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Global Disability Summit - Civil Society Consultations 2020

INTERNATIONAL DISABILITY ALLIANCE (IDA)
February 2021

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In December 2020, IDA coordinated with local and regional partners 4 (four) GDS consultations involving persons with disabilities in Africa, Latin America and Asia. These were the beginning of a series of more than 20 workshops that IDA is planning with partner organizations in different parts of the world, to assess progress made against national commitments adopted in 2018, discuss thematic priorities, and plan events, discussions and training for the run-up to the main GDS event in Oslo.

In total, consultations have been carried in 15 countries with more than 100 participants, reaching 5 (five) underrepresented groups: persons with intellectual & psychosocial disabilities, indigenous persons with disabilities, youth, and women

Social media and disability advocacy organizations: caught between hopes and realities

GELFGREN, Stefan
INELAND, Jens
COCQ, Coppélie
2021

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This article examines the role of advocacy organizations and their use of social media within the field of disability in Sweden. How do the organizations negotiate digital media, and what are the (intentional or unintentional) consequences related to the use of social media? With focus on the representatives of advocacy organizations, we study how they reflect and act in order to balance various motives, and what challenges and ambiguities that arise. On one hand, there is a perceived need to be online and communicate with members and the surrounding society. On the other hand, digital communication induces a divide between those who have the resources to take part in such communication, and those who do not – in terms of digital competence, economy, age, cognitive abilities, technical equipment and digital connection. The heterogeneity of resources and target groups inevitably challenges both the ideals of inclusion and intentions of advocacy organizations.

How can innovative partnerships make data stronger and more inclusive?

WELLS, Claudia
SABITI, Bernard
CARANZA TRESOLDI, Javier
October 2020

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Development Initiatives (DI) Director of Data Use Claudia Wells, Senior Strategic Partnerships & Engagement Manager Bernard Sabiti and Founder and Director of the GeoCensos Foundation Javier Carranza Tresoldi explore the power of partnerships to improve data. Looking at the benefits, challenges and nuances of collaboration between all kinds of actors, they share case studies of what works and practical advice to build strong partnerships. 

Guidance note #2 Inclusive Governance and the “aftermath” of the Covid-19 pandemic

Bull
Goupil-Barbier
Holmes
June 2020

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While the first guidance note by the inclusive governance unit focuses primarily on the moment of the outbreak and emergency responses, this note anticipates to examine conditions of governance after the outbreak and how HI interventions could look like to further mitigate or event prevent negative effects of the outbreak. It is already clear that the long-term socio-economic impacts will affect persons with disabilities disproportionately, so proactivity is necessary as from now. It aims to enable global reflection while respecting that situations differ according to the national context of an HI country of intervention

Leaving No One Behind: A Nordic movement for change

Kroglund, Andrew
January 2019

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This report assesses the policies of the Nordic country governments on international disability issues following the Global Disability Summit in London, July 2018. The SDGs requirement for new focus on inclusion is highlighted and the report aims to strengthen the cooperation between civil society organisations and government in order to fulfill the ambitious 2030 agenda

MAANASI - A sustained, innovative, integrated mental healthcare model in South India

JAYARAM, Geetha
GOUD, Ramakrishna
CHANDRAN, Souhas
PRADEEP, Johnson
2019

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Studies in low and middle-income countries (LMICs) point to a significant association of common mental disorders with female gender, low education, and poverty. Depression and anxiety are frequently complicated by lack of disease awareness and non-adherence, the absence of care and provider resources, low value given to mental health by policy-makers, stigma, and discrimination towards the mentally ill. This paper aims to show that female village leaders/ community health and outreach workers (CHWs) can be used to overcome the lack of psychiatric resources for treatment of common mental disorders in rural areas.

A multidisciplinary team was set up to evaluate and treat potential clients in the villages. A program of care delivery was planned, developed and implemented by: (a) targeting indigent women in the region; (b) integrating mental health care with primary care; (c) making care affordable and accessible by training local women as CHWs with ongoing continued supervision; and (d) sustaining the program long-term.   Indigenous CHWs served as a link between the centre and the community. They received hands-on training, ongoing supervision, and an abridged but focused training module to identify common mental disorders, help treatment compliance, networking, illness literacy and community support by outreach workers. They used assessment tools translated into the local language, and conducted focus groups and client training programs. 

As a result, mental healthcare was provided to clients from as many as 150 villages in South India. Currently the services are utilized on a regular basis by about 50 villages around the central project site. The current active caseload of registered clients is 1930.  Empowerment of treated clients is the final outcome, assisting them in self-employment. 

