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"I washed and fed my mother before going to school" : understanding the psychosocial well-being of children providing chronic care for adults affected by HIV/AIDS in Western Kenya

SKOVDAL, Morten
OGUTU, Vincent O
August 2009

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This paper presents three case studies of young people each of whom is a primary caregiver for a relative living with HIV. They are drawn from a study in Western Kenya of how well children cope with the challenges of chronic care and the psycho-social impact it has on them

Helping a forgotten minority : disability and HIV/AIDS in Zambia

DEPARTMENT FOR INTERNATIONAL DEVELOPMENT (DFID)
June 2007

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This article and case study demonstrate work being done in Zambia to ensure that the needs of people with disabilities are met by HIV and AIDS services, so that they have full access to the treatment, care and support available. Provisions include sign language training for HIV and AIDS counsellors, making mobility aids and hearing aids available to those who need them, as well as improving food security and encouraging a sustainable livelihoods approach. This would be of interest to anyone looking at mainstreaming disability in the provision of HIV and AIDS services

Understanding and challenging HIV stigma : toolkit for action. Module H : MSM and stigma

KIDD, Ross
CLAY, Sue
CHIIYA, Chipo
June 2007

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This is the fifth booklet in this revised toolkit to raise awareness and promote practical action to challenge HIV stigma and discrimination. Module H focuses on men who have sex with men (MSM) and stigma. The toolkit was written by and for HIV trainers in Africa and changes and additions were made with the help of a regional trainers network workshop in Zambia in August 2005

Civil society perspectives on TB/AIDS : highlights from a joint initiative to promote community-led advocacy

OPEN SOCIETY INSTITUTE
TREATMENT ACTION GROUP
2006

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This publication presents six case studies of community-led advocacy activities, aimed at enhancing the capacity of the community to participate in the design, implementation and evaluation of TB/HIV programmes. The HIV epidemic has significantly contributed to the rise of TB incidence, but disease control programmes and policies are generally designed to be implemented independently, with limited resources often allocated to TB projects. The case studies outline some success stories of an integrated approach to TB and HIV, the TB/HIV Advocacy Grants Project, and highlight examples of effective community mobilisation and inclusion of people with HIV. This is a valuable resource for policy makers, organisations and practitioners working in HIV and tuberculosis

Getting the message across : the mass media and the response to AIDS

JOINT UNITED NATIONS PROGRAMME ON HIV/AIDS (UNAIDS)
December 2005

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The mass media have the potential to provide a platform for discussion, communication and education on HIV and AIDS, giving a voice to people living with HIV and AIDS (PLWHA), challenging stigma and discrimination, lobbying policy makers and building partnerships and capacity through sharing and transferring skills and expertise. However, mass media can also disseminate misleading messages, while HIV/AIDS communication competes with other topics for broadcasting time and audiences. This report presents three case studies of effective and creative use of the media in South Africa: Soul City and Soul Buddyz adopt an 'edutainment' approach, aiming both to educate and entertain; the Community Health Media Trust produces a series of programmes addressing issues concerning people with HIV/AIDS; Takalani makes television and radio programmes, to encourage small children to develop self-esteem, offer positive models and destigmatise PLWHA. Detailing the lessons learned from these experiences, the report looks at how target audiences are chosen, how partnerships are formed, how topics and ideas are developed and what ethical issues arise

Building bridges with SIPAA : lessons from an African response to HIV and AIDS

DUNN, Alison
HEALTHLINK WORLDWIDE
2005

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This document examines the key lessons from the Support to the International Partnership against AIDS in Africa (SIPAA) programme implemented between 2001 and 2005 in nine African countries. The programme's main focus was on African leadership and ownership, involvement and participation of people living with or affected by HIV and AIDS and mobilisation of national and regional partners. Lessons learned include: meaningful involvement of people living with HIV and AIDS; supporting associations according to potential rather than proven track record; networks support; support for local leaders; making connections through National AIDS Councils; building strong partnerships; sharing information and knowledge across Africa; making the most of African skills and resources

HIV-related stigma, discrimination and human rights violations: case studies of successful programmes

JOINT UNITED NATIONS PROGRAMME ON HIV/AIDS (UNAIDS)
2005

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This report is a collection of case studies of projects, programmes and activities around the world that have used innovative methods to challenge HIV-related stigma, discrimination and human rights violations. The case studies are grouped under stigma-reduction approaches; anti-discrimination measures; and human rights and legal approaches. They are followed by some cross-project/activity analysis that identifies common elements and a number of key principles of success, each of which offers an entry point for innovative and potentially effective work

Stepping back from the edge : the pursuit of antiretroviral therapy in Botswana, South Africa and Uganda

JOINT UNITED NATIONS PROGRAMME ON HIV/AIDS (UNAIDS)
2004

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This report looks at what is being done to challenge the pace of progress on access to antiretroviral medicines in three very different African countries - Botswana, South Africa and Uganda. It describes who is driving these initiatives at grass-roots level and how. It offers insights and draws on lessons from firsthand experiences that can help those already working towards better access to antiretrovirals, and encourages others to embark on similar initiatives. It is intended for all those with an interest in this issue, from policy- and decision-makers with the power to create a favourable environment for antiretroviral treatment, to those working on the front line in health services, NGOs and AIDS service organizations, as well as those living with HIV, whose role in the battle for wider access is vital

Involvement of people living with HIV/AIDS in treatment preparedness in Thailand : case study

