This book offers concrete ideas and examples to those interested in driving a radically different approach to supporting people with dementia and their families. "We have explored a number of approaches with people who have been leading their development. We have been keen to look at both approaches that emerge from working directly to improve support for people with dementia and others that have different roots, but we think are potentially very transferable. None of the approaches is yet being used at any significant scale". Discussions and examples are all UK based. There is an introduction detailing current problems and issues with care and support for people with dementia. 10 approaches are described for housing and support, 4 concerned with enabling people to have good days and 7 associated with enabling people to connect with their community.
This document presents a learning-from-experience "capitalisation’’ process on Handicap International’s epilepsy project in Rwanda. It includes 4 parts: (1) Principles & Benchmarks which sets the framework including main concepts, definitions and intervention context (2) Intervention methods which detail the main activities monitoring the project and its tools (3) Focus which presents the community-based approach and provides a deeper look into the know-how and good practices developed through this approach (4) Results which provides the limitations and recommendations found during the capitalisation process to different stakeholders
This brief provides a summary of the learning-from-experience process on Handicap International's project "Promoting access to medical care, ensuring the school, social, family and community integration of epileptic people in Rwanda." Strategy and intervention methods are highlighted along with the community-based approach
Brief SD/LL 04
This report documents the exchange of knowledge from a disabling disease seminar focusing upon diabetes, lymphatic filariasis and buruli ulcer. A comprehensive and integrated approach is emphasised, highlighting integrated chronic wound management and lymphoedema care at the community level This resource would be of interest to development practitioners interested in management of disabling diseases
Disabling Diseases Seminar
7-11 December 2009
This analysis paper presents the ‘know-how’ acquired by Handicap International in its diabetes prevention and control projects. It provides six practical know-how analysis sections focusing upon stakeholder mobilisation, services in communities, the decentralisation of diabetes care, diabetes clubs for persons with diabetes, supporting associations of persons with diabetes and conducting a study on a disabling disease project. This report would be useful to anyone interested in diabetes prevention and control in developing countries
Basicneeds is an organization which aims to reach people with mental illness and epilepsy, to improve their health, financial well-being, and social acceptance. BasicNeeds provides treatment, training and promoted capacity building. This annual report presents BasicNeeds actions in 2009, highlighting their experiences in India, Sri Lanka, Lao PDR, Ghana, Uganda, Kenya, Tanzania, and Nepal
This article "reviews interventions that affect maternal and child undernutrition and nutrition-related outcomes. These interventions included promotion of breastfeeding; strategies to promote complementary feeding, with or without provision of food supplements; micronutrient interventions; general supportive strategies to improve family and community nutrition; and reduction of disease burden (promotion of handwashing and strategies to reduce the burden of malaria in pregnancy). (The authors) showed that although strategies for breastfeeding promotion have a large effect on survival, their effect on stunting is small"
The Lancet, Vol 371, Issue 9610
Hydrocephalus and spina bifida are life threatening conditions that often result in severe dsabilities. Risks are much reduced by immediate surgery and careful managment, but neither has been available for most of the sub-Saharan African population. This paper traces the growth of solutions and some socio-cultural resources that historically have supported family and community care for children with severe disabilities, mainly in Tanzania, and nearby countries. Some community-based rehabilitation (CBR) work with children with spina bifida and hydrocephalus is described, and challenges to the CBR approach are noted from the increased survival of people with disabilities requiring complex care. More appropriate information, recognition of indigenous knowledge, enlistment of community resources and financial assistance are needed to enhance the lives of East Africans with hydrocephalus, spina bifida and other severely disabling conditions
A morning in the poorer parts of Dar es Salaam is described, during which Mama Kitenge visits families with children having mental and other disabilities and works with these children and their caregivers
This manual explains the types, signs and causes of spina bifida and hydrocephalus describing how to assess the child’s level of development and complications. It gives suggestions on how to promote the child’s normal development, mobility, self-care and education with examples of equipment that can be made from local materials
Source e-bulletin on Disability and Inclusion