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Seeking information about assistive technology: Exploring current practices, challenges, and the need for smarter systems

DANEMAYER, Jamie
HOLLOWAY, Cathy
CHO, Youngjun
BERTHOUZE, Nadia
SINGH, Aneesha
BHOT, William
DIXON, Ollie
GROBELNIK, Marko
SHAWE-TAYLOR, John
September 2023

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Assistive technology (AT) information networks are insular among stakeholder groups, causing unequal access to information. Participants often cited fragmented international marketplaces as a barrier and valued info-sharing across industries. Current searches produce biased results in marketplaces influenced by commercial interests and high-income contexts. Smart features could facilitate searching, update centralised data sources, and disseminate information more inclusively.

 

International Journal of Human - Computer Studies, Volume 177, September 2023, 103078

https://doi.org/10.1016/j.ijhcs.2023.103078

Innovative data use: can we learn more from what is already available?

DANEMAYER, Jamie
September 2023

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A short talk given at the Disability Innovation Summit: Inclusive Interactions conference organised by GDI hub on 13 Sep 2023.

The use of published datasets on the prevalence of disability is reviewed. The numbers of datasets and their harmonisation is described and the advantages, limitations and opportunities for use are outlined. 

Assistive Technology in urban low-income communities in Sierra Leone & Indonesia: Rapid Assistive Technology Assessment (rATA) survey results

CAREW, Mark
WALKER, Julian
OSSUL-VERMEHREN, Ignacia
BARTLETT DEVELOPMENT PLANNING
January 2022

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It is estimated by the World Health Organisation (WHO) that 15% of the world's population has a disability and one billion people need one or more Assistive Products (AP) but as little as one in ten have access to the device they need. There is however very little data to define this need for AP in low-resource settings. 

To contribute to the knowledge gap, the findings from the surveys presented in this report give a unique insight into disability prevalence and access to AT in five urban low-income communities in Sierra Leone and Indonesia, where a total of 4,256 individuals were surveyed using the rATA tool.

The rATA tool is designed for the rapid evaluation of the need, use, supply and impact of AT, Rapid Assistive Technology Assessment (rATA) is a new survey from WHO. A version modified by the Development Planning Unit-University College London (DPUUCL) was conducted in September 2019 for the research project “AT2030 community led solutions”, as part of the AT2030 programme led by Global Disability Innovation Hub.

Disability inclusion annual report 2020

UNITED NATIONS RELIEF AND WORKS AGENCY (UNRWA)
December 2020

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The number of Palestine refugees registered by UNRWA recently grew to 5.7 million (from 5.5 million in 2019) in all its five field of operations in Jordan, Lebanon, Syria, Gaza and the West Bank. Among them are Palestine refugees with disabilities, who have long-term impairments, which in interactions with attitudinal, institutional, and environmental barriers prevent their full and effective participation on an equal basis with others in society. Persons with disabilities constitute an estimated 15 per cent of the global population1, and may constitute a higher percentage in humanitarian contexts, such as Syria, the West Bank and Gaza, in particular, which are UNRWA fields of operations.

 

The main actions undertaken in 2020 discussed in the report are:

  • targeted and disability-specific services for persons with disabilities
  • disability inclusion through programmes
  • inter-agency coordination
  • international protection advocacy

WHO launches assistive technology capacity assessment (ATA-C)

WORLD HEALTH ORGANISATION (WHO)
November 2020

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WHO has developed the assistive technology capacity assessment (ATA-C) tool, a system-level tool to evaluate a country’s capacity to finance, regulate, procure and provide assistive technology. The ATA-C tool enables countries to better understand the current status and identify key actions to improve access to assistive technology: it can be used for awareness raising, policy and programme design and ongoing monitoring and evaluation.

