of Exercise and Lifestyle Modification Compared to Lifestyle Modification Alone

Brief reports

  • Profile of Childhood Health Conditions referred to Physiotherapy and Attributing Factors to Disablement
  • Comparative Effect of Massage Therapy versus Kangaroo Mother Care on Physiological Responses, Chest Expansion and Body Weight in Low Birthweight Preterm Infants

Letters to the Editor

  • Investing in Community-based Physiotherapy: the Non-economic Benefits

Disability, CBR and inclusive development (DCID), 2014, Vol. 25 No. 2

2014

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Original Research Articles

  • A Population-based Study on the Prevalence of Impairment and Disability Among Young Cambodian Children
  • Survey of Reproduction Needs and Services: Situation of Persons with Spinal Cord Injuries
  • Violence Against Persons with Disabilities in Bidar District, India
  • Sunil Deepak, Jayanth Kumar, Bapu Santosh, Suresh Gornalli, Praveen Manikappa, Umadevi Vyjantha, Ramesh Giriyappa
  • What has worked for Bringing Out-of-school Children with Disabilities into Regular Schools? A Literature Review
  • Developing the Content of a New Quality of Life Questionnaire for Children with Hearing Loss

Brief reports

  • Improving Disability and Rehabilitation Systems in Low and Middle-income Countries: Some Lessons from Health Systems Strengthening

Experiential Accounts

  • Evolution of Community Physiotherapy in India

Letters to the Editor

  • Computer-based Communication Aid using EEG for Paralytic Clients

Disability, CBR and inclusive development (DCID), 2014, Vol. 25 No. 1

2014

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Original Research Articles

  • Children with Disability in Nepal: New Hope Through CBR?
  • Breaking the Barriers: Ghanaians’ Perspectives about the Social Model
  • Generation and Content Validation of Mobility Domains and Item Pool for Community-dwelling Individuals
  • Community-Based Rehabilitation Programme Evaluations: Lessons Learned in the Field

Experiential Accounts

  • Physiotherapy Training to Enhance Community-based Rehabilitation Services in Papua New Guinea: An Educational Perspective
  • Community-based Inclusive Education: Best Practices from Nicaragua, El Salvador, Guatemala and Honduras

Case Studies

  • Using AVAZ to Enhance Communicative Abilities of a Child with Cerebral Palsy

Letters to the Editor

  • Investing in Community-based Physiotherapy

The disabled beggar : a literature review

GROCE, Nora
LOEB, Marie
MURRAY, Barbara
September 2014

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Beggars with disabilities are among the poorest and most disadvantaged in society. Yet they are virtually invisible in the policy agenda of countries around the world, and are often overlooked in programme and advocacy efforts to improve opportunities for people with disabilities in general. This literature review originated as part of an exploratory study of beggars with disabilities in Ethiopia, published by the Leonard Cheshire Disability and Inclusive Development Centre in collaboration with the ILO in 2013 based on fieldwork undertaken by Professor Groce in Addis Abba. It has been updated and published separately as a contribution to debates on the social and economic inclusion of people with disabilities, on poverty reduction and social protection

Gender, Equality and Diversity Branch, Working Paper No. 1

Five challenges for disability-related research in sub-Saharan Africa

SWARTZ, Leslie
2014

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Disability research in contemporary sub-Saharan Africa is developing rapidly, and this is something to be celebrated. This article reviews some contemporary developments and suggests that there are five central, and interrelated, challenges for the field. These challenges – experience, expertise, enumeration, evidence, and expectations – go to the heart of thinking about disability research in sub-Saharan Africa. An optimistic but appropriately critical approach to addressing these issues is suggested.
 

The Malawi key informant child disability project

TATARYN, Myroslava
et al
August 2014

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“The aim of this study was to use the KIM to estimate the prevalence of moderate/severe physical, sensory and intellectual impairments and epilepsy among children in two districts (Ntcheu and Thyolo) in Malawi. The Key Informant Method (KIM) is a novel method for generating these data. KIM focuses on training community volunteers to identify local children who may have disabilities, who are then screened by medical professionals and referred on for appropriate health and rehabilitation interventions. Consequently, the method offers an alternative to population-based surveys of disability in children, which can be costly and time consuming”

The Malawi key informant child disability project : summary report

TATARYN, Myroslava
et al
August 2014

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This report provides a summary of research project conducted by the International Centre for Evidence in Disability at the London School of Hygiene and Tropical Medicine and the University of Malawi. The study used the Key Informant Method (KIM) to estimate the prevalence of moderate/severe physical, sensory and intellectual impairments and epilepsy among children in two districts (Ntcheu and Thyolo) in Malawi. This report presents summary of the study’s background information, aims and objectives, key findings, conclusions and recommendations

With or without us? An audit of disability research in the southern African region

MCKENZIE, Judith
MJI, Gubela
GCAZA, Siphokazi
2014

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Background: Disability research in the global South has not received significant critical consideration as to how it can be used to challenge the oppression and marginalisation of people with disabilities in low-income and middle-income countries. The Southern Africa Federation of the Disabled (SAFOD) embarked on a programme to use research to influence policy and practice relating to people with disabilities in Southern Africa, and commissioned an audit on research expertise in the region. In this article, a research audit is reported on and situated in a framework of mancipatory research.

