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Listen Include Respect: International Guidelines for Inclusive Participation

Inclusion International
June 2022

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The Listen Include Respect guidelines help organisations understand what they need to do to make sure people with intellectual disabilities are included in their work.

​They were written by Inclusion International and Down Syndrome International.

Over 1,500 people with intellectual disabilities and their families from almost 100 countries helped write them.

The Convention on the Rights of Persons with Disabilities (CRPD) tells us that all people with disabilities have the right to “meaningful participation.”

“Meaningful participation” is what happens when people with intellectual disabilities get everything they need to be fully included, participate equally, and feel valued.

These guidelines will help organisations to make this happen.

The inclusion of persons with disabilities in EU-funded humanitarian aid operations.DG ECHO Operational Guidance

EUROPEAN COMMISSION
January 2019

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This guidance has been developed as a tool to reach the goal that all EU-funded humanitarian partners be required to take the needs of persons with disabilities into account in their projects.


It concentrates on mainstreaming the needs of persons with disabilities across all types of humanitarian interventions, hence not dealing with targeted actions specifically. As such, this guidance is a complementary tool to existing Thematic Policies, in particular to Thematic Policy n°8 on Humanitarian Protection

 

The guidance consists of three main parts. Part II presents disability mainstreaming in programming in detail and provides a series of concrete examples and illustrations. It also provides tools to collect data and measure disability inclusion. Part III of the guidance is a short document that that can be easily used in the field for either programming or monitoring.

Disability Inclusive Development Good Practices: Level of Commitment to Core Concepts of Human Rights

HENDERSON, Cheryl
MANNAN, Hasheem
POWER, Jessica
2017

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Aim: Good practices have been documented by International Non-Governmental Organisations (INGOs) to promote disability inclusive development and encourage the replication or scaling up of good practices that use rights based approaches. This study aimed to investigate the extent to which Core Concepts of human rights are illustrated in disability inclusive development good practices related to health.

 

Methods: This study analysed case studies of disability inclusive development good practices focusing on health that are available in the public domain using EquiFrame, an established content analysis framework in benchmarking health and social policies.

 

Results: A total of 42 health related good practices were identified from 3 different INGOs working in the field of disability inclusive development. The highest occurring human rights Core Concepts were; access 55%, individualised services 48%, capacity building 45% and participation 38%. The Core Concepts with the lowest levels of commitment were; autonomy 3%, cultural responsiveness 3%, accountability 3%, and efficiency 3%. Privacy and autonomy were not mentioned at all. The quality of reporting of the core concepts of human rights was low as they did not state specific programme actions or intentions to monitor Core Concepts.

 

Conclusion: Level of commitment to Core Concept coverage and quality of reporting was low. EquiFrame was successfully extended to analyse disability inclusive development good practices focusing on health. Its use in further analysis of inclusive good practice is advised.

 

Implications: These results can be used for advocacy in disability inclusive development and to guide programme staff training and documentation of disability inclusive development good practices.

School toilets: queer, disabled bodies and gendered lessons of embodiment

SLATER, Jenny
JONES, Charlotte
PROCTER, Lisa
2016

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In this paper we argue that school toilets function as one civilising site [Elias, 1978. The Civilising Process. Oxford: Blackwell] in which children learn that disabled and queer bodies are out of place. This paper is the first to offer queer and crip perspectives on school toilets. The small body of existing school toilet literature generally works from a normative position which implicitly perpetuates dominant and oppressive ideals. We draw on data from Around the Toilet, a collaborative research project with queer, trans and disabled people (aroundthetoilet.wordpress.com) to critically interrogate this work. In doing this we consider ‘toilet training’ as a form of ‘civilisation’, that teaches lessons around identity, embodiment and ab/normal ways of being in the world. Furthermore, we show that ‘toilet training’ continues into adulthood, albeit in ways that are less easily identifiable than in the early years. We therefore call for a more critical, inclusive, and transformative approach to school toilet research.

