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Forgotten in a crisis: Addressing dementia in humanitarian response

GLOBAL ALZHEIMER'S & DEMENTIA ACTION ALLIANCE
ALZHEIMER'S DISEASE INTERNATIONAL
ALZHEIMER'S PAKISTAN
May 2019

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Every 3 seconds someone develops dementia and it’s one of the leading causes of death worldwide. Despite being some of the most at-risk in times of natural disaster, conflict and forced migration, there is a lack of awareness that dementia is a medical condition, meaning people with dementia are being neglected when they’re most in need of support.

This report investigates ways humanitarian emergency responses can protect and support people living with dementia. It draws on the experiences of people affected by dementia, Alzheimer’s specialists in affected countries, humanitarian organisations and inter-governmental organisations including the World Health Organisation and UNHCR.

Our findings reflect a wider issue of a lack of support for older people and those with disabilities in humanitarian response. We have found that people with dementia are systemically overlooked, due to a lack of global awareness of the condition and associated stigma.

The report is a collaboration between the Global Alzheimer’s & Dementia Action Alliance, Alzheimer’s Disease International and Alzheimer’s Pakistan.

Interventions to improve the labour market situation of adults with physical and/or sensory disabilities in low and middle-income countries : a systematic review

TIPNEY, Janice
et al
November 2015

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This systematic review analyses the methodology, collection, and results of fourteen individual studies that examined the effectiveness of fifteen different intervention methods to assist students with disabilities in low and middle income countries to improve the labour market situation

Campbell Systematic Reviews 2015:20

 

Casualty recording in Tunisia : responses to the 2010-2011 uprising

PATEL, Ian
GIGER, Annabelle
September 2015

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This study analyses and comments on the role of, and methods used by, the Bouderbala Commission in the wider transitional justice process that was inaugurated in the aftermath of Tunisia's 2011 uprisings. The decision to undertake this case study was prompted by the fact of the rapid establishment of the Bouderbala Commission after the removal from power of former president Zine El Abidine Ben Ali, along with its mandate empowering it to comprehensively and systematically record the deaths and injuries related to the protests

The future is inclusive. How to make international development disability-inclusive

KEOGH, Mary
January 2014

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This first publication in our series on disability inclusive development covers key facts and figures on the situation of women, men, girls and boys with disabilities living in lowincome countries and presents the reasons why development and humanitarian actions must be disability-inclusive. •

Chapter 1 introduces the key concepts in disability-inclusive development and reflects also on CBM’s own journey towards disability-inclusive development.

Chapter 2 highlights why the inclusion of women, men, girls and boys with disabilities is important for effective development and humanitarian outcomes.  

Chapter 3 sets out why the human rights of women, men, girls and boys with disabilities are closely associated with development both at home and in international cooperation.

Chapter 4 highlights the key issues which cause barriers to disability-inclusive development, and provides a set of principles, case studies and good practice examples of how it can be achieved.  

Chapter 5 concludes with some key messages and introduces the topics that we will address in future publications in this series.

Linking CBR, disability and rehabilitation

MUSOKE, Grace
GEISER, Priscille
Eds
2013

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This 4th book in the series can be used as a basis for future action throughout the African continent. The content provides an overview of present day CBR knowledge, and also details how this information has been interpreted and implemented in the African context. The writers are predominantly of African origin and provide insightful views of the dynamic nature of CBR and its capacity to respond to contextually different challenges. Examples are provided from their own CBR experiences and case studies of their programmes, highlighting the problems they face and how they were overcome

The content of this book has been developed from conference presentations and discussions, and some chapters have been reinforced with additional information from discussions or relevant literature. The end of each chapter provides references to the academic literature used by the authors

4th CBR Africa Conference

Abuja, Nigeria

26th-29th October 2010

Access to employment for all in West Africa : let’s make it work

DIMBARRE KPEHOUNTON, Cathy
et al
2013

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This Making It Work multi-stakeholder initiative documents good practice for inclusive employment of people with disabilities, in order to promote effective implementation Article 27 of the Convention on the Rights of Persons with Disabilities in seven West African countries. “The objective was to make recommendations for public and private employers, microfinance institutions, governments and their partners in order that they become agents of change and commit themselves to inclusive policies promoting access to decent jobs for people with disabilities in West Africa”

Good practices in the inclusion of persons with disabilities in the Tibet Autonomous Region, China : how to ensure the rights of persons with disabilities are promoted and respected?

