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Towards independent living: Collecting examples from Europe

ANGELOVA-MLADENOVA, Lilia
March 2019

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This Collection is a joint initiative of the European Network on Independent Living (ENIL) and the European Disability Forum (EDF). It features examples from different EU Member States, which to a different extent facilitate the right to live independently in the community.

The examples are divided into four areas, presented in different chapters:

  • Legislation and funding: State Funded Peer-Counselling – Estonia; Direct Payments – Ireland.
  • Community-based support: Peer-Counselling for women with disabilities – Austria; Supported living for adults with intellectual disabilities – Croatia; Supported Decision-Making – The Czech Republic; Mobile Mental Health Units – Greece; Personal Assistance for People with Complex Disabilities – Sweden .
  • Involvement of disabled people: Co-Production in Social Care – United Kingdom; Participation of Organisations of People with Disabilities – Italy
  • Self-advocacy: Self-Advocacy of Disabled People – Romania

 

Where there is no psychiatrist A mental health care manual

PATEL, Vikram
HANLON, Charlotte
March 2018

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This is a practical manual about mental health care, aimed at community health workers, primary care nurses, social workers and primary care doctors, particularly in low resource settings. It describes more than 30 clinical problems associated with mental illness, using a problem-solving approach to guide the reader through their assessment and management. It addresses the lack of understanding of mental health among many health workers. Mental health issues as they arise in specific contexts are described - in refugee camps, in school health programmes, as well as in mental health promotion. The final section helps the reader to personalise for a particular location, for example, by entering local information on voluntary agencies, the names and costs of medicines and words in the local language for symptoms.

 

This product is an update of the first edition 2003. It is also available as Open Access.

Report of the informal consultation on stopping discrimination and promotion inclusion of persons affected by Leprosy. New Delhi, 14–16 Nov 2017

COOREMAN, Erwin
WHO SEARO/Department of Control of Neglected Tropical Diseases
et al
2018

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An Informal Consultation on Stopping Discrimination and Promoting Inclusion of Persons Affected by Leprosy was held in New Delhi from 14 to 16 November 2017. Forty delegates with diverse backgrounds, experience and expertise enriched the discussions. Persons affected by leprosy brought to the table the challenges faced in daily life and suggested actions to be taken to reduce stigma and discrimination related to leprosy. Representatives of national programmes presented actions taken in their respective countries. The participants acknowledged the fact that stigma and discrimination related to leprosy still exists at a significant level. Information about stigma and discrimination related to leprosy needs to be collected in a more systematic manner to assess the magnitude of the problem and to further plan activities to reduce it.

Key recommendations from the consultation included counselling and reporting of incidences of discrimination. Efforts should be continued to inform facts about leprosy to the community.

The participants strongly recommended that leprosy programmes should adopt a ‘rights-based approach’ in line with the Sustainable Development Goals.

Human Rights

www.macao-tz.org
December 2014

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Malezi AIDS Care Awareness Organization (MACAO) is a non-profit organization reaching out to neglected Indigenous people in Ngorongoro District, Arusha Region of Northern Tanzania.  Macao founded in 2003, Macao is a humanitarian organization that provides assistance to approximately 200,000 Indigenous Maasai community in Ngorongoro district for addressing needs of water and sanitation, food security, health Care Research, Education, Research environment, Maasai Traditional Research, Human Rights and sustainable economic development by strengthening their livelihoods.  In addition to responding to major relief situations, MACAO focuses on long-term community development through over 4 Area Development Project. We welcome the donors and volunteers to join us in this programs, we are wolking in ruro villages.

Access to services for women with disabilities who experienced violence

MANDL, Sabine
et al
October 2014

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This final short report summary encompasses the main findings of the Daphne III project “Access to Specialised Victim Support Services for Women with Disabilities who have experienced Violence.” The project aimed to assess the range of different experiences of violence against disabled women and their use of support structures. In addition specialised victim support services were interviewed about their experiences and capabilities in terms of counselling and accommodating disabled women. The project focused on three components: (1) Assessing the legal and policy framework (2) Generating extensive empirical data by surveying disabled or Deaf women (focus group discussions, in-depth-interviews) and service providers (online survey, interviews with staff members) and (3) Developing good practice examples and recommendations. For each component national reports and an associated comparative report was prepared, identifying the most prominent issues including the commonalities and differences between the four countries issues.

