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Disability and global health: Special issue of International Journal of Environmental Research and Public Health

KUPER, Hannah
POLAK, Sarah
Eds
2019

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Papers included in this special issue are:

 

Child health and rehabilitation. Factsheet.

HANDICAP INTERNATIONAL
March 2017

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Child health encompasses physical, mental and social well-being of children under the age of five. The leading causes of under-five deaths are pre-term birth complications, pneumonia, birth asphyxia, diarrhoea and malaria. Malnutrition contributes to nearly half of all under-five deaths. All these conditions contribute hugely to child impairments too. Common impairments and activity limitations related to child health including birth defects, cerebral palsy, developmental delays, burns, falls and injuries and road traffic injuries are outlined and different examples of rehabilitation across the care cycle are given. A case study of cerebral palsy in Haiti is cited. 

Evaluating the impact of a community–based parent training programme for children with cerebral palsy in Ghana

ZUURMOND, Maria
et al
January 2017

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"Cerebral palsy is the most common cause of physical disability in children worldwide, and yet in most low resource settings there are few services available to support children with cerebral palsy or their families. Research is required to understand the effectiveness of community and/or home based programmes to address this gap. This 2-year study aimed to evaluate a participatory caregiver training programme called ‘Getting to know cerebral palsy’ in Ghana. The training programme consisted of a monthly half-day support group with training, and a home visit, delivered across eight sites in Ghana over 10 months. A total of 76 families and children were included at baseline and 64 families followed up one year later at endline. Children were aged between 18months and 12 years with a mean of 3.8 years and a range of severity of cerebral palsy. Nearly all (97%) the caregivers were female and the father was absent in 51% of families. The study was a pre-post intervention design using mixed methods to evaluate the impact. A baseline and endline quantitative survey was conducted to assess caregiver quality of life (QoL) and knowledge about cerebral palsy and child feeding, health, and nutrition outcomes. Qualitative data was collected to explore the impact and experiences of the training programme in more depth".

Cultural beliefs and practices that influence the type and nature of data collected on individuals with disability through national census

GROCE, Nora
March 2015

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Collection of data about disability in a census or survey context is influenced by the cultural context, particularly the beliefs and practices within the communities where the data are collected. Attitudes toward individuals with disability will influence what questions are asked, how such questions are framed, and how individuals in the community will respond to these questions. This article examines how culturally defined concepts of disability influence the development of questions on the topic, as well as helps determine who asks the questions and who answers the questions. These issues in turn influence how much data are collected and how accurate the data are. It also examines how ethnic diversity and poverty contribute to these questions. Recommendations for attention to these issues are made by census and survey.

Getting to know cerebral palsy|Working with parent groups : a training resource for facilitators, parents, caregivers, and persons with cerebral palsy

INTERNATIONAL CENTRE FOR EVIDENCE IN DISABILITY (ICED)
et al
2013

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This manual aims to increase knowledge and skills in caring for a child with cerebral palsy. Research highlighted the significant needs of the caregivers, and how they can gain a huge amount of support from meeting with each other in an understanding environment. The manual is divided into 11 modules and promotes a participatory learning approach with an emphasis on the empowerment of parents and caregivers. It provides an opportunity for parents to organise themselves and to consider strategies at the community level to address some of the issues which affect them and their child
Note: An online community that aims to support practitioners share their learning and experiences around the parent training manual is available from the weblink. Members can share questions and perspectives, news items and resources with eachother via email or through a community website

The HELP guide for community based rehabilitation workers : a training manual

LOVEDAY, Marion
2006

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This is a training manual for community based rehabilitation workers based upon physiotherapist's work on a rehabilitation project in Cape Town, South Africa. The manual is aimed at trainers of rehabilitation workers who are assumed to have adequate medical knowledge. The manual is divided into the following 4 main topics: health in the community; normal body functions; conditions and treatment; management of patients. Each section contains a summary of the learning aims for the rehabilitation workers, and the teaching is based mainly on a question and answer format
Note: originally published in 1990 by SACLA Health Project

Walking aid compliance in children with spastic diplegia

RAJA, Kavitha
2005

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[Author's abstract] : A three month prospective self report study of 50 children using different types of walkers or elbow crutches was done to determine compliance with use of the prescribed device. Data were collected by means of log entries made by the child's care givers throughout the day. The data collected consisted of number of times and the distance the child walked each time. Overall mean compliance was 49.1%. Children using the reciprocal walker showed the greatest compliance while those using walkers with gutter attachments and elbow crutches showed the least. Compliance was greatest for distances of 50-100m while it was the least for distances over 150m

Dressing for the child with cerebral palsy

BANERJEE, Ranu
KUNDU, Madhuchhanda
SARKAR, Pratiti Basu
1995

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This is one of a series of booklets giving advice on educating children with cerebral palsy in daily living skills. The clearly illustrated booklet outline techniques and strategies and explore problems

Feeding for the child with cerebral palsy

BANERJEE, Ranu
KUNDU, Madhuchhanda
BANERJEE, Arundhuti
1995

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This is one of a series of booklets giving advice on educating children with cerebral palsy in daily living skills. The clearly illustrated booklet outline techniques and strategies and explore problems

Toileting for the child with cerebral palsy

BANERJEE, Ranu
KUNDU, Madhuchhanda
GANGULY, Iti
1995

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This is one of a series of booklets giving advice on educating children with cerebral palsy in daily living skills. The clearly illustrated booklet outline techniques and strategies and explore problems

Cleanliness for the child with cerebral palsy

BANERJEE, Ranu
KUNDU, Madhuchhanda
BASU, Ruma
1995

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This is one of a series of booklets giving advice on educating children with cerebral palsy in daily living skills. The clearly illustrated booklet outline techniques and strategies and explore problems

Case-control study of intrapartum care, cerebral palsy, and perinatal death

Gaffney, Geraldine
1994

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There is an association between quality of intrapartum care and death. The findings also suggest an association between suboptimal care and cerebral palsy, but this seems to have a role in only a small proportion of all cases of cerebral palsy. The contribution of adverse antenatal factors in the origin of cerebral palsy needs further study

Management of children with deafblindness with cerebral palsy : feeding, oromotor skills and self-care skills

SENSE INTERNATIONAL (INDIA)

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There are many children with deafblindness who have associated disabilities such as autism and epilepsy. Deafblind children with cerebral palsy sometimes have orthopedic and other functional impairments which are challenging for parent and teachers to manage. This booklet targets parents and teachers of children who are deafblind to improve the management of feeding, oromotor, and self-care skills

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