Recommendations for governments and institutions to be better equipped to support people with psychosocial disabilities.
This new Making It Work report presents 9 good practices successfully addressing the prevention and response to violence and discrimination against women and girls with disabilities in Africa. It also contains key advocacy recommendations that can be used for disability and/or gender advocates in order to further promote the rights of women and girls with disabilities.
The practices were:
- Gender-Based Violence prevention through a grassroots initiative led by women with disabilities (Rwanda)
- Protecting urban refugee women and girls with disabilities from abuse and discrimination in Kenya
- Advancing the access of deafblind women and girls to Sexual and Reproductive Health (Malawi)
- Enhancing access to justice for GenderBased Violence survivors with intellectual challenges through integrated legal and psychosocial support service provision (Kenya)
- Developing knowledge and empowerment through the Gender and Disability Inclusive Development Community of Practice (Cameroon)
- Promoting a safer, Gender-Based Violence free environment for women and girls with disabilities in Lilongwe, Malawi
- Restoring the dignity of women and girls with disabilities in the Plateau State of Nigeria
- Forging a district community where women and girls with disabilities live dignified and empowered lives (Uganda)
- Emerging Practice: Fostering peace and respect by bringing women and girls with disabilities concerns into a women’s organization (Kenya)
This reports looks at the main barriers to the realisation of disabled people’s right to live independently and be included in the community, which is set out in Article 19 of the UN Convention on the Rights of Persons with Disabilities (CRPD). They are grouped in seven broad areas: (1) misunderstanding and misuse of key terms, (2) negative attitudes and stigma, (3) lack of support for families, (4) prevalence of institutional services, (5) barriers related to community support services, (6) barriers in mainstream services and facilities, and (7) barriers, concerning other CRPD provisions, with effect on Article 19. A set of recommendations is also provided, outlining measures required to address these barriers.
The recommendations in this report – presented below - were shared with the UN Committee on the Rights of Persons with Disabilities when they were drafting the General Comment on Article 19. They can be used by governments and civil society organisations, alongside the General Comment, to identify actions needed to implement Article 191 CRPD.
This toolkit is intended primarily for use by CSO's at the community level in India for use with field workers and local governments for challenging stigma and discrimination against people affected by leprosy/disabilities. The toolkit uses simple activities and pictures and is based on a participatory approach which requires active involvement of the group being trained. There are 6 modules:
What is leprosy
What is stigma
How we stigmatise others
How it feels to be stigmatised
Understanding human rights
Action towards inclusion
There are 10 appendices providing supporting information for the toolkit
This book offers concrete ideas and examples to those interested in driving a radically different approach to supporting people with dementia and their families. "We have explored a number of approaches with people who have been leading their development. We have been keen to look at both approaches that emerge from working directly to improve support for people with dementia and others that have different roots, but we think are potentially very transferable. None of the approaches is yet being used at any significant scale". Discussions and examples are all UK based. There is an introduction detailing current problems and issues with care and support for people with dementia. 10 approaches are described for housing and support, 4 concerned with enabling people to have good days and 7 associated with enabling people to connect with their community.
This short video by film-maker Tomislav Zaja chronicles the stories of persons with disabilities in Croatia and Romania and their testimonies about institutional care and independent living in the community. The supporting article by Judith Klein, Director of the Mental Health Initiative at the Open Society Foundations, gives further background to the fight for the right to independent living in the community for and by persons with disabilities, and refers to a petition submitted to the European Union by the Open Society Mental Health Initiative. This video will be useful to anyone working particularly on social inclusion issues in eastern Europe
"This evaluation reports on how well the United Nations High Commission for Refugees considers and provides for the well-being and mental health of persons of concern to the agency. Through a survey of UNHCR field staff, extensive literature and policy review, and key informant interviews with MHPSS experts from academic institutions, international agencies and non-governmental organizations, this review provides insight into how UNHCR’s current activities contribute towards improved mental health and psychosocial well-being of displaced persons and how UNHCR’s current policy frameworks relate to established practices and frameworks in the MHPSS field"
This report presents the perspective of people with intellectual disabilities and their families on living and being included in the community. The study shares experiences of inclusion in the community, of exclusion and isolation from the community and the impact that these experiences have had on the lives of people with intellectual disabilities and their families. It details findings on the experience of exclusion and isolation, the progress made since the implementation of the CRPD, and what the new and emerging challenges are that threaten inclusion. The report also outlines a vision of inclusion and makes recommendations for directions for the future. This comprehensive report will be useful to those studying and working with disability issues, inclusion in particular
