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Short set of questions on disability: data collection

LOEB, Mitchell
2015

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Recommendations for data collection of the short set of 6 questions devised by the Washington Group for Disability Statistics are given. The questions are phrased to ask whether the subject has difficulty with any of the domains of functioning. They have been field validated. It is recommended that the questions are presented without initial screening questions, that the enumerators are well trained and that the translations from the original English are appropriate. Four domains are highlighted from the 6 if required by space or time. 

Washington Group tools: methodology issues

LOEB, Mitchell
2015

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The process of devising the short set of six questions by the Washington Group on Disability Statistics and recommendations for their use are discussed. The questions were cognitively tested to determine patterns of interpretation and out of scope patterns. Translations were made to give feasible language to get to the same concepts. Cognitive testing was then repeated to examine cross national comparability. Field testing of 1000 people followed. The importance of enumerator training and of using the exact questions and response categories is emphasised. 

For every child, a fair chance : the promise of equity

UNITED NATIONS CHILDREN’S FUND (UNICEF)
November 2015

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“UNICEF’s commitment to equity – giving a fair chance in life to every child, everywhere, especially the most disadvantaged – is built on the conviction that it is right in principle and evidence that it is right in practice. This report makes the case for closing persistent gaps in equity…” The report identifies a number of persistent gaps in equity for children, ranging from health to nutrition, to social inclusion. The report concludes by making recommendations to close gaps in equity worldwide as well as projecting progress in achieving equity by 2030

Community based rehabilitation for people with disabilities in low and middle income countries : a systematic review

IEMMI, Valentina
et al
September 2015

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This Campbell Collaboration systematic review assesses the effectiveness and cost-effectiveness of community-based rehabilitation (CBR) for people with physical and mental disabilities in low- and middle-income countries, and/or their family, their carers, and their community. This review identified 15 studies that assessed the impact of community-based rehabilitation on the lives of people with disabilities and their carers in low- and middle-income countries. The studies included in the review used different types of community-based rehabilitation interventions and targeted different types of physical (stroke, arthritis, chronic obstructive pulmonary disease) and mental disabilities (schizophrenia, dementia, intellectual impairment). The authors conclude that the evidence on the effectiveness of CBR for people with disabilities in low- and middle-income countries suggests that CBR may be effective in improving the clinical outcomes and enhancing functioning and quality of life of the person with disabilities and his/her carer and recommend future studies will need to adopt better study designs, will need to focus on broader clients group, and to include economic evaluations

Campbell Systematic Reviews 2015:15

Sightsavers disability disaggregation project : India mid-term review report

JOLLEY, Emma
THIVILLIER, Pauline
September 2015

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‘This Mid Term Review (MTR) report contains information on the first six months (July – March) of the disability disaggregation pilot project taking place in Bhopal, India. The report includes information on the processes in place at the different locations to collect data disaggregated by disability and initial results. It also captures attitude, knowledge and experiences of programme managers, decision makers and data collectors around disability, their challenges, and the experiences of Sightsavers’ implementing staff’

Studies and research at Handicap International : promoting ethical data management

BRUS, Aude
September 2015

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This guide explains the importance of ethical data collection and management. Using Handicap International’s decades experience implementing projects and programmes globally, the report highlights the impact of data collection and the importance of implementing ethical approaches in a variety of situations where data is being collected. It aims to raise the awareness of Handicap International’s operational and technical staff and their partners to the ethical questions to be considered when managing data (preparation, collection, processing, analysis and sharing of information). It reaffirms the ethical principles underpinning the organisation’s actions and concludes with eight ethical recommendations that are applicable to studies and/or research in our intervention settings

Community based rehabilitation (CBR) : critical perspectives from Latin America

GRECH, Shaun
2015

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“CBR Perspectives from Latin America” is a critical reflection on the multi-dimensional and changing nature of CBR, the perceived benefits, the conundrum of standardized approaches versus community driven processes, the nature of links between CBR and human rights, the resourcing of CBR and the difficulty inherent in taking a short term view in the evaluation of what is a long term process. Not so often are the experiences and perspectives from Latin America shared to a wider audience, making Dr. Grech’s work a remarkable achievement for the Region.”