The ATA-C is part of the WHO Assistive Technology Assessment (ATA) Toolkit, helping countries to collect effective and relevant data on assistive technology

The Arabic version of Trinity Amputation and Prosthetic Experience Scale - Revised (TAPES-R) for lower limb amputees: Reliability and validity

MASSARWEH, Reem
SOBUH, Mohammad
2019

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Purpose: Despite the importance of the evaluation process in lower limb prosthetic rehabilitation, prostheses are rarely evaluated properly in the Arab world. This is partly due to the absence of any suitable Arabic evaluative tool. The aim of this study is to translate TAPES-R (a standardised evaluative questionnaire) into Arabic and to investigate its psychometric properties on lower limb amputees. Such a tool would ultimately be of benefit for clinical follow-up and research purposes.

 

Method: International standards were followed for the forward- and back-translation of the TAPES-R questionnaire. A sample of 111 Arabic-speaking volunteers with lower limb amputation completed the translated version of the questionnaire. The responses were then statistically analysed using factor analysis and Cronbach’s α to assess the content and construct validity, and internal consistency (reliability) respectively.

 

Results: Factor analysis showed that the questionnaire’s items (included in the analysis) can be divided into three distinct dimensions as was originally suggested. The distribution of the items within the three dimensions is comparable with the original questionnaire. All three parts of TAPES-R showed high reliability; where Cronbach’s α were .892, .894, and .873 respectively.

 

Conclusion: This study found that the Arabic version of TAPES-R represents a valid and reliable tool.

 

Limitations: The questionnaire is designed to be emailed or posted, but the majority of the amputee population in Jordan did not have these services, so direct contact with each participant was necessary.

 

 

Disability, CBR and Inclusive Development, Vol 30, No 1 (2019)

Unmet needs and use of assistive products in two districts of Bangladesh: Findings from a household survey

PRYOR, Wesley
NGUYEN, Liem
ISLAM, Qumrun Naher
JALAL, Faruk, Ahmed
MANJULA, Marella
December 2018

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Access to assistive products (AP) is an under-researched public health issue. Using an adaptation of a draft World Health Organization tool—the ‘Assistive Technology Assessment—Needs (ATA-N)’ for measuring unmet needs and use of AP, we aimed to understand characteristics of AP users, self-reported needs and unmet needs for AP, and current access patterns in Bangladesh. The ATA-N was incorporated in a Rapid Assessment of Disability (RAD), a population-based survey to estimate prevalence and correlates of disability. In each of two unions of Kurigram and Narsingdi districts, 60 clusters of 50 people each aged two years and older were selected using a two-staged cluster random sampling process, of whom, 4250 (59% Female; 41% Male) were adults, including 333 using AP. We estimate 7.1% of the studied population used any AP. AP use is positively associated with age and self-reported functional difficulty. The proportion of people using AP is higher for mobility than for sensory and cognitive difficulties. Of all people with any functional difficulty, 71% self-reported an unmet need for AP. Most products were home or self-made, at low cost, but provided benefits. Needs and unmet needs for AP are high, especially for people with greater functional difficulties. Assessing unmet needs for AP revealed important barriers to scale that can inform policy and practice.

Int. J. Environ. Res. Public Health 2018, 15(12), 2901;
doi:10.3390/ijerph15122901

Removing barriers - The path towards inclusive access. Disability assessment among Syrian refugees in Jordan and Lebanon. Jordan report

ASAI, Yahoko
et al
July 2018

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Humanity & Inclusion (HI) and iMMAP conducted a study concerning with the lack of disability data in the Syria crisis context,  which aimed to:

  • Provide statistically reliable prevalence of disability as well as disability disaggregated data indicators on access to services.
  • Increase understanding of the situation of Syrian refugees with disabilities and their households, compared to their peers without disabilities, in relation to the access to services including education, and key barriers experienced in accessing these services.
  • Recommend inclusive actions to be prioritized by humanitarian actors.

The study conducted a literature review, quantitative data collection as well as qualitative data collection. Quantitative data was collected from 6,381 persons of randomly sampled 1,159 households in Azraq and Zaatari camps and Irbid between October 2017 and January 2018. Twenty-five Key Informant Interviews (KIIs) and 3 Focus Group Discussions (FGDs) were also conducted between November 2017 and January 2018 to elicit deeper insights on the educational situation of children with and without disabilities

Severe-to-profound hearing impairment: demographic data, gender differences and benefits of audiological rehabilitation

TURUNEN-TAHERI, Satu
CARLSSON, Per-Inge
JOHNSON, Ann-Christin
HELLSTROM, Sten
June 2018

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Purpose: The purpose of this study was to identify and report demographic data of patients with severe-to-profound hearing loss, assess participation in audiological rehabilitation and analyze the benefits of various rehabilitation methods.

