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Towards independent living: Collecting examples from Europe

ANGELOVA-MLADENOVA, Lilia
March 2019

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This Collection is a joint initiative of the European Network on Independent Living (ENIL) and the European Disability Forum (EDF). It features examples from different EU Member States, which to a different extent facilitate the right to live independently in the community.

The examples are divided into four areas, presented in different chapters:

  • Legislation and funding: State Funded Peer-Counselling – Estonia; Direct Payments – Ireland.
  • Community-based support: Peer-Counselling for women with disabilities – Austria; Supported living for adults with intellectual disabilities – Croatia; Supported Decision-Making – The Czech Republic; Mobile Mental Health Units – Greece; Personal Assistance for People with Complex Disabilities – Sweden .
  • Involvement of disabled people: Co-Production in Social Care – United Kingdom; Participation of Organisations of People with Disabilities – Italy
  • Self-advocacy: Self-Advocacy of Disabled People – Romania

 

Where there is no psychiatrist A mental health care manual

PATEL, Vikram
HANLON, Charlotte
March 2018

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This is a practical manual about mental health care, aimed at community health workers, primary care nurses, social workers and primary care doctors, particularly in low resource settings. It describes more than 30 clinical problems associated with mental illness, using a problem-solving approach to guide the reader through their assessment and management. It addresses the lack of understanding of mental health among many health workers. Mental health issues as they arise in specific contexts are described - in refugee camps, in school health programmes, as well as in mental health promotion. The final section helps the reader to personalise for a particular location, for example, by entering local information on voluntary agencies, the names and costs of medicines and words in the local language for symptoms.

 

This product is an update of the first edition 2003. It is also available as Open Access.

Report of the informal consultation on stopping discrimination and promotion inclusion of persons affected by Leprosy. New Delhi, 14–16 Nov 2017

COOREMAN, Erwin
WHO SEARO/Department of Control of Neglected Tropical Diseases
et al
2018

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An Informal Consultation on Stopping Discrimination and Promoting Inclusion of Persons Affected by Leprosy was held in New Delhi from 14 to 16 November 2017. Forty delegates with diverse backgrounds, experience and expertise enriched the discussions. Persons affected by leprosy brought to the table the challenges faced in daily life and suggested actions to be taken to reduce stigma and discrimination related to leprosy. Representatives of national programmes presented actions taken in their respective countries. The participants acknowledged the fact that stigma and discrimination related to leprosy still exists at a significant level. Information about stigma and discrimination related to leprosy needs to be collected in a more systematic manner to assess the magnitude of the problem and to further plan activities to reduce it.

Key recommendations from the consultation included counselling and reporting of incidences of discrimination. Efforts should be continued to inform facts about leprosy to the community.

The participants strongly recommended that leprosy programmes should adopt a ‘rights-based approach’ in line with the Sustainable Development Goals.

Human Rights

www.macao-tz.org
December 2014

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Malezi AIDS Care Awareness Organization (MACAO) is a non-profit organization reaching out to neglected Indigenous people in Ngorongoro District, Arusha Region of Northern Tanzania.  Macao founded in 2003, Macao is a humanitarian organization that provides assistance to approximately 200,000 Indigenous Maasai community in Ngorongoro district for addressing needs of water and sanitation, food security, health Care Research, Education, Research environment, Maasai Traditional Research, Human Rights and sustainable economic development by strengthening their livelihoods.  In addition to responding to major relief situations, MACAO focuses on long-term community development through over 4 Area Development Project. We welcome the donors and volunteers to join us in this programs, we are wolking in ruro villages.

Access to services for women with disabilities who experienced violence

MANDL, Sabine
et al
October 2014

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This final short report summary encompasses the main findings of the Daphne III project “Access to Specialised Victim Support Services for Women with Disabilities who have experienced Violence.” The project aimed to assess the range of different experiences of violence against disabled women and their use of support structures. In addition specialised victim support services were interviewed about their experiences and capabilities in terms of counselling and accommodating disabled women. The project focused on three components: (1) Assessing the legal and policy framework (2) Generating extensive empirical data by surveying disabled or Deaf women (focus group discussions, in-depth-interviews) and service providers (online survey, interviews with staff members) and (3) Developing good practice examples and recommendations. For each component national reports and an associated comparative report was prepared, identifying the most prominent issues including the commonalities and differences between the four countries issues.

 

Note: the main findings of the projects (including the final short report, recommendations for service providers and a brochure for disabled women) are available to access in easy language, sign language and audio files from the following link http://women-disabilities-violence.humanrights.at/publications

Guidelines to reduce stigma : guide 1|What is health-related stigma?