Rural mental healthcare must be culturally congruent, and must integrate primary care and local CHWs for success. Training, supervision, ongoing teaching of CHWs, on-site resident medical officers, research and outreach are essential to continued success over two decades.

 

Disability, CBR & Inclusive Development, [S.l.], v. 30, n. 2, p. 104-113, Oct. 2019

 

 

Global Disability Summit - commitments

August 2018

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A major outcome of the Global Disability Summit, July 2018, was the commitments of a large number of organisations to achieve the rights of people with disabilities in developing countires.

The commitments of each organisation are provided in the same format and are categorised by summit theme:

  1. Dignity and respect for all
  2. Inclusive Education
  3. Economic Empowerment
  4. Harnessing Technology and Innovation

Organisations making commitments are grouped in the following categories:

  • National Governments
  • Multilateral organisations
  • Private Sector organisations
  • Foundations
  • Civil society organisations
  • Research organisations
  • Other organisations

 

GEM report summary on disabilities and education

UNESCO
2018

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In support of the run-up to the 2020 GEM Report on inclusion and education, this paper contains summarised content related to disabilities and education in previous Global Education Monitoring (GEM) Reports since 2010. Reports cited from 2010 and 2015 monitored countries in the Global South. The GEM Report started monitoring countries in the Global North from the 2016 Report onwards only.

 

Topics covered include: compliance monitoring; the role of civil society organisations; lack of data; marginalisation; data on primary school attendance; intersection with other disadvantages; different education related challenges; and ten education policies to counteract marginalisation.

Toolkit for DPOs Voluntary National Reviews

INTERNATIONAL DISABILITY ALLIANCE (IDA)
CBM
January 2018

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This toolkit was developed jointly by the International Disability Alliance (IDA) and CBM as an exploratory and interactive tool for organizations of persons with disabilities (DPOs) on the review and monitoring of the Sustainable Development Goal (SDG) implementation, at national, regional and global levels. The toolkit aims to provide step-by-step guidance, ideas, suggestions and templates for building successful advocacy campaigns and strategies to participate in the monitoring mechanisms of the Sustainable Development Goals. This toolkit will build on the monitoring process called the Voluntary National Review (VNR) that takes place at the global level linked with national and regional components

The 8 steps + : The role of community development organizations in providing holistic wheelchair services

ACCELERATING CORE COMPETANCIES FOR EFFECTIVE WHEELCHAIR SERVICE AND SUPPORT (ACCESS) PROJECT
October 2017

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This report suggests a “twin-track” approach based on the World Health Organization’s Guidelines on the Provision of Manual Wheelchairs in Less Resourced Settings, an eight-step process, and dedicated disability inclusion programming, the “plus.” By following this 8 Steps+ approach, community development organizations can provide appropriate wheelchairs and empower their constituencies to exercise their rights and fundamental freedoms.  

Making disability rights real in southeast Asia: Implementation of the UN Convention on the Rights of Persons with Disabilities in ASEAN

COGBURN, Derrick
KEMPIN REUTER, Tina
March 2017

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This edited collection evaluates national implementation of the UN Convention on the Rights of Persons with Disabilities (CRPD) across all 10 countries of the Association of Southeast Asian Nations (ASEAN) region. Working with interdisciplinary and country-specific research teams, the book presents case studies of CRPD implementation across Southeast Asia, including detailing the factors that influenced each country to ratify the CRPD; the focal point structure of implementation; the independent mechanism established to monitor implementation; and civil society organizations’ involvement.

The book also evaluates the implications of CRPD implementation for human rights and development in ASEAN, including the degree of institutionalized support for persons with disabilities; the development objectives of the CRPD against the strategic objectives of the ASEAN community; and the way these developments compare with those in other countries and regions

Human Rights

www.macao-tz.org
December 2014

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Malezi AIDS Care Awareness Organization (MACAO) is a non-profit organization reaching out to neglected Indigenous people in Ngorongoro District, Arusha Region of Northern Tanzania.  Macao founded in 2003, Macao is a humanitarian organization that provides assistance to approximately 200,000 Indigenous Maasai community in Ngorongoro district for addressing needs of water and sanitation, food security, health Care Research, Education, Research environment, Maasai Traditional Research, Human Rights and sustainable economic development by strengthening their livelihoods.  In addition to responding to major relief situations, MACAO focuses on long-term community development through over 4 Area Development Project. We welcome the donors and volunteers to join us in this programs, we are wolking in ruro villages.