Practice note : collecting and using data on disability to inform inclusive development

BUSH, Asahel
CARROLL, Aleisha
JAMES, Kathryn
July 2015

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This Practice Note provides guidance and tools for the collection and use of data and evidence on disability at a program level, to inform inclusive development practice and outcomes. It includes sections on why to collect information about disability; how to make mainstream data collection processes disability inclusive; planning for data collection throughout the project cycle; and methods and tools for collection of data to support disability inclusion

The document is the result of a collaboration between Plan International and the CBM Australia-Nossal Institute Partnership for Disability Inclusive Development. It was prepared in the context of growing interest among international development agencies in the disability inclusive practice, and the collection of evidence to underpin this. It draws on some of the experiences and learning arising from Plan’s work to strengthen disability inclusion within its development programs and the CBM-Nossal Partnership’s work to strengthen disability inclusion within the Australian development sector

Expanding universal design process : Thailand

SAWADSRI, Antika
Ed
June 2015

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This issue of the Design for All Institute of India’s monthly newsletter higlights universal design process in Thailand. A range of topics are discussed, such as, universal design, related research, accessibility in places of worship and classrooms, and individual perspectives on accessibility from a wheelchair-user and a person with a visual impairment

Vol 10, No 6

Technical report 1 : mapping of organisations in Indonesia in disaster risk reduction [MOIDRR]

CENTRE FOR DISABILITY RESEARCH AND POLICY, University of Sydney
ARBEITER-SAMARITER-BUND INDONESIA
June 2015

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This is the first Technical Report in a three part series for the two year DFAT Australian Aid funded project (2013-2015), Promoting the Inclusion of People with Disabilities in Disaster Management in Indonesia. This report details the mapping of organisations in Indonesia working in disaster risk reduction (DRR). The two year project was concerned with understanding the gaps between disability inclusive policy and practices in DRR and supporting opportunities to include people with disabilities in all phases of disaster risk management. The premise of this work was that reducing the vulnerability of people with disability during disasters is a key strategy to promote broader community resilience

 

The direct and practical solutions that people with disability can offer to community-level DRR activities should be a key consideration within all phases of disaster risk management. Inclusion of people with disabilities in DRR before, during, and after disasters contributes to the “whole-of-community” approach to disaster resilience advocated in contemporary policy and enacted by DRR agencies. This project was initially framed within an increasing awareness of disability inclusion in DRR globally which is now articulated in the recently issued Sendai Framework for Disaster Risk Reduction 2015-2030 (UNDISR, 2015), and within an increasingly supportive policy environment in Indonesia

Technical report 3 : the disability inclusive disaster resilience (DiDR) tool : development and field-testing

CENTRE FOR DISABILITY RESEARCH AND POLICY, University of Sydney
ARBEITER-SAMARITER-BUND INDONESIA
June 2015

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This is the third Technical Report in a three part series for the two year DFAT Australian Aid funded project (2013-2015), Promoting the Inclusion of People with Disabilities in Disaster Management in Indonesia. This report details the development, refinement and field–testing of the Disability Inclusive Disaster Resilience (DiDR) tool. The purpose of the DiDR tool is to identify the resilience and capabilities of people with disabilities to natural disasters in their family and community setting. The tool is designed to be used by people with disabilities, their families or carers and thereby to promote the inclusion of people with disabilities in Disaster Risk Reduction (DRR) policy making and strategy implementation. The tool assesses the resilience of people with disabilities by bringing together four components known to be fundamental to disaster risk reduction: the individual’s functioning status, their level of participation in their communities, the physical vulnerability of their place of residence, and individual risk predictors known to influence the behaviour of the general population before, during and after a natural hazard emergency. In February and March 2015, the survey teams administered the DiDR Tool by interviewing 289 people with disabilities or their carers in four Indonesian Districts affected by diverse natural hazards 

Global Out-of-School Children initiative operational manual

UNICEF
UNESCO INSTITUE FOR STATISTICS
May 2015

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The Out-of-School Children Initiative (OOSCI) aims to support countries in their study and analysis of out-of-school children and children who are at risk of dropping out by using innovative statistical methods to develop comprehensive profiles of excluded children, linking these profiles to the barriers that lead to exclusion, and identifying, promoting and implementing sound policies that address exclusion often from a multi-sectoral perspective. The manual aims to provide concise and powerful tools for achieving this goal. 

OOSCI studies are intended to stimulate policy changes and enable governments to target their strategies for reaching out-of-school children. By using a systematic approach to identifying out-of-school children and analysing the associated issues, the studies can guide education sector reforms that will help bring all children into school.

 

 

Cultural beliefs and practices that influence the type and nature of data collected on individuals with disability through national census

GROCE, Nora
March 2015

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Collection of data about disability in a census or survey context is influenced by the cultural context, particularly the beliefs and practices within the communities where the data are collected. Attitudes toward individuals with disability will influence what questions are asked, how such questions are framed, and how individuals in the community will respond to these questions. This article examines how culturally defined concepts of disability influence the development of questions on the topic, as well as helps determine who asks the questions and who answers the questions. These issues in turn influence how much data are collected and how accurate the data are. It also examines how ethnic diversity and poverty contribute to these questions. Recommendations for attention to these issues are made by census and survey.