 

Note: the main findings of the projects (including the final short report, recommendations for service providers and a brochure for disabled women) are available to access in easy language, sign language and audio files from the following link http://women-disabilities-violence.humanrights.at/publications

Guidelines to reduce stigma : guide 2|How to assess health-related stigma

VOOREND, Carlijn
et al
2011

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"This guide is part of a series of four Guides to reduce stigma. The guides are for all managers, health and social workers and service staff who have to deal with stigma in leprosy and other health conditions. These Guides provide evidence-based and best-practice information from different disciplines, and recommendations for field workers on how to reduce stigma against and among affected persons and in the community...The second Guide describes when and how to assess stigma using qualitative and quantitative methods and instruments. It also explains how to use the instruments"

Guidelines to reduce stigma : guide 3|A roadmap to stigma reduction : an empowerment intervention

CROSS, Hugh
et al
2011

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"This guide is part of a series of four Guides to reduce stigma. The guides are for all managers, health and social workers and service staff who have to deal with stigma in leprosy and other health conditions. These Guides provide evidence-based and best-practice information from different disciplines, and recommendations for field workers on how to reduce stigma against and among affected persons and in the community...The third Guide provides recommendations on how to develop an approach for reducing stigma. Through the use of a roadmap, several steps are discussed for reducing stigma related to a particular health condition"

Guidelines to reduce stigma : guide 4|Counseling to reduce stigma

AUGUSTINE, Valsa
et al
2011

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"This guide is part of a series of four Guides to reduce stigma. The guides are for all managers, health and social workers and service staff who have to deal with stigma in leprosy and other health conditions. These Guides provide evidence-based and best-practice information from different disciplines, and recommendations for field workers on how to reduce stigma against and among affected persons and in the community...The fourth guide explains the use of counselling at a basic level in dealing with stigma. It provides an explanation on different techniques and approaches for counselling persons affected by stigma"

Psychosocial counselling and social work with clients and their families in the Somali context : a facilitator’s guide

OFFICE OF THE HIGH COMMISSIONER FOR HUMAN RIGHTS (UNHCR)
November 2009

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This handbook is "designed to be used as training support handbook for helping professionals in the Somali context. The focus is on psychosocial needs for the rehabilitation of persons with trauma, mental health related forms of distress and those who have experienced gender based violence and gender related abuses. The guidelines, developed within a UNHCR funded programme in Somalia, are intended to assist staffs, who are concerned with providing protection and assistance to refugees and IDP"

Preventing HIV/AIDS among persons with disabilities : a handbook for policy makers, healthcare providers and care givers of people with disabilities

IVOM, Damian O
2009

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This handbook highlights the factors responsible for the spread of HIV, methods of preventing it within persons with disabilities and how they can be reached and integrated into HIV and AIDS programmes and activities, so as to cause a reduction within its communities and in the general population. It is premised on the fact that many programmes and activities on HIV and AIDS in developing countries especially Sub-Saharan Africa have not realised the need to include persons with disabilities

Integrating gender into HIV/AIDS programmes in the health sector : tool to improve responsiveness to women’s needs

AMIN, Avni
et al
2009

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The purpose of this operational tool is to: raise awareness of how gender inequalities affect women’s access to and experience of HIV and AIDS programmes and services; and offer practical actions on how to address or integrate gender into specific types of HIV and AIDS programmes and services. The vulnerability of women, their risk of HIV infection and the impact of the epidemic on them are heightened by many factors, including: the low status accorded to women in many societies, their lack of rights, their lack of access to and control over economic resources, the violence perpetrated against them, the norms related to women’s sexuality, and women’s lack of access to information about HIV. This tool is primary aimed at primarily programme managers and health-care providers involved in setting up, implementing or evaluating HIV and AIDS programmes

Improving the education response to HIV and AIDS : Lessons of partner efforts in coordination, harmonisation, alignment, information sharing and monitoring in Jamaica, Kenya, Thailand and Zambia

VISSER-VALFREY, Muriel
March 2008

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This report presents the overall findings from case study exercises carried out in Jamaica, Kenya, Thailand and Zambia to examine the quality, effectiveness and coordination of the education sector's response to the HIV epidemic. The report also makes recommendations for improving coordination across agencies in support of country-level and global actions. The case studies were carried out by the UNAIDS Inter-Agency Task Team on Education