KUMPHITAK, Aree
KASI-SEDAPAN, Siriras
WILSON, David
et al
2004

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People living with HIV/AIDS (PLHA) in Thailand are increasingly encouraged to work in partnership with NGOs to improve access to disease prevention and treatment provision. This case study outlines the impact of this collaboration over a period of four years. PLHA have been directly involved in lobbying and advocacy, helping make ART more widely available, but also promoting prevention and treatment of opportunistic infections, focusing on the use of co-trimoxazole. Their involvement as co-providers in care has positively changed the attitude of health care staff towards HIV/AIDS patients. The study concludes that a coordinated collaboration between the public health system, NGOs and PLHA would have important spin-offs for both health care providers and PLHA themselves

A family is for a lifetime

WILLIAMSON, Jan
December 2003

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A discussion on the need for family care for children living in HIV/AIDS affected communities followed by an annotated bibliography. This pulls together the best research and experience from practice to provide important guidance to responses at family levels. Community based responses are difficult to define and this identifies the need to find a consensus so as to provide a way forward for action. The discussion in the paper is a review of 80 documents about the provision of care for children lacking family care in countries affected by HIV/AIDS

Working positively : a guide for NGOs managing HIV/AIDS in the workplace

UK CONSORTIUM ON AIDS AND INTERNATIONAL DEVELOPMENT
December 2003

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With HIV prevalence rates of over 20% in many sub-Saharan African countries, and with infection rates rising rapidly in other parts of the world, NGOs are funding that HIV/AIDS is affecting not only programme work but also staff. If NGOs are to be credible in these communities, they need to be seen to be addressing HIV/AIDS internally in a way that is consistent with their external messages. However, developing a workable comprehensive solution that covers policy, education and prevention, and treatment and care is not easy. This guide looks at the key issues involved in developing a workplace strategy and how different NGOs and commercial organisations are approaching these issues through a series of case studies. It also provides a guide to the key components of a successful strategy and a list of useful reference documents

Working positively : a guide for NGOs managing HIV/AIDS in the workplace

UK CONSORTIUM ON AIDS AND INTERNATIONAL DEVELOPMENT
December 2003

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With HIV prevalence rates of over 20% in many sub-Saharan African countries, and with infection rates rising rapidly in other parts of the world, NGOs are funding that HIV/AIDS is affecting not only programme work but also staff. If NGOs are to be credible in these communities, they need to be seen to be addressing HIV/AIDS internally in a way that is consistent with their external messages. However, developing a workable comprehensive solution that covers policy, education and prevention, and treatment and care is not easy. In a series of documents in both PDF and MSWord formats, this guide looks at the key issues involved in developing a workplace strategy and how different NGOs and commercial organisations are approaching these issues through a series of case studies. It also provides a guide to the key components of a successful strategy

Working with men, reponding to AIDS : gender sexuality and HIV. A case study collection

INTERNATIONAL HIV/AIDS ALLIANCE
November 2003

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This case study collection aims to help projects working with men in order to have an impact on the HIV epidemic. It presents experiences and lessons from a range of different projects that involve men, gender identity, sexuality or related issues, offering inspiration, ideas and models for working with different kinds of men in a deliberately broad range of contexts

Improving access to antiretroviral treatment in Cambodia

KHMER HIV/AIDS NGO ALLIANCE (KHANA)
September 2003

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This report looks at how to increase access of people living with HIV to ARV treatment, building on the experience of KHANA and its partners. Its major recommendations include scaling up care and support, and developing new approaches for community preparedness. It recommends doing this by providing technical and financial support for ongoing information, skills and training, influencing policy, involving people living with HIV/AIDS and communities, encouraging dialogue and collaboration, and making better use of existing structures and services. It includes case studies and a range of useful resources

Advocacy guide for HIV/AIDS

HAMAND, Jeremy
June 2001

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This guide describes what advocacy can do, often at little cost, in the prevention of HIV/AIDS. It does not describe how to organise advocacy campaigns, as this is covered in other publications, but instead tries to focus on how advocacy can further awareness, combat stigma, and address barriers to care at all levels. Suggests how advocacy can address issues experienced by all PLWHA and by specific vulnerable groups, such as children, prisoners, drug users and others

The community response to AIDS in Manicaland

FRASIER, Tony
2001

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This is the first booklet in a series documenting the Schools Without Walls of the Southern African AIDS Training (SAT) Programme. It documents the experiences of working with non-governmental and community-based organisations in Manicaland, Zimbabwe. These include the Family AIDS Caring Trust (FACT) in Mutare and Nyanga, and the Dananai Centre at Murambinda

Investing in our future : psychosocial support for children affected by HIV / AIDS : a case study in Zimbabwe and the United Republic of Tanzania

FOX, Susan
2001

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The HIV/AIDS epidemic has had an enormous impact on children. Coping with the cumulative impact of over 17 million AIDS deaths on orphans and other survivors, on communities, and on national development is an enormous challenge, especially in African countries with social and health services already reeling from lack of human and financial resources. Hence, this report is intended for people concerned about and working with families affected with HIV/AIDS. Through providing examples of successful interventions being undertaken by organizations in Zimbabwe and the United Republic of Tanzania, the report shares experiences of essential psychosocial support to children who are infected and affected by HIV/AIDS to stimulate new awareness of needs and to open new doors for action. Furthermore, it focuses on what can be done for the child of an infected parent before and after the parent dies, to enable the child to cope better with the situation. Thus, this report illustrates how networking between organizations enables them to collaborate in addressing a variety of children's issues that they could not tackle alone

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