“We can also change” Piloting participatory research with persons with disabilities and older people in Bangladesh

BURNS, Danny
OSWALD, Katy
November 2014

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Sightsavers, HelpAge International, ADD International and Alzheimer’s Disease International worked together with the Institute of Development Studies (IDS) to bring the perspectives of those who live in poverty or who are highly marginalised into post-2015 policy making. The aim of the research was to understand better the experiences of social, political and economic exclusion of persons with disabilities and older people in Bangladesh from their own perspectives. Two groups (community and NGO) of peer researchers collected 70 stories from poor and/or excluded persons with disabilities and older people from each of the two sites: Bhashantek, an urban slum in Dhaka; and Cox’s Bazar, a rural area in southeast Bangladesh. From the stories collected and analysed in workshops, the peer researchers identified 13 priority areas that affect persons with disabilities and older people: accidents and disasters; livelihoods; access to education; medical treatment; family support; exclusion and mistreatment; superstition; access to services; mobility; marriage; land; rape and sexual abuse; the role of grassroots community-based organisations. Recommendations from the researchers are made in each area. The peer research programme was evaluated and guidelines for its use are provided.

Strengthening participation of children and young people with disability in advocacy

SIMMONS, Dr. Catharine
ROBINSON, Dr. Sally
October 2014

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Participation by children and young people in advocacy and change-making can not only improve and foster positive change in their own lives, but also influence the lives of others. When young people’s participation is supported, meaningful and engaged, multiple benefits accrue; their perspectives and experiences bring a unique contribution and can result in rights-based empowerment, enacted citizenship and improved relationships. This has the potential to shape policy, to increase the relevance and responsiveness of organisations they use, and to influence change in their communities in positive ways

 

However, there are significant issues and a range of barriers that discourage, prevent or actively exclude children and young people with disability from participating. A culture of low expectations, social and cultural barriers, relationship and identity difficulties and practical hurdles exist for many young people. As a result, many are precluded from participation, particularly around change-making activities

 

This paper examines how meaningful participation of children and young people with disability in advocacy and change-making can be strengthened. In the paper CDA calls for the promotion of children and young people’s participation as active and valued community members

Inclusive disaster risk management : a framework and toolkit

FERRETTI, Silva
KHAMIS, Marion
2014

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This framework and toolkit have been designed to support practitioners in challenging and deepening inclusiveness in their work. They have been designed in simple language, so the resource should be easy to adapt for the use of field staff as a complement to existing manuals and operational resources on DRM. The practical framework contains the following sections:introduction, framework for inclusive DRM, levels of achievements, and assessing inclusiveness, using the framework for,  annexes and Q&A. Throughout the resource, related resources and checklists are provided and the toolbox features cartoons, tools catalogue, learning pills, case studies, poster and 4D lenses. These resources are useful for practitioners who want to develop an understanding of inclusive DRM framework and to learn how to practically assess inclusiveness in in ongoing DRM situations

Realising the future we want for all : report to the secretary-general

UNITED NATIONS SYSTEM TASK TEAM
June 2012

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"The report begins by reflecting on the experience of the UN system in supporting the implementation of the MDG framework. Building on the lessons learned, the report provides an assessment of the key development challenges to which the global development agenda should respond. It proposes a vision of people-centred, inclusive and sustainable development and initial ideas for possible contours of a post-2015 UN development agenda. It concludes by laying out a possible road map for the process of defining the agenda, including ways of bringing different voices of people around the world into the consultations"

Advocacy : key information sheet 4

WASSENAAR, Nicolien
January 2012

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"In development processes, participation of civil society organisations (CSOs) is a critical factor for the promotion of sustainable development. In a democratic society there are many different groups, often with competing interests. In order to make the voices of a group heard - and to bring specific opinions and needs to the attention of policy makers and development organisations - advocacy can be an effective tool." This key information sheet explores the importance, purpose and goals of advocacy and outlines ten practical steps to successful advocacy
Key information sheet 4

Community based rehabilitation and the convention on the rights of persons with disabilities

INTERNATIONAL DISABILITY AND DEVELOPMENT CONSORTIUM (IDDC)
Ed
2012

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This document explores the linkages between community based rehabilitation (CBR) and the convention on the rights of persons with disabilities (CRPD). It presents introductory information about the CRPD, CBR and the linkages. It then details CBR as a strategy for implementing the CRPD by highlighting experiences and principles

100 voices : southern perspectives on what should after the millennium development goals

POLLARD, Amy
et al
March 2011

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"This joint research from the Catholic aid agency CAFOD and the Institute of Development Studies (IDS) seeks to broaden the conversation, and to ensure that the voices of those directly involved in fighting poverty in the South are heard. (The) research describes the perspectives of 104 representatives from civil society organisations, in 27 developing countries from across the world"

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