 

Objectives: This article sets out to describe a preliminary audit of disability research in the southern African region and to draw conclusions about the current state of disability research in the region and make recommendations.

 

Method: The research method entailed working with disability researchers in the ten SAFOD member countries and utilising African disability networks hosted on electronic media. Disability researchers working in the region completed 87 questionnaires, which were reviewed through a thematic analysis.

 

Results: The discussion of results provides a consideration of definitions of disability; the understanding of disability rights, research topics and methodologies; the participation of people with disabilities in research; and the challenges and opportunities for using research to inform disability activism.

 

Conclusion: The conclusion highlights critical issues for future research in the region, and considers how a disability researcher database can be used as a tool for disability organisations to prioritise research that serves a disability rights agenda.

 

Dis/ability and austerity: beyond work and slow death

GOODLEY, Dan
LAWTHOM, Rebecca
RUNSWICK-COLE, Katherine
2014

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The forthcoming book Dis/ability Studies: Theorising Disablism and Ableism argues that we are living in an historical epoch which might be described as neoliberal-ableism, in which we are all subjected to slow death, increased preca- rity and growing debility. In this paper we apply this analysis to a consideration of austerity with further reference to disability studies and politics.

Use of subjective and objective criteria to categorise visual disability

KAJLA, Garima
ROHATGI, Jolly
DHALIWAL, Upreet
May 2014

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This article presents research into the use of  subjective (quality of life) as well as objective criteria to classify visual disability. When both subjective and objective criteria were used, instead of just the commonly accepted objective criteria, visual disability could be  objectively reclassified

Indian Journal of Ophthalmology, Vol. 62, Issue 4

Research & humanities in medical education (RHiME)

DHALIWAL, Upreet
et al
March 2014

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Research and Humanities in Medical Education (RHiME) is an open access, peer-reviewed online journal with the vision to blend humanities with the sciences in medical education. It aims to encourage contributions from and discussion between teachers and students, doctors and patients, the sick and their care-providers, and between health policy makers and policy users

Belonging and connection of school students with disability

ROBINSON, Dr. Sally
TRUSCOTT, Julia
February 2014

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All students want to feel like they belong and that they are valued in their school community. School is a centrally important place to young people — not only where they learn fundamental academic knowledge, but also where skills in making and keeping friends, relating to peers, and social justice principles are learnt and practiced. What happens when young people feel like they don’t belong?

 

This paper examines a series of key issues about belonging and connection for students with disability and demonstrates research that shows:

• Feeling a sense of belonging and connection makes a positive difference to school life

There are a number of key elements to belonging and connection — friendship, peer acceptance, capability, being valued and supportive relationships with key adults

• When belonging and connection are threatened, there are several areas in which the impact is seen. The friendships of students are limited; they are lonely; the places they can go within the school are controlled; there are tensions in negotiating support relationships; students feel and are excluded; and kid’s strengths aren’t seen by other students or adults in their school communities

• Bullying is a particularly strong threat to a felt sense of belonging and connection

Send all my friends to school : a global campaign for education UK evaluation of UK’s aid to education for children with disabilities

NOCK, Stephen
DAVIS, Warren
Eds
2014

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This report reveals a major gap between DFID’s inclusive education policy and practice, with weak implementation, as a result of a lack of resources and capacity. GCE UK’s report highlights that there is an urgent need for a significant increase in policy attention and resources to address the major structural and social barriers that children with disabilities currently face in accessing education. It concludes by making key recommendations.  It finds that the issue needs much greater prioritisation within DFID, and that there is an urgent need for DFID to develop a systematic approach towards the issue, both directly within its education portfolio, and by mainstreaming the issue across other areas of DFID operations. It recommends that it is critical that DFID works to embed disability throughout its development programmes to achieve long-term change, even as governments change and key individuals move on

Childhood disability and malnutrition in Turkana Kenya : a summary report for stakeholders and policy

KISIA, James
et al
2014

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This study aimed to assess whether children with disabilities were included within humanitarian and food security response programmes and whether there was an association between disability and malnutrition. The fieldwork was conducted in 2013 in the Turkana region of Kenya, a region repeatedly classified as experiencing a humanitarian emergency, and used both qualitative and quantitative methods. The key finding of the report is that children with disabilities are more likely to be malnourished and the key recommendations are that children with disabilities should be targeted in food aid and food assistance programmes, and that further efforts are needed to include children with disabilities in education.   The report is intended for stakeholders to inform policy

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