 

Materials and methods: Data on 4286 patients with severe-to-profound hearing impairments registered in the Swedish Quality Register of Otorhinolaryngology over a period from 2006–2015 were studied. Demographic data, gender differences, audiological rehabilitation and benefits of the rehabilitation were analyzed.

 

Results: Group rehabilitation and visits to a hearing rehabilitation educator provided the most benefits in audiological rehabilitation. Only 40.5% of the patients received extended audiological rehabilitation, of which 54.5% were women. A total of 9.5% of patients participated in group rehabilitation, with 59.5% being women. Women also visited technicians, welfare officers, hearing rehabilitation educators, psychologists and physicians and received communication rehabilitation in a group and fit with cochlea implants significantly more often than did men.

 

Conclusions: The study emphasizes the importance of being given the opportunity to participate in group rehabilitation and meet a hearing rehabilitation educator to experience the benefits of hearing rehabilitation. There is a need to offer extended audiological rehabilitation, especially in terms of gender differences, to provide the same impact for women and men.

Right to health: Reality of persons with spina bifida and hydrocephalus

MCPHERSON. Amy
January 2017

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"This report maps the situation of persons with SBH in relation to healthcare access and is a follow up of the CRPD Concluding Observations Art.25. Through a comprehensive survey, IF collected valuable data on the experiences, satisfaction, and perceptions of healthcare coverage of individuals with SBH across Europe. Based on its findings, the financial coverage of treatment and assistive products for patients with SBH is grossly insufficient across the EU. Europe as a whole lacks multidisciplinary care and specialised SBH teams, which translates into long waiting times and insufficient knowledge of the SBH specificities. 

Considering these findings, IF urges the EU Member States to adequately support the healthcare needs of persons with SBH, and to invest more substantially into creating multidisciplinary clinics that can help avoid preventable complications 11 and may reduce the overall burden 12 on the patient and the system. In addition, the Member States should actively support creation of the European Reference Networks as a way of improving care for persons with SBH. IF also calls on the European institutions for support in training medical professionals on rights of persons with disabilities."

Conduct an accessibility audit in low and middle income countries

NOUVELLET, Hugues
June 2014

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This guide aims to assist professionals in conducting an accessibility audit, and is aimed at Handicap International professionals who have responsibility for developing, implementing or analysing accessibility activities. Within the framework of inclusive local development, an accessibility audit is a complex, substantial and technical process to implement involving a large number of different stakeholders, increase time preparation and technical specialised skills for making recommendations to remove barriers. An accessibility audit is a participatory democracy exercise which can be used as the basis to form relationships between stakeholders in a municipality accessibility commission or even a municipality commission for inclusive development, who will have responsibility for suggesting, studying, organising and implementing actions to improve accessibility

Access to drinking water for people with disabilities in the town of Tenkodogo (Burkina Faso)

DIMBARRE KPEHOUNTON, Cathy
SERGE, Dao Moussa
2011

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“Since 2001, local NGO Dakupa,with the support of WaterAid, began to implement a water, sanitation and hygiene (WASH) project in several urban municipalities in the Central East region of Burkina Faso. In line with the principles of equity and inclusion, the objective of this project was to improve access to WASH services for people with disabilities (PWD) through the construction of accessible water points and latrines. To date, about ten wheelchair accessible standpipes have been constructed in places such as the town of Tenkodogo, the subject of this study”

Case study 11

Evaluation and utilization of traditional methods of communication in Cameroon's central, southern, eastern and extreme northern regions : case study 20

FOOD AND AGRICULTURE ORGANIZATION (FAO). Communication for Development Group
August 2003

