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Forgotten in a crisis: Addressing dementia in humanitarian response

GLOBAL ALZHEIMER'S & DEMENTIA ACTION ALLIANCE
ALZHEIMER'S DISEASE INTERNATIONAL
ALZHEIMER'S PAKISTAN
May 2019

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Every 3 seconds someone develops dementia and it’s one of the leading causes of death worldwide. Despite being some of the most at-risk in times of natural disaster, conflict and forced migration, there is a lack of awareness that dementia is a medical condition, meaning people with dementia are being neglected when they’re most in need of support.

This report investigates ways humanitarian emergency responses can protect and support people living with dementia. It draws on the experiences of people affected by dementia, Alzheimer’s specialists in affected countries, humanitarian organisations and inter-governmental organisations including the World Health Organisation and UNHCR.

Our findings reflect a wider issue of a lack of support for older people and those with disabilities in humanitarian response. We have found that people with dementia are systemically overlooked, due to a lack of global awareness of the condition and associated stigma.

The report is a collaboration between the Global Alzheimer’s & Dementia Action Alliance, Alzheimer’s Disease International and Alzheimer’s Pakistan.

Fixing health systems : linking research, development, systems, and partnerships

SAVIGNY, Don de
et al
2008

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Describes the process and lessons learned from the Tanzania Essential Health Intervention Project (TEHIP). This intervention used research to support the development of health care interventions aimed at the local burden of disease priorities. Local demographic surveillance helped to establish health intervention priorities in two districts, and then simple, computer-based 'burden of disease profiling tools' were used to help decide the allocation of budgets. The result was a large decrease in mortality rates, particularly among children and an increase in patient satisfaction and attendance at clinics

Monitoring and evaluation [whole issue]

September 2006

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This issue of Capacity.org presents an overview of monitoring and evaluation (M&E) methods and techniques, bringing together voices and experiences from the field. The editorial urges readers to go beyond results-based M&E, taking into account programmes' ability to contribute to capacity development. David Watson describes innovative approaches to M&E, typically concerned with qualitative changes, building consensus, and encouraging learning. Includes an interview with the African Evaluation Association, a brief assessment of the results-based BRAVA programme in Brazil, a case study of outcome mapping in Ecuador, lessons from the South African Landcare programme and an article on scientific capacity for development

Perceptions and practice : an anthology of impact assessment experiences

SAYCE, Kay
NORRISH, Patricia
2006

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This book presents eleven case studies of impact assessment in information and communication projects such as CATIA, Reflect's ICT projects in India, Tearfund's Footsteps project, Bernard van Leer Foundation's Effectiveness Initiative and others. Each case study begins with a summary of the study, followed by first-hand accounts of the key people involved in each assessment. The central issues raised by the studies include learning and accountability, attribution, context, communication, donor issues, resources, and planning. The case studies are bracketted by sensitive and analytical introductory and concluding chapters, which synthesize the practitioners' voices from the case studies, contextualise them in wider debates in development impact assessment, evaluation and learning

Can communities influence national health research agendas? A learning process leading to a framework for community engagement in shaping health research policy

BATISTA, Ricardo
et al
2006

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This paper is a record of a consultation on 'Communities Matter' which reviewed case studies of successes and failures of community and civil society engagement, participation and action in health research. The group discussion focused on opportunities and obstacles for communities to engage in health research. It analysed strategies that can be applied to increase a community’s voice in health research, and looked at the concepts, definitions and frameworks that can be used for promoting, advocating and supporting community engagement in health research

Building information systems in health care : a reference guide for health care decision-makers

PESTIC, Ozren
2004

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This manual aims to introduce the reader to the subject of medical informatics - specifically how to build information systems in various health care settings. Although some parts of the manual present detailed knowledge of specific applications tailored to technical specialists, the overall purpose is to provide those involved in the development of information systems with a framework that will assist in the planning and design process

Strengthening health systems : the role and promise of policy and systems research

ALLIANCE FOR HEALTH POLICY AND SYSTEMS RESEARCH (AHPSR)
2004

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Looks at the relative influence of policy and systems research on health systems in practice. Case studies illustrate the application of health systems research to solving problems of policy and practice. Addresses a number of key areas such as: the setting of research priorities, getting research into policy and practice, and developing research capacity in developing countries

Enhancing research uptake through communication, networking and capacity development

DUNN, Alison
2004

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This brief paper describes the research methodology employed by the Malaria Knowledge Programme, and key lessons learned. The programme aimed to enhance the impact of its work through strengthening information and communication flows, involving Southern researchers and institutions and creating international networks for the improvement of research communication throughout its work. Using examples, this paper illustrates how the programme engaged with dynamics of research, policy making and practice, in accordance with DFID recommendations