“This report was written on behalf of the Open Society Mental Health Initiative (MHI) to consider the role of European Union (EU) funds, known as “Structural Funds,” in promoting the right of people with disabilities to live and participate in the community as equal citizens. It focuses on whether the use of Structural Funds by some EU Member States in Central and Eastern Europe (CEE) to build new, or renovate existing, long-stay institutions for people with disabilities, rather than develop alternative services that promote community living, is contrary to EU law.” A comprehensive report that will be of use to disabled people’s organisations and NGOs, particularly those working on social inclusion issues in eastern Europe
“The purpose of this Study is to explore and set out the minimum conditions necessary to achieve the positive potential of the European Union Structural Funds in enabling Member States and the European Union to implement the UN Convention on the Rights of Persons with Disabilities, particularly the right to live independently and be included in the community. Not only is this a key right in the Convention but it is also an area where the Structural Funds can generate clear added value.” This report will be useful to anyone working particularly on social inclusion issues in eastern Europe
This resource outlines ten myths in relation to mental health and psychosocial support for conflict related sexual violence and presents relevant factual information
This resource outlines principles and interventions in relation to mental health and psychosocial support for conflict-related sexual violence
"Responding to the psychosocial and mental health needs of sexual violence survivors in conflict-affected Settings"
28-30 November 2011
"This document promotes good practices and intends to reduce harmful practices by community-based psychosocial programmes that address sexual violence in conflict settings"
"Leprosy-related disability is a challenge to public health, and social and rehabilitation services in endemic countries. Disability is more than a mere physical dysfunction, and includes activity limitations, stigma, discrimination, and social participation restrictions." This paper assesses the extent of disability and its determinants among persons with leprosy-related disabilities after release from multi drug treatment
Global Health Action, Vol 5
"This report investigates current research on community attitudes towards people with disability. It was an initial step towards building an evidence base on Australian community attitudes to people with disability, on the impact of these attitudes, on outcomes for people with disability, and on effective policies for improving community attitudes towards them"
Occasional Paper #39
Note: Available in pdf and word formats
"This guide is part of a series of four Guides to reduce stigma. The guides are for all managers, health and social workers and service staff who have to deal with stigma in leprosy and other health conditions. These Guides provide evidence-based and best-practice information from different disciplines, and recommendations for field workers on how to reduce stigma against and among affected persons and in the community...The third Guide provides recommendations on how to develop an approach for reducing stigma. Through the use of a roadmap, several steps are discussed for reducing stigma related to a particular health condition"
This is an assessment of the state of the HIV epidemic in Asia, with recommendations for creating an effective response to it
"The book is aimed at providing information and ideas to help build stronger more sustainable [civil society organisations] CSOs and [community-based organisations] CBOs, in order to tackle the issues related to child-headed households and violence... Its objectives are to: * Strengthen the protection and care of vulnerable children through human rights education relating to social justice issues; * Enable users of this book to develop an understanding and respect for vulnerable children’s rights and responsibilities as citizens; * Enable CSOs and CBOs to challenge and develop action plans and to develop policies to advocate change locally; and * Emphasise the holistic support of children within a rights-based model of support. This model focuses on the whole child and promotes the effective realisation of their rights"
This manual is a guide for community-based organisations to facilitate a community-led and -owned process that addresses stigma and gender-based violence in HIV & AIDS prevention efforts. It is based on findings from the Stigma and Violence Reduction Intervention (SVRI) project, conducted in Andhra Pradesh, India from 2003 to 2005. It is divided into sections: a discussion of three tools that can be used in participatory development projects (participatory learning and action, community-led action research (CLAR) and transformatory workshops); a general guide for implementing community-led action research; a description of the CLAR process among the key populations of the SVRI project and the plans of action that they developed based on this process; the challenges and lessons learned in implementing a community-owned process to address stigma and gender-based violence, and some conclusions. Appendices provide a sample toolkit with a series of workshops designed for the populations who participated in the SVRI project. Although designed specifically for this project, the activities and format could be adapted for use by similar projects working with other populations or in other countries
This document recognises that psychosocial support for children affected by HIV and AIDS is as important as responding to their material needs. It explores children's experience of loss and grief, and suggests ways to deal with aggressive behaviour and to overcome stigma and discrimination. Some of the topics discussed are accompanied by useful handouts. It is designed as a training tool for professionals working directly with children or in community building projects
Source e-bulletin on Disability and Inclusion