VAN BRAKEL, Wim
et al
2011

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"This guide is part of a series of four Guides to reduce stigma. The guides are for all managers, health and social workers and service staff who have to deal with stigma in leprosy and other health conditions. These Guides provide evidence-based and best-practice information from different disciplines, and recommendations for field workers on how to reduce stigma against and among affected persons and in the community. This first Guide provides basic information on stigma, its causes, manifestations, and effects"

Guidelines to reduce stigma : guide 2|How to assess health-related stigma

VOOREND, Carlijn
et al
2011

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"This guide is part of a series of four Guides to reduce stigma. The guides are for all managers, health and social workers and service staff who have to deal with stigma in leprosy and other health conditions. These Guides provide evidence-based and best-practice information from different disciplines, and recommendations for field workers on how to reduce stigma against and among affected persons and in the community...The second Guide describes when and how to assess stigma using qualitative and quantitative methods and instruments. It also explains how to use the instruments"

Guidelines to reduce stigma : guide 3|A roadmap to stigma reduction : an empowerment intervention

CROSS, Hugh
et al
2011

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"This guide is part of a series of four Guides to reduce stigma. The guides are for all managers, health and social workers and service staff who have to deal with stigma in leprosy and other health conditions. These Guides provide evidence-based and best-practice information from different disciplines, and recommendations for field workers on how to reduce stigma against and among affected persons and in the community...The third Guide provides recommendations on how to develop an approach for reducing stigma. Through the use of a roadmap, several steps are discussed for reducing stigma related to a particular health condition"

Guidelines to reduce stigma : guide 4|Counseling to reduce stigma

AUGUSTINE, Valsa
et al
2011

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"This guide is part of a series of four Guides to reduce stigma. The guides are for all managers, health and social workers and service staff who have to deal with stigma in leprosy and other health conditions. These Guides provide evidence-based and best-practice information from different disciplines, and recommendations for field workers on how to reduce stigma against and among affected persons and in the community...The fourth guide explains the use of counselling at a basic level in dealing with stigma. It provides an explanation on different techniques and approaches for counselling persons affected by stigma"

The balanced counseling strategy plus : a toolkit for family planning service providers working in high HIV/STI prevalence settings

POPULATION COUNCIL
2011

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"This "is an interactive, client-friendly approach for improving counseling on family planning and prevention, detection, and treatment of sexually transmitted infections (STIs) including HIV. The BCS+ was adapted from the Balanced Counseling Strategy, an evidence-based and well-researched tool for improving counseling on contraceptive methods. The BCS+ toolkit, developed and tested in Kenya and South Africa, provides the information and materials needed for health care facility providers to provide complete and high-quality family planning counseling to clients who live in areas with high rates of HIV and STIs.The BCS+ tools are generic and can be revised according to national and/or regional guidelines and different contexts
This second edition toolkit includes the following: * BCS+ Trainer’s Guide: Supervisors and others can use this to train health care facility directors and service providers on how to use the BCS+ for counseling family planning clients. * BCS+ User’s Guide: This guide focuses on how to implement the Balanced Counseling Strategy Plus. It can be distributed during training or used on its own with the BCS+ job aids. * BCS+ job aids comprising: - BCS+ algorithm that summarizes the 19 steps needed to implement the BCS+ during a family planning counseling session. These steps are organized into four stages: pre-choice, method choice, post-choice, and STI/HIV counseling. - BCS+ counseling cards that the provider uses during a counseling session. There are 26 counseling cards, the first of which contains six questions that the service provider asks to rule out the possibility a client is pregnant. Each of the next 16 cards contains information about a different family planning method. The next 3 cards provide advice on pregnancy and the postpartum period. The last 6 cards provide essential information for counseling on preventing, detecting, and treating STIs and HIV. - BCS+ method brochures on each of the 16 methods represented by the counseling cards. The brochures provide counseling to clients on the method they have chosen and then are given to clients for later reference. This means clients do not have to rely on their recollection of what was discussed with the provider. - WHO Medical Eligibility Criteria Wheel (offsite link) guides providers through medical conditions and medications that may be contraindications to use of particular contraceptive methods. The BCS+ tools are generic and can be revised according to national and/or regional guidelines and different contexts"
A video describing use of the BCS+ toolkit in South Africa also is available. To obtain Microsoft Word versions of BCS+ files to modify or revise according to your local setting, please contact the publisher

HEARD’s disability and HIV library

HEALTH ECONOMICS AND HIV/AIDS RESEARCH DIVISION (HEARD)
June 2010

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This bibliography contains papers, reports and articles relating to the issue of HIV and AIDS and disability. "These papers reveal findings in relation to the impact of HIV/AIDS on people with disabilities, the disabling effects of HIV/AIDS, sexuality and disability, the attitude and stigma towards disability and interventions in different countries"

Psychosocial counselling and social work with clients and their families in the Somali context : a facilitator’s guide

OFFICE OF THE HIGH COMMISSIONER FOR HUMAN RIGHTS (UNHCR)
November 2009

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This handbook is "designed to be used as training support handbook for helping professionals in the Somali context. The focus is on psychosocial needs for the rehabilitation of persons with trauma, mental health related forms of distress and those who have experienced gender based violence and gender related abuses. The guidelines, developed within a UNHCR funded programme in Somalia, are intended to assist staffs, who are concerned with providing protection and assistance to refugees and IDP"

