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Forgotten in a crisis: Addressing dementia in humanitarian response

GLOBAL ALZHEIMER'S & DEMENTIA ACTION ALLIANCE
ALZHEIMER'S DISEASE INTERNATIONAL
ALZHEIMER'S PAKISTAN
May 2019

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Every 3 seconds someone develops dementia and it’s one of the leading causes of death worldwide. Despite being some of the most at-risk in times of natural disaster, conflict and forced migration, there is a lack of awareness that dementia is a medical condition, meaning people with dementia are being neglected when they’re most in need of support.

This report investigates ways humanitarian emergency responses can protect and support people living with dementia. It draws on the experiences of people affected by dementia, Alzheimer’s specialists in affected countries, humanitarian organisations and inter-governmental organisations including the World Health Organisation and UNHCR.

Our findings reflect a wider issue of a lack of support for older people and those with disabilities in humanitarian response. We have found that people with dementia are systemically overlooked, due to a lack of global awareness of the condition and associated stigma.

The report is a collaboration between the Global Alzheimer’s & Dementia Action Alliance, Alzheimer’s Disease International and Alzheimer’s Pakistan.

Innovations In Dementia

ROUTLEDGE, Martin
SANDERSON, Helen
BAILEY, Gill
October 2016

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This book offers concrete ideas and examples to those interested in driving a radically different approach to supporting people with dementia and their families. "We have explored a number of approaches with people who have been leading their development. We have been keen to look at both approaches that emerge from working directly to improve support for people with dementia and others that have different roots, but we think are potentially very transferable. None of the approaches is yet being used at any significant scale". Discussions and examples are all UK based. There is an introduction detailing current problems and issues with care and support for people with dementia. 10 approaches are described for housing and support, 4 concerned with enabling people to have good days and 7 associated with enabling people to connect with their community. 

Non-Communicable diseases in an ageing world : a report from the International Longevity Centre UK, HelpAge International and Alzheimer’s Disease International lunch debate

BAMFORD, Sally-Marie
SERRA, Valentina
July 2011

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This report, based on the discussion and recommendations from the expert meeting, presents information about the need for a life-course focus on prevention, treatment, management and related care issues on NCDs and for dementia to be addressed as a global priority for action. "The first part of the report highlights salient policy and political issues on the NCD question and summarises some of the key international developments in this regard. The latter section of the report provides a summary of the presentation by Professor Martin Prince, and identifies some of the key themes which emerged from the meeting"
Expert stakeholder lunch meeting
London, UK
4 May 2011

Call for the recognition of ageing, Alzheimer’s disease and other dementias in the 2011 UN Summit on NCDs

ALZHEIMER’S DISEASE INTERNATIONAL
et al
2011

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This joint position paper highlights that ageing and the associated risk of Alzheimer’s disease and other dementias is a key factor for the 21st century’s social and economic sustainability and should therefore be an essential component of the UN’s NCD considerations. This paper outlines seven related considerations for the UN Summit on NCDs and highlights eight recommendations. This paper is useful to anyone interested in NCDs and ageing

World alzheimer report 2010 : the global economic impact of dementia

WIMO, Anders
PRINCE, Martin
2010

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This report provides a global picture of the economic impact of Alzheimer's disease and dementia. "The report includes an estimate of the worldwide cost of dementia, including direct medical costs, direct non-medical costs and costs of informal (family) care. The estimates are broken down by world region and include analysis of the differences between low and high income countries. The report also contains important policy recommendations and makes clear to key decision-makers that doing nothing is not an option"

Contribution of chronic diseases to disability in elderly people in countries with low and middle incomes : a 10/66 dementia research group population-based survey

SOUSA, Renata M
et al
November 2009

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This article assesses "the contribution of physical, mental, and cognitive chronic diseases to disability, and the extent to which sociodemographic and health characteristics account for geographical variation in disability." Using cross sectional surveys of people aged over 65 in seven low and middle income countries, the findings highlight specific associations of chronic diseases to disability and overall that dementia, not blindness, is overwhelmingly the most important independent contributor to disability for elderly people in low and middle income countries. This resource is useful to people interested in the contribution of chronic diseases to disability in elderly people
The Lancet, Vol 374, Issue 97041
To access this article, users need to register (free) online

Essential skills for mental health care

CRABB, Jim
RAZI, Emma
September 2007

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This manual has been designed to provide essential information to mental health professionals to help provide good, safe care to people with mental ill health. The initial chapters provide an introduction to mental health and the later chapters and the appendices will be of more use to experienced health professionals who prescribe medicine

Ageing and mental health [whole issue]

September 2004

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Older people in low-income countries are more likely to develop mental problems, due to the stress and worries caused by the uncertainties and lack of security. Because of stigma and limited access to health services and treatment, their condition often goes undiagnosed. This issue reflects on how old age and poverty impact on mental health and suggests positive approaches and ways of promoting good mental health, such as the 'guided autobiography' which helps older people to plan their future. Includes articles on how to recognise depression, practical approaches to dementia and how to help carers to cope

Active old age [whole issue]

HEALTHLINK WORLDWIDE
Ed
1999

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This issue of CBR News addresses the issue of ageing. It contains articles on staying active in old age, answers to common questions about ageing, older people as carers, cataracts, dementia, and the identification of elder people's needs. A Fact File section on page 6 looks at the reasons for older people being at risk from HIV/AIDS

Internet Mental Health

LONG, Phillip W

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This website includes information on a wide range of mental illnesses and treatments, plus research, a magazine and links to other websites. It also hosts email discussion groups on mental health issues such as depression and schizophrenia

WHO Mental Health Gap Action Programme

WORLD HEALTH ORGANIZATION

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The WHO Mental Health Gap Action Programme (mhGAP) aims at scaling up services for mental, neurological and substance use disorders for countries especially with low- and middle-income. The programme asserts that with proper care, psychosocial assistance and medication, tens of millions could be treated for depression, schizophrenia, and epilepsy, prevented from suicide and begin to lead normal lives– even where resources are scarce.

Resources available include:

mhGAP Operations Manual (2018)
mhGAP Training Manuals (2017)
mhGAP Intervention Guide 2.0 app (2017)
mhGAP Intervention Guide - Version 2.0 (2016)

Reports of the yearly mhGAP Forum are available

 

10/66 Dementia Research Group

10/66 DEMENTIA RESEARCH GROUP

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The 10/66 Dementia Research Group is a collective of researchers carrying out population-based research into dementia, non-communicable diseases and ageing in low and middle income countries. This website features general information about the group, highlights their research and policy work, and provides details about their participants. Additional sections are given for links to their newsletter, other news items and registration. This website is useful to anyone interested in population-based research into dementia, non-communicable diseases and ageing in low and middle income countries

I CAN! I WILL! idea library

ALZHEIMER’S DISEASE INTERNATIONAL (ADI)

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I CAN! I WILL! is a library of ideas to help people around the world stand up and speak out about Alzheimer’s disease and related disorders. The library covers the following topics: people with dementia; family carers and friends; medical professionals; professional carers; alzheimer associations; and other people. This interactive library provides options to browse the books, to contribute an idea to the library and to comment on an idea. This library is useful to people with dementia, care partners, medical professionals, volunteers and advocates to learn and share experiences

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