Bridging research and policy : insights from 50 case studies

COURT, Julius
YOUNG, John
August 2003

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This paper looks at why some research policy ideas are picked up and acted on while others are ignored and disappear. It examines the processes, findings and implications of 50 summary case studies on research policy linkages. Discussion centres around four interlinked spheres: context, evidence, links and external influences. Some case studies show a clear and direct link between research and policy, while most show a less direct impact with a necessity for strong advocacy efforts. The case studies represent an interesting range of evidence and experience about research-policy links from around the world. They include examples from a wide range of types of research carried out by a variety of organisations and illustrate different types of policy impact. This ranges from direct impact on policy, changes in policy implementation, and changes on the ground but little in policy

A comparative study of after action review (AAR) in the context of the southern Africa crisis : a case study paper for the Active Learning Network for Accountability and Performance in Humanitarian Action

SEXTON, Richard
MCCONNAN, Isobel
June 2003

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After Action Review (AAR) is a review technique for appraising ongoing or past operational activity. Part One of this paper identifies the principal components of an AAR-type process and explains how AAR works. It also contains a section on the assumptions underpinning the methodology used for this study. Parts Two, Three and Four each describe the experience of an individual agency or event. Part Five explores the comparative dimensions of the case studies, and lessons learned are described in an Annex

Research to practice [whole issue]

BEST, Kim
Ed
2003

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Examines the challenges of getting medical and public health research into practice in resource-poor settings. Addresses practice at the policy, organisational and individual levels. Uses brief case studies from the field of reproductive health to illustrate points

Participatory research with older people : a sourcebook

HESLOP, Mandy
March 2002

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This sourcebook takes the belief that participatory research with older people should form a key element of local and national government policy-making in areas such as health, employment and social welfare; programme planning by international aid agencies; and advocacy for and by older people. It has been produced to meet the need for a non-specialist sourcebook to help with all stages of participatory research with older people, and offers a clear overview of the whole process

A participatory approach in practice : understanding fieldworkers' use of participation rural appraisal in ActionAid The Gambia

HOLMES, Tim
June 2001

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This paper uses a case study to argue that participatory approaches emerge from a complex process of negotiation where fieldworkers are subject to unique combinations of competing influences from the organisations they work for, the communities they work with, and their own personal characteristics. It suggests that fieldworkers can actively pursue personal agendas and can also be involved in changing the structures that condition their actions. However, the paper concludes that elements of the organisational structure can leave little room for fieldworkers to use their agency positively, and that managers need to address this in order to reduce the gap between the policy and practice of participatory approaches

Notes to accompany ALPS

ACTIONAID
2001

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Detailed description of the central themes and strategies around ActionAid's innovative Accountability, Learning and Planning System (ALPS)

A modern paradigm for improving healthcare quality

MASSOUD, M Rashad F
et al
2001

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Outlines the principles and frameworks underlying modern quality improvement in healthcare, including the integration of evidence-based medicine in improving clinical quality. Simplifies QI, recognising that this flexible methodology can be applied through a variety of approaches, along a spectrum of increasing complexity. Four applications of QI are described and illustrated with case examples: individual problem solving, rapid team problem solving, systematic team problem solving, and ongoing process improvement. The final section describes a number of useful tools for QI in developing countries.

Going beyond research : a key issues paper raising discussion points related to dissemination, utilisation and impact of reproductive and sexual health research

ASKEW, Ian
MATTHEWS, Zoe
PARTRIDGE, Rachel
2001

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Focuses on applied or operations or health services research and reviews how this is implemented. Considers utlisation, communication and evaluation of research, in the field of reproductive and sexual health in particular. Reviews a range of methods useful for evaluating the impact of research

Approaches to impact evaluation (assessment) in agricultural information management : selective review of the issues, the relevant literature and some illustrative case studies

BELLAMY, Margot
November 2000

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While the 'information/knowledge' culture may be burgeoning due to new ICTs, neither the methodology nor the culture of information impact studies is yet fully developed. There are as yet few methodologies and applications relating to information management in developing countries, and even fewer which have been or could be applied specifically to agricultural information management. This selective review seeks to engender wider knowledge, acceptance and application of evaluation in the field of agricultural information management by showing how it has been approached in other disciplines, in agricultural research, and most recently in information science and management, with some key examples relating to information management in developing countries

Current issues in sector-wide approaches for health development : Uganda case study

BROWN, Adrienne
2000

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This brief document reports on the broad achievements and constraints faced in the health sector in Uganda. Poverty-reduction funds are being channelled into primary care, and improved management of public funds is helping the situation. However, capacity beyond the Ministry of Health is limited, and decentralization, with unclear policy links in the regions, is a challenge. There is some evidence of success in using funding strategies to reorient services to primary care and prevention

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