Community based HIV testing and HIV treatment as prevention

FREEMAN, Nell
June 2009

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"This Update explores community based HIV testing and counselling and the issues of using antiretroviral (ARV) treatment as prevention. "A ...WHO paper published in the Lancet [in 2009] explored, using mathematical modelling on the possible effects of wide uptake of HIV testing and immediate treatment for all those identified as HIV positive. This in some circles is called the ‘test and treat approach’ - that is population coverage of HIV testing and immediate treatment in order to reduce the incidence of HIV at a population level. "This update highlights two main areas: models of community based HIV testing exploring the evidence of what can work at large scale, and the mathematical modelling of treatment as prevention. "This update is informed by recent WHO discussions on these two areas"

A handbook for network support agents and other community workers supporting HIV prevention, care, support and treatment

March 2009

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This manual is intended to help network support agents and other community workers be more effective in disseminating standardised information about HIV and AIDS. It "...emphasises the importance of the acquisition of knowledge, skills and the right attitude needed to identify the psychosocial needs of people of people infected and affected by HIV/AIDS and address these needs by giving information, counselling and appropriate referrals. Knowledge of counselling and psychosocial care, is combined as much as possible with prevention activities such as adopting HIV basic care positive prevention and adherence to treatment"

Preventing HIV/AIDS among persons with disabilities : a handbook for policy makers, healthcare providers and care givers of people with disabilities

IVOM, Damian O
2009

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This handbook highlights the factors responsible for the spread of HIV, methods of preventing it within persons with disabilities and how they can be reached and integrated into HIV and AIDS programmes and activities, so as to cause a reduction within its communities and in the general population. It is premised on the fact that many programmes and activities on HIV and AIDS in developing countries especially Sub-Saharan Africa have not realised the need to include persons with disabilities

Integrating gender into HIV/AIDS programmes in the health sector : tool to improve responsiveness to women’s needs

AMIN, Avni
et al
2009

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The purpose of this operational tool is to: raise awareness of how gender inequalities affect women’s access to and experience of HIV and AIDS programmes and services; and offer practical actions on how to address or integrate gender into specific types of HIV and AIDS programmes and services. The vulnerability of women, their risk of HIV infection and the impact of the epidemic on them are heightened by many factors, including: the low status accorded to women in many societies, their lack of rights, their lack of access to and control over economic resources, the violence perpetrated against them, the norms related to women’s sexuality, and women’s lack of access to information about HIV. This tool is primary aimed at primarily programme managers and health-care providers involved in setting up, implementing or evaluating HIV and AIDS programmes

Improving the education response to HIV and AIDS : Lessons of partner efforts in coordination, harmonisation, alignment, information sharing and monitoring in Jamaica, Kenya, Thailand and Zambia

VISSER-VALFREY, Muriel
March 2008

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This report presents the overall findings from case study exercises carried out in Jamaica, Kenya, Thailand and Zambia to examine the quality, effectiveness and coordination of the education sector's response to the HIV epidemic. The report also makes recommendations for improving coordination across agencies in support of country-level and global actions. The case studies were carried out by the UNAIDS Inter-Agency Task Team on Education

HIV/AIDS in Haiti : key findings of the mortality, morbidity, and utilization of services survey : EMMUS-iv 2005-2006

MEASURE DHS (Demographic Health Surveys)
2008

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This report presents survey findings on HIV prevalence in Haiti and other related results, including knowledge of HIV and AIDS, attitudes toward people living with HIV, and sexual behaviour. The survey was undertaken by the Mortality, Morbidity, and Utilization of Services Assessment Survey (EMMUS-IV) [Enquête Mortalité, Morbidité et Utilisation des Services] conducted between October 2005 and June 2006. The French version of this report follows the English version

Theory to practice cards and checklists

REPSSI
2008

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This is an introduction to the theory behind using picture cards as an educational and sensitisation tool with children affected by HIV and AIDS. It offers a detailed introduction to, and practical examples of, communicating with children and providing psychosocial support. The activities are set out clearly and are easy to follow and implement

Supporting orphans and other vulnerable children through communication and basic counselling : a reference guide for service providers

MINISTRY OF GENDER LABOUR AND SOCIAL DEVELOPMENT
2008

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"This guide has been written as a reference resource for non-professional counsellors and staff working with orphans and vulnerable children (OVC) who need to know how to provide some basic counselling as part of psychosocial support for the children in their care or through their projects. This guide does not diminish the need for formal training and additional professional support, but aims to provide information and guidance which can be used with other resources. The guide aims to: * strengthen the capacity of service providers to address the individual and collective psychosocial needs of children and young people; * provide an easy to use two-in-one guide and reference material for child counsellors; * promote the personal and professional development of counsellors and other staff working with children and young people, and * help service providers to assess and deal with challenges in working with orphans and other vulnerable children"

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