Human Rights

www.macao-tz.org
December 2014

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Malezi AIDS Care Awareness Organization (MACAO) is a non-profit organization reaching out to neglected Indigenous people in Ngorongoro District, Arusha Region of Northern Tanzania.  Macao founded in 2003, Macao is a humanitarian organization that provides assistance to approximately 200,000 Indigenous Maasai community in Ngorongoro district for addressing needs of water and sanitation, food security, health Care Research, Education, Research environment, Maasai Traditional Research, Human Rights and sustainable economic development by strengthening their livelihoods.  In addition to responding to major relief situations, MACAO focuses on long-term community development through over 4 Area Development Project. We welcome the donors and volunteers to join us in this programs, we are wolking in ruro villages.

Disability inclusion : translating policy into practice in humanitarian action

PEARCE, Emma
March 2014

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This report “documents positive practices and ongoing challenges to promote disability inclusion across UNHCR’s and its partners’ work in multiple countries and multiple displacement contexts. The report provides lessons and recommendations for other organizations and the wider humanitarian community on engaging persons with disabilities at all levels of humanitarian work. It draws on consultations with over 700 displaced persons, including persons with disabilities, their families, and humanitarian staff, in eight countries”

Note: This report is also offered in plain text format

Disability, poverty, and livelihoods guide : guidance from Trickle Up

SANSON, Jo
FELIX, Michael
November 2013

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"This guide is intended to encourage and assist organizations seeking to include people with disabilities in their economic strengthening and livelihood programs. It contains lessons for organizations that aim to move households out of poverty, [and] those that seek to economically and socially empower particularly vulnerable members of poor household"

Physical and functional rehabilitation (policy paper)

RENARD, Patrice
URSEAU, Isabelle
June 2013

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This document presents the physical and functional rehabilitation-specific challenges, principles and recommendations for Handicap International. Above all, it sets out the overall framework within which the theoretical underpinnings of the Rehabilitation Services Unit are applied; the primary objective is to ensure consistency between the association’s mandate and the implementation, in its programmes, of projects falling within the unit’s scope of activities. The secondary objective is to formalise the selection and/or identification of external guidelines for adaptation for internal use. 

Disability inclusive millennium development goals and aid effectiveness : a conference report

LEONARD CHESHIRE DISABILITY
UN Economic and Social Commission for Asia and the Pacific (UNESCAP)
2013

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This report presents the proceedings, discussions and presentations from a joint conference organised by Leonard Cheshire Disability and UNESCAP. The conference reviewed the international and regional mandates on disability and aid effectiveness, identified challenges and good practices in measuring the impact and quality of disability-inclusive development, and identified ways to implement disability-inclusive development effectively on the ground and at policy level. This report is useful for anyone interested in disability and development
"Disability inclusive millennium development goals and aid effectiveness"
14-16 March 2012
Bangkok, Thailand

Disability inclusion in drought and food crisis emergency response

CHRISTOFFEL BLINDENMISSION (CBM) AUSTRALIA
et al
July 2011

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"This factsheet provides base level information to practitioners for awareness raising, training, advocacy, project design and proposal writing. The information may be used and sent out widely, with reference to the Kenya Red Cross, The Association of the Physically Disabled of Kenya, CBM and Handicap International. The overall information in this factsheet is also applicable to older persons and other vulnerable groups"

Access to services for persons with disabilities

CHIRIACESCU, Diana
DE BACKER, Maryvonne
BOTOKRO, Rozenn
March 2011

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This practical guide is divided into three sections to present a systematic approach of access to services for people with disabilities. The principles and benchmarks section outlines key factors for accessing services and provides an analysis of the service sector for people with disabilities. The practical guide section presents the steps involved in planning at the programme level, and the toolbox section offers practical tools to implement the proposed techniques. A glossary and comprehensive bibliography are also provided. This resource is useful to those interested in access to service for people with disabilities

Child protection rapid needs assessment : a short guide (CPRA) toolkit

CHILD PROTECTION WORKING GROUP (CPWG)
January 2011

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This practical guide provides information about the how to use the Child Protection Needs Assessment Toolkit, an inter-agency, cluster-specific rapid assessment to be used in the aftermath of a rapid-onset emergency. It is meant to provide a snapshot of urgent child protection related needs among the affected population within the immediate post-emergency context, as well as act as a stepping-stone for a more comprehensive process of assessing the impacts of the emergency

