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Disability disaggregation