Resources search

Forgotten in a crisis: Addressing dementia in humanitarian response

GLOBAL ALZHEIMER'S & DEMENTIA ACTION ALLIANCE
ALZHEIMER'S DISEASE INTERNATIONAL
ALZHEIMER'S PAKISTAN
May 2019

Expand view

Every 3 seconds someone develops dementia and it’s one of the leading causes of death worldwide. Despite being some of the most at-risk in times of natural disaster, conflict and forced migration, there is a lack of awareness that dementia is a medical condition, meaning people with dementia are being neglected when they’re most in need of support.

This report investigates ways humanitarian emergency responses can protect and support people living with dementia. It draws on the experiences of people affected by dementia, Alzheimer’s specialists in affected countries, humanitarian organisations and inter-governmental organisations including the World Health Organisation and UNHCR.

Our findings reflect a wider issue of a lack of support for older people and those with disabilities in humanitarian response. We have found that people with dementia are systemically overlooked, due to a lack of global awareness of the condition and associated stigma.

The report is a collaboration between the Global Alzheimer’s & Dementia Action Alliance, Alzheimer’s Disease International and Alzheimer’s Pakistan.

Humanitarian inclusion standards for older people and people with disabilities

ADCAP
TILL, Celia
et al
February 2018

Expand view

The Humanitarian inclusion standards for older people and people with disabilities provide guidance across all areas and at all stages of emergency response to ensure older people and people with disabilities are not left out.

The standards consist of nine key inclusion standards, including identification, safe and equitable access, knowledge and participation, and learning. Alongside these, there are seven sector-specific inclusion standards, which include protection, shelter, health, and water, sanitation and hygiene.

Each standard comes with key actions, guidance, tools and resources, and case studies illustrating how older people and people with disabilities have been included in humanitarian responses.

The sector-specific standards provide guidance in three key areas: data and information management, addressing barriers to inclusion, and participation of older people and people with disabilities.

By implementing the key action points provided, organisations will build up a greater evidence base, deliver more inclusive programmes, and be able to better demonstrate impact on the lives of those most at risk during humanitarian crises.

The standards can be used as guidance during programme development, implementation and monitoring, and as a resource for training and advocacy.

A guide for ensuring equity and inclusion in education

UNESCO
July 2017

Expand view

This guide is intended to support countries in embedding inclusion and equity in educational policy. It supports Sustainable Development Goal (SDG) 4 on education calls for inclusive and equitable quality education and lifelong learning opportunities for all by 2030. The guide is intended for use primarily by key government education policy-makers working with key stakeholders. The guide provides an assessment framework that can serve to: review how well equity and inclusion currently figure in existing policies; decide which actions are needed to improve policies and their implementation towards equitable and inclusive education systems; and monitor progress. The guide includes evidence that informs the assessment framework, examples of initiatives that are contributing to more inclusive and equitable education systems in different parts of the world, and recommendations for further reading. 

Including children with disabilities in humanitarian action

UNICEF
July 2017

Expand view

"The purpose of Including Children with Disabilities in Humanitarian Action is to strengthen the inclusion of children and women with disabilities, and their families, in emergency preparedness, response and early recovery, and recovery and reconstruction. This series of booklets provides insight into the situation of children with disabilities in humanitarian contexts, highlights the ways in which they are excluded from humanitarian action, and offers practical actions and tips to better include children and adolescents with disabilities in all stages of humanitarian action. The booklets were created in response to UNICEF colleagues in the field expressing a need for a practical resource to guide their work. The information and recommendations are based on evidence and good practices gathered from literature and field staff experiences. The six booklets on how to include children and adolescents with disabilities in humanitarian programmes are as follows: 1) general guidance; 2) child protection; 3) education; 4) health and HIV/AIDS; 5) nutrition; 6) water, sanitation and hygiene (WASH)".

General guidance available July 2017. Others to follow.

In addition to the PDF versions in English, Arabic and French, the guidance is also available in a range of accessible formats, including EPUB, a Braille-ready file and accessible HTML formats. 

The guidance was developed in collaboration with Handicap International.

Education for all : or just those easier to reach?

GREGORY, Peter
SUTHANTHIRARAJ, Kavitha
VAN ZOEREN. Peter
2012

Expand view

"This report examines the extent to which issues of gender and disability are considered in the design, development and monitoring of education programs undertaken by AusAID, the World Bank and the Asian Development Bank in Indonesia, Papua New Guinea and the Philippines. This is examined through a dual analytical approach involving assessment of institutional education policy and design documents to determine gender and disability policies and priorities, coupled with a review of operational documents ie: planning documents, evaluation reports and independent evaluation documents"

Disability in people affected by leprosy : the role of impairment, activity, social participation, stigma and discrimination

VAN BRAKEL, W. H.
et al
2012

Expand view

"Leprosy-related disability is a challenge to public health, and social and rehabilitation services in endemic countries. Disability is more than a mere physical dysfunction, and includes activity limitations, stigma, discrimination, and social participation restrictions." This paper assesses the extent of disability and its determinants among persons with leprosy-related disabilities after release from multi drug treatment
Global Health Action, Vol 5

Toolkits : a practical guide to monitoring, evaluation and impact assessment

GOSLING, Louisa
EDWARDS, Mike
2003

Expand view

This field-tested toolkit has been designed to measure the extent to which programmes make a difference. The 2003 edition of Toolkits has been extended with contributions from SCF and beyond. It describes participatory methodologies, such as mapping and focus groups. It is divided into three sections: underlying principles, practical questions and tools. This new edition brings these up to date and discusses the implications of adopting a human rights approach to development and the increased emphasis on partnership. There are new chapters on impact assessment, monitoring and evaluating advocacy, as well as two new tools - one for improving planning, evaluation, and impact assessment and one for stakeholder analysis

Handbook for appropriate communication for behavior change. Culturally appropriate information/education/communication : elaboration and delivery

UNITED NATIONS EDUCATIONAL, SCIENTIFIC AND CULTURAL ORGANISATION (UNESCO). Division of Cultural Policies and Intercultural Dialogue
2001

Expand view

This handbook is part of the UNESCO initiative on HIV and culture. It deals with building culturally appropriate information/education/communication (IEC) material and processes. It aims to tailor the content and pace of action to people's beliefs, value systems, capacity to mobilise, and to modify international and national strategies and policies, project design and field work accordingly. It gives a conceptual introduction to the issue and then presents the methodological research to be carried out (evaluation of the current activities, understanding, sensitising and mobilising cultural references and resources accordingly). It then identifies proposed target audiences and their specific characteristics. It concludes by proposing appropriate IEC models combining message elaboration and delivery

Let's teach about AIDS : how to assess the community's understanding of AIDS

LAVER, S
1992

Expand view

Ideas and practical activities to help HIV/AIDS workers understand better how groups see the problem of HIV/AIDS. One in a series of six booklets developed in southern Africa for use by AIDS educators, describing participatory learning exercises that can be used with adults and young people. Other booklets in this series cover a range of issues, including drama, AIDS education and evaluation

E-bulletin