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This study's main objectives are to evaluate traditional means of communication; to note their constraints; to select the traditional methods which can best be used for the diffusion of information and to devise a strategy for implementing the selected method of traditional communication. The methodology of this survey is based on the Active Method of Participative Research.
The study illustrates that the traditional media for communication in Cameroon are: the gong and songs accompanied by dances (in all of the surveyed provinces); the xylophone (in the center and south); griot [travelling poet] and balafon (in the east); colleagues of the traditional chiefs (Lawanes, Djaoros); and messengers of traditional chiefs or muezzins (extreme north).There are numerous constraints to using individuals in devising communications strategies: a lack of trained musicians, the lack of initiative on the part of the village elders, the disinterest of the youth, conflict among the different generations, the proliferation of modern communications technologies, the complexity of training in various methods, the possible alteration of messages, a lack of motivation and the slow speed of transmission. The study notes that the best methods for the diffusion of information in the regions surveyed in Cameroon are: the gong, the colleagues and messengers of traditional chiefs to organize village meetings in which reproductive health issues could be raised, singing and dancing, travelling poets and xylophones.
In order to devise effective strategies for conveying messages about reproductive health through these traditional methods of communication, traditional authorities must be engaged early on in the process and informed of the importance of these means of communication; qualified individuals must be identified as resources and others trained; and a training of trainers must be conducted

Revisiting the "magic box" : case studies in local appropriation of information and communication technologies (ICTs)

BATCHELOR, Simon
O’FARRELL, Clare
2003

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This book looks at the way communities and groups in developing countries are appropriating information and communication technologies (ICTs) to address their needs. It finds that ICTs are being integrated into wider community-based activities and adapted to fit different contexts. It follows on from the paper "Discovering the Magic Box". It finds that there are still few examples of community-driven and locally appropriated ICT initiatives and an absence of standards or guidelines to evaluate ICT-based projects. The book includes some analytical frameworks and indicators to identify good practice and evidence of impact A significant development has been in the growth of telecommunications, in particular mobile phones, that are relatively cheap and powerful tools for poor communities, even in remote areas. The book concludes that the power of oral communication through telephones and radio cannot be underestimated. The book proposes that the main challenge is to adapt the new, usually computer-based ICTs to the needs of poor, predominantly oral-based communities so that they can be appropriated effectively and quickly

The significance of information and communication technologies for reducing poverty

MARKER, Phil
MCNAMARA, Kerry
WALLACE, Lindsay
January 2002

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A study for DFID staff, and for policy consideration, about the role of ICT in development. Identifies and assess the links between information and poverty, and concludes that although spreading ICT ('bridging the digital divide') should not be an end in itself, there is enormous potential for ICTs to increase information flow and empower poor people. The study then discusses the potential role of the international community, and sets out specific recommendations for DFID. Includes several appendices containing: a bibliography; brief case studies of Chile, Costa Rica and India; and list of related DFID funded projects. The study concludes that ICT should not be viewed as an end itself but has the potential as a tool to increase information flows and empower people. It can play a part in achieving International Development Goals

Recording and using indigenous knowledge : a manual

International Institute of Rural Reconstruction (IIRR)
1996

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A practical, user-friendly manual that describes how to record indigenous knowledge together with local people. It includes ten case studies and questions guides on more than 20 development issues - mainly agricultural, but including water and sanitation. Well illustrated, it emphasises working in a participatory mode and adapting techniques to suit local conditions. It is seen as useful for professionals, field staff and students in all fields of development work. The format allows easy copying for use in training

Adaptech research network

ADAPTECH RESEARCH NETWORK

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Adaptech research network consists of a team of academics, students and consumers who conduct research involving college and university students with a variety of disabilities in Canada. Their goal is to provide empirically based information to assist and inform decision making that ensures that new policies and new information and communication technologies reflect the needs and concerns of a variety of stakeholders. Specifically their areas of focus are use and accessibility of information and communication technologies in postsecondary education, facilitators and barriers to academic success, and free or inexpensive software useful to students with various disabilities. The network’s website presents general information about the network and team, their research and related publications, and a database of free or inexpensive software and hardware for Windows, Mac, and Apple

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