HANDICAP INTERNATIONAL
November 2012

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The report is a collection of good practices of inclusion of people with disabilities in the Tibet Autonomous Region of China, compiled through the ‘Support to DPOs’ project. Making It Work methodology was used to collect good practice of social integration and participation by people with disabilities; good practice in terms of working methods to ensure partner ownership and long term sustainability; and good practice in terms of process, such as participative working methods to ensure the long-term ‘real’ inclusion of persons with disabilities. The target of the report is the Disability Working Committee, the key Government body in decision making on disability issues. The report considers 13 case studies on such topics as DPO activity, inclusive education, community participation, rehabilitation and livelihoods. For each case study, influencing factors (positive and negative) are identified, and possible improvements and recommendations for replication suggested. This collection of good practices gives a diverse range of possible actions for the enhanced inclusion of persons with disabilities; combining access to services (early education, mainstream education, and rehabilitation), arts and culture, awareness-raising, and active participation in political and social life

Good practices in inclusive education of children with disabilities in Cape Verde : study report

HANDICAP INTERNATIONAL
November 2012

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“This study has been carried out to promote practical recommendations, based on experience, on how to include children with disabilities in regular primary and secondary education in Cape Verde. Underpinning this objective is the goal to promote the effective implementation of article 24 of the CRPD in Cape Verde.” This study used the Making It Work approach in order to document and promote good practice in line with the principles of the Convention on the Rights of Persons with Disabilities (CRPD)

Forgotten sisters : a report on violence against women with disabilities|An overview of its nature, scope, causes and consequences

ORTOLEVA, Stephanie
LEWIS, Hope
August 2012

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This report focuses upon prevalence and pervasiveness of violence against women and girls with disabilities. It "reviews available information on the forms, causes and consequences of violence against women when both gender and disability collide to exacerbate that violence; examines the impact of the multiple and intersecting dimensions of women’s lives and; their impact on violence against women with disabilities. The Report outlines the international and regional legal framework, highlighting relevant provisions and interpretations. Finally, the Report examines the extent to which States have met their due diligence obligations (setting forth a few country-specific case studies) highlights some best practices, discusses significant gaps in the research and makes recommendations for future action"
Paper series no 104-2012

Disabilities and decent work in the Pacific. The case for disability inclusive employment.

LAMOTTE, David
COCCO, Bernardo
LAL, Iresh
2012

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This publication aims to highlight some of the challenges faced by persons with disability in accessing decent jobs and to identify relevant labour standards and other policy interventions that could advance disability in the workplace and assist Pacific Island countries address these challenges. It also celebrates the experience of eighteen people with disabilities in Fiji and Vanuatu who have been able to secure employment – sometimes against all odds and barriers. As employees or as self-employed persons, their stories emphasise the “business case” for hiring a person with disability. They are hard-working, reliable, loyal and productive workers. Through their own strong determination, access to education and vocational training, they have overcome the barriers to employment that too many other people face. They are a role model to all of us and show that it is not a person’s disability, but, rather, their ability, that makes them good employees and productive members of society

Good practices in inclusive agricultural skill training for persons with disabilities

HENG, Channtey
December 2011

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The objective of this initiative was to identify good practices using the Making it Work methodology in inclusive agricultural skill training for persons with disabilities in Cambodia in line with CRPD Article 27 Work and Employment. The report presents case studies and examples of good practice, and provides guidance and recommendations for other organisations in order that they may improve the inclusiveness of their agricultural skill training activities. This project is a Making It Work initiative conducted by the Cambodian Disabled People’s Organisation in order to document and promote good practice in line with the principles of the Convention on the Rights of Persons with Disabilities (CRPD)

Best practices for including persons with disabilities in all aspects of development efforts

FORGACS, R. T
November 2011

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"The present document has been prepared in response to the request in paragraph 15(b) of General Assembly resolution 65/186, in which the Secretary-General was asked to 'provide information on best practices at international, regional, sub regional and national levels for including persons with disabilities in all aspects of development efforts'...The document is divided into four main sections. Following this brief introduction, section II will focus on the initial criteria for the assessment of best practices. Section III presents a number of recommendations, suggesting also how the United Nations can facilitate the process of mainstreaming disability and persons with disabilities in development and highlighting the interlinks between the mainstreaming of disability and achievement of the Millennium Development Goals (MDGs); and section IV contains 26 case studies from across the globe"