HIV/AIDS in Haiti : key findings of the mortality, morbidity, and utilization of services survey : EMMUS-iv 2005-2006

MEASURE DHS (Demographic Health Surveys)
2008

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This report presents survey findings on HIV prevalence in Haiti and other related results, including knowledge of HIV and AIDS, attitudes toward people living with HIV, and sexual behaviour. The survey was undertaken by the Mortality, Morbidity, and Utilization of Services Assessment Survey (EMMUS-IV) [Enquête Mortalité, Morbidité et Utilisation des Services] conducted between October 2005 and June 2006. The French version of this report follows the English version

Towards universal access : scaling up priority HIV/AIDS interventions in the health sector : progress report 2008

WORLD HEALTH ORGNAIZATION (WHO)
JOINT UNITED NATIONS PROGRAMME ON HIV/AIDS (UNAIDS)
UNITED NATIONS CHILDREN'S FUND (UNICEF)
2008

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This report provides in-depth information on: treatment and care for people living with HIV; HIV testing and counselling; health sector interventions for HIV prevention; scaling up HIV services for women and children; strengthening health systems and health information; and towards universal access as the way forward

Theory to practice cards and checklists

REPSSI
2008

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This is an introduction to the theory behind using picture cards as an educational and sensitisation tool with children affected by HIV and AIDS. It offers a detailed introduction to, and practical examples of, communicating with children and providing psychosocial support. The activities are set out clearly and are easy to follow and implement

Operational guide for implementation of IICCHAA project

INDIAN INITIATIVE OF CHILD CENTRED HIV & AIDS APPROACH (IICCHAA)
2008

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This operational guide provides a broad direction for implementing memory work in India in the field, based on a communication needs assessment carried out as part of the Indian Initiative for Child Centred Approaches to HIV & AIDS (IICCHAA). The guide is divided into two sections: how to roll out the training effectively at field level and some basic information about HIV and AIDS

Let's talk about HIV counselling and testing : facilitators' guide

International HIV/AIDS Alliance
December 2006

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This is a toolkit to help NGOs and community-based organisations working to mobilise communities to improve their awareness of HIV counselling and testing and to improve the up-take of HIV counselling and testing; advocating for increased access to quality HIV counselling, testing, care, treatment and prevention; or interested in providing HIV counselling and testing services. It is divided into eight sections: What is HIV and what is AIDS?; what is involved in HIV counselling and testing; who is providing these services in the community and who they are for; the advantages and barriers of counselling and testing; stigma, discrimination and confidentiality; the needs of people after being tested and ideas for community activities. Each section has an accompanying information sheet

Where the heart is : meeting the psychosocial needs of young children in the context of HIV/AIDS

RICHTER, Linda
FOSTER, Geoff
SHERR, Lorraine
July 2006

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[Publisher's abstract]: An output of a series of workshops on psychosocial support held in 2004-2005 by the Bernard van Leer Foundation and the Coalition on Children Affected by AIDS. Authors Linda Richter, Geoff Foster and Lorraine Sherr discuss the issues surrounding psychosocial care and support for children made vulnerable by the HIV/AIDS pandemic and make recommendations for future priorities and programming directions. Includes the "Call To Action" for Toronto 2006

Healthy babies, happy mothers : prevention of mother-to-child transmission of HIV (PMTCT). Training manual

CAMEROON BAPTIST CONVENTION HEALTH BOARD
May 2006

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This is a comprehensive manual on prevention of mother to child transmission of HIV. It is designed to help meet the needs of both the mother and the child in all critical stages of maternity and perinatal care. Places a great emphasis on psychological support and counselling, to enable HIV-positive mothers to make informed decisions and healthy choices. Include an overview of key mother-to-child transmission issues. Topics discussed also include: basic principles of HIV counseling; voluntary counseling and testing; confidentiality; instructions for nevirapine treatment of HIV-infected mothers and for HIV-infected mothers during antenatal, labor, delivery, and postnatal periods; counseling and support for safer infant feeding; follow-up and care of an infant born to an HIV-positive mother; follow-up and care of an HIV-positive mother; PMTCT support groups; laboratory HIV testing; universal precautions; PMTCT programme supervision and monitoring; reporting and management information system (MIS). This training manual is intended as a tool for health care workers who desire to know more about HIV and to help train counsellors who work in PMTCT centers

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