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"I washed and fed my mother before going to school" : understanding the psychosocial well-being of children providing chronic care for adults affected by HIV/AIDS in Western Kenya

SKOVDAL, Morten
OGUTU, Vincent O
August 2009

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This paper presents three case studies of young people each of whom is a primary caregiver for a relative living with HIV. They are drawn from a study in Western Kenya of how well children cope with the challenges of chronic care and the psycho-social impact it has on them

Gender and care : supporting resources collection

ESPLEN, Emily
February 2009

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This collection show-cases existing work on gender and care, including a mix of research papers, policy briefings, advocacy documents, case study material and practical tools from diverse disciplines and geographical regions - all focusing on different aspects of care. Summaries and links to key resources are provided, as well as information on international frameworks and conventions relating to care

Gender and development in brief : gender and care

ESPLEN, Emily
February 2009

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This bulletin aims to inspire thinking around how we can move towards a world in which individuals and society recognise and value the importance of different forms of care, but without reinforcing care work as something that only women can or shoud do. It offers an overview of why care is important and the approaches needed to bring about change, including an article which looks at innovative ways of challenging gender norms to bring about a more equal sharing of care responsibilities between men and women, and an inspiring example of home-based carers in Africa coming together to get their priorities heard

Weak promise on HIV/AIDS [whole issue]

August 2006

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This issue focuses on HIV and AIDS and ageing and considers the effects of the epidemic on the elderly. Articles look at how parents provide care during illness to their children with little formal support in Cambodia, explore the experience of older people affected by HIV in dealing with grief in Tanzania, and report on the work of 'Empathy clubs' for older women caring for children with HIV in Vietnam

Mobilising men as home-based care volunteers

SOUTHERN AFRICAN AIDS TRAINING PROGRAMME (SAT)

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A brief pamphlet describing the issues around the gender imbalance in home-based care. Using a brief case study from 'Word Alive Ministries International' in Malawi, the pamphlet describes the problems faced, and the community's response and strategies. It also outlines around ten key lessons

Transferring palliative care from institutions to communities

SOUTHERN AFRICAN AIDS TRAINING PROGRAMME (SAT)

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This brief publication describes the issues in home- or community-based care for chronically or terminally ill people, including those living with HIV/AIDS. It describes a project at the Island Hospice and Bereavement Service in Zimbabwe, which integrated 'traditional' home-based care (HBC) and the specialised palliative care and bereavement support offered at the hospice. It concludes that HBC projects that are linked to and supported by institutions such as hospices are able to integrate specialised skills in palliative care and bereavement support into their on-going work

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