Capturing the difference we make : community-based rehabilitation indicators manual

WORLD HEALTH ORGANIZATION (WHO)
2015

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This manual presents indicators that "capture the difference (Community-Based Rehabilitation) CBR makes in the lives of people with disabilities in the communities where it is implemented. This manual presents these (base and supplementary) indicators and provides simple guidance on collecting the data needed to inform them. The indicators have been developed to show the difference between people living with a disability and their families and those without disabilities in relation to the information reported in the indicators. This comparability provides valuable information to CBR managers, donors and government agencies alike, which can be used to guide decision-making, support advocacy and improve accountability. Further, the ability of the indicators to provide a comparison of the populations of persons with disability to persons without disability aligns with the United Nations Convention on the Rights of Persons with Disabilities (CRPD), which states that persons with disability have equal rights to those without disabilities...this manual serves to standardize the monitoring of differences made by in the lives of people with disabilities and their families, making it possible to compare the difference CBR makes across areas and countries. This manual aligns with the WHO Global Disability Action Plan 2014–2021, and may also be used to monitor other development plans in an easy and efficient way”

Operationalizing the 2030 agenda : ways forward to improve monitoring and evaluation of disability inclusion

UNITED NATIONS DEPARTMENT OF ECONOMIC AND SOCIAL AFFIARS (UNDESA)
2015

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This note concerns monitoring and evaluation of disability and inclusion in light of the sustainable development goals. The note identifies steps which can be taken by individual countries and the international community as a whole to address the gaps in data disaggregation and collection concerning people with disabilities. The note concludes with a discussion of possible ways forward for better monitoring and evaluation for disability inclusion in the 2030 Agenda for Sustainable Development

Disability disaggregation of data : baseline report

JOLLEY, Emma
THIVILLIER, Pauline
SMITH, Fred
December 2014

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“This baseline report contains information on the initial steps (prior to the start of data collection) undertaken to include disaggregation of data by disability in two projects in Tanzania and India. The report includes information on project selection, development of an Monitoring and Evaluation (M&E) plan, adaptation of data collection tools and training of Country Office staff, partners and data collectors. This baseline also captures the knowledge, attitudes and practices of programme managers, decision makers and data collectors around disability, the availability of data, and the experiences of Sightsavers’ implementing staff”

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The inclusion of persons with disabilities in financing for development

INTERNATIONAL DISABILITY AND DEVELOPMENT CONSORTIUM (IDDC)
INTERNATIONAL DISABILITY ALLIANCE (IDA)
December 2014

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This policy paper concerns the inclusion of persons with disabilities in financing for development. The paper presents a number of recommendations aimed at increasing inclusion in this area and provides detailed information on background information that leads to these recommendations

ESCAP Guide on Disability Indicators for the Incheon Strategy

UNITED NATIONS ECONOMIC AND SOCIAL COMMISSION FOR ASIA AND THE PACIFIC (ESCAP) SOCIAL DEVELOPMENT DIVISION
December 2014

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The Incheon Strategy to “Make the Right Real” for Persons with Disabilities in Asia and the Pacific provides the Asian and Pacific region, and the world, with the first set of regionally agreed disability-inclusive development goals. The Incheon Strategy goals cover a range of development areas from poverty reduction and employment to political participation, accessibility, social protection, education, gender equality, disaster risk reduction, data collection, CRPD ratification and international cooperation.

To ensure that the 10 goals are successfully met, the Strategy identifies 27 targets as well as 62 related indicators for monitoring and evaluating the implementation of the 10 goals. These targets and indicators are essential for developing practical implementation strategies, ensuring success and identifying areas where significant challenges remain. Goal 8 of the Incheon Strategy accords particular priority to data collection, calling for improvement of the reliability and comparability of disability data across countries in the region. Member States, in target 8B, have specifically committed to establishing a baseline with reliable statistics by the midpoint of the Asian and Pacific Decade of Persons with Disabilities in 2017, as a source of tracking progress towards the achievement of the Incheon Goals.

The ESCAP Guide on Disability Indicators for the Incheon Strategy aims to guide data collection and generation by ESCAP member States through providing them with relevant methodologies and tools to construct and use the 62 indicators of the Incheon Strategy, in order to monitor the achievement of the 10 disability-inclusive development goals.

A world that counts : mobilising the data revolution for sustainable development

UNITED NATIONS (UN) INDEPENDENT EXPERT ADVISORY GROUP ON A DATA REVOLUTION FOR SUSTAINABLE DEVELOPMENT (IEAG)
November 2014

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This report highlights two big global challenges for the current state of data: whole groups of people are not being counted and important aspects of people’s lives and environmental conditions are still not measured; and there are huge and growing inequalities in access to data and information, and in the ability to use it. The report makes specific recommendations on how to address these challenges, calling for a UN-led effort to mobilise the data revolution for sustainable development: fostering and promoting innovation to fill data gaps; mobilising resources to overcome inequalities between developed and developing countries and between data-poor and data-rich people; leadership and coordination to enable the data revolution to play its full role in the realisation of sustainable development

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