What the global report on disability means for the WASH sector

WILBUR, Jane
August 2011

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"This report gives an overview of the information relevant to the water, sanitation and hygiene (WASH) sector in the world’s first report on disability. It also highlights how WaterAid is addressing the recommendations in the report, as well as where we could develop our approaches further"

Realising UNCRPD : learning from inclusive practices in education and employment|Case studies in education and employment

HIRANANDANI, Vanmala
KUMAR, Arun
SONPAL, Deepa
July 2011

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"This document compiles the findings from the case studies and provides a synthesis of their inclusive practices. Further, it provides key pointers for future direction which are open for further debate. The key purpose of this document is to facilitate wider dissemination of inclusive practices in accessible formats and generate dialogue with various, thus serving an essential educational purpose"

World report on disability

WORLD HEALTH ORGANIZATION
WORLD BANK
2011

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This report "reviews evidence about the situation of people with disabilities around the world. Following chapters on understanding disability and measuring disability, the report contains topic-specific chapters on health; rehabilitation; assistance and support; enabling environments; education; and employment. Within each chapter, there is a discussion of the barriers confronted, and case studies showing how countries have succeeded in addressing these by promoting good practice. In its final chapter, the report offers nine concrete recommendations for policy and practice which if put in place could lead to real improvements in the lives of people with disability"

Access to drinking water for people with disabilities in the town of Tenkodogo (Burkina Faso)

DIMBARRE KPEHOUNTON, Cathy
SERGE, Dao Moussa
2011

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“Since 2001, local NGO Dakupa,with the support of WaterAid, began to implement a water, sanitation and hygiene (WASH) project in several urban municipalities in the Central East region of Burkina Faso. In line with the principles of equity and inclusion, the objective of this project was to improve access to WASH services for people with disabilities (PWD) through the construction of accessible water points and latrines. To date, about ten wheelchair accessible standpipes have been constructed in places such as the town of Tenkodogo, the subject of this study”

Case study 11

Principles and practices for the inclusion of disabled people in access to safe sanitation : a case study from Ethiopia

WILBUR, Jane
October 2010

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This report describes a formative evaluation of WaterAid’s pilot project in Butajira, Ethiopia. Using research methodologies such as a literature review, case studies, participant observation and semi-structured interviews, the findings present that WaterAid applied the charity model within its intervention and had limited impact on societal discrimination. The report concludes by recommending nine key principles for development organisations to mainstream inclusive development. This report would be useful to people interested in the inclusion of disabled people in access to safe sanitation

Enabling Australia : inquiry into the migration treatment of disability

JOINT STANDING COMMITTEE ON MIGRATION
June 2010

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This report examines the assessment of health and community costs associated with a disability as part of the health test undertaken for Australia visa processing. It highlights the current approach and provides recommendations for improvement. Case studies and tables are provided. This report is useful for people interested in the migration treatment of disability in Australia

Disability inclusive flood action plan and WASH in a Bangladeshi community

BARI , Nazmul
GOPAL SAHA, Broja
January 2010

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“From October 2009 to July 2010, the Centre for Disability in Development (CDD), working in partnership with local non-government organisation (NGO) Gana Unnayan Kendra(GUK) and with the support of CBM Australia, implemented a pilot project titled Disability inclusive Disaster Risk Reduction Project (DiDRR). The DiDRR project broadly addressed inclusive disaster preparedness with a sub-component on improved water and sanitation access for PWD. This case study focuses on the project actions and resulting changes regarding disability inclusive water and sanitation before and during floods, and how it benefited not only PWD but also the wider community”

Case study 10

Child-centred disaster risk reduction : building resilience through participation : lessons from Plan International

PLAN INTERNATIONAL
2010

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This report “presents the results and recommendations of a five-year programme and…includes a series of case studies illustrating how child-centred Disaster Risk Reduction (DRR) supports the delivery of the Hyogo Framework’s Priorities for Action, as well as the realisation of children’s rights to education, health and participation within disaster risk contexts…Child-centred Disaster Risk Reduction is an innovative approach to Disaster Risk Reduction (DRR) that fosters the agency of children and youth, in groups and as individuals, to work towards making their lives safer and their communities more resilient to disasters”

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