Alternative care in emergencies (ACE) toolkit : extended guidance

FULFORD, Louise Melville
2011

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"The tools and guidance in this resource are designed to facilitate the process of planning for and implementing interim care and related services for children separated from or unable to live with their families during an emergency. They are based on learning from recent and current emergencies, drawing on the principles and standards set out in the key documents relating to separated children, and out of home care"

HIV/AIDS and disability networking : summary report of survey consultation

CAMERON, Cathy
March 2010

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Recognising the importance of the connection between HIV and disability, this report aims to explore options for the development of a global network among the HIV/AIDS and disability fields in order to advance policy and program development. Through a survey consultation process, the report identifies and documents communication and collaborative activities that currently exist or are under development and provides recommendations to increase communication and collaboration. This report would be of interest to those working in the HIV/AIDS and disability fields

CBR stories from Africa : what can they teach us?

COLERIDGE, Angela
HARTLEY, Sally
Eds
2010

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"Community Based Rehabilitation (CBR) is an evolving concept. Its effectiveness depends on continuous reflection, debate and learning. This book aims to facilitate this process through the stories of five CBR programmes in Africa, told by those involved with the programmes and reflected on with honesty...Each of the five programmes has been invited to document their work, describing how its programme started and assessing the effectiveness of the approach it has chosen. They were asked to identify their successes and challenges, and to reflect on how difficulties are being overcome. Life stories illustrate the impact each approach can have on individual lives. The book offers itself as a reflective tool, to be used by practitioners. Each chapter asks specific questions of its readers, inviting them to draw comparisons with their own programme. The concluding section of the book outlines ideas for evaluating and developing their CBR programmes"

Meeting report of the international policy dialogue on HIV/AIDS and disability

PEAKE, Sharon
November 2009

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The International Policy Dialogue on HIV/AIDS and Disability ..."provided a forum for stakeholders from governments, academia, and non-governmental and multilateral organizations to explore the issues and evidence related to HIV/AIDS and disability, and to chart a way forward in terms of policy and programme development." The objectives..."were: to explore the place of disability in the changing nature of the global HIV/AIDS epidemic and the required response; to share and learn from participants' experiences; and to build and reinforce the partnerships needed to sustain a comprehensive global response to HIV/AIDS, which includes issues related to disability"

Promoting sexual and reproductive health for persons with disabilities : WHO/UNFPA guidance note

GROCE, Nora
et al
2009

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This resource addresses issues of sexual and reproductive health (SRH) programming for persons with disabilities. SRH, in particular, deserves attention because these needs have been so widely and so deeply neglected. At the same time, however, the approaches discussed here apply broadly to all aspects of health programming for persons with disabilities. This note outlines a general approach to programming and does not address specific protocols for the SRH care and treatment of persons with disabilities It is intended for SRH experts and advocates within UNFPA and WHO as well as those in other development organisations and partners

HIV/AIDS and disability : final report of the 4th international policy dialogue

HEALTH CANADA
2009

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This report documents the International Policy Dialogue which provided an "opportunity for participants to talk about the connections between HIV/AIDS and disability, and its significance to international development issues...Through panel presentations, plenary discussion and breakout sessions, participants discussed emerging issues on the intersectionality of HIV/AIDS and disability, and charted a way forward in terms of policy and programme development"

ARC resource pack : user guide

ACTION FOR THE RIGHTS OF CHILDREN (ARC)
2009

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"The ARC resource pack provides an essential collection of information and training material on CD-ROM, to strengthen people’s capacity: to tackle the root causes of children’s vulnerabilities; to build effective child protection systems for use in emergencies and long-term development; [and] to ensure that no activities inadvertently compromise children’s rights or safety....The pack includes the latest standards and best practices and reflects the realities of present-day emergencies, with increased emphasis on natural disasters and internal displacement.....This guide explains what is on the CD-ROM and the range of users for whom it is relevant. It will help you to decide how to build ARC materials into your work and outlines the relationship between the ARC resource pack and other materials"

An ADA guide for local governments making community emergency preparedness and response programs accessible to people with disabilities

US DEPARTMENT OF JUSTICE, Civil Rights Division
2008

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This guide provides guidance for how to make local government emergency preparedness and response program accessible for persons with disabilities. It helps to identify needs and evaluate effective, accessible and inclusive emergency management practices. The following issues are explored: planning, notification, evacuation, sheltering, returning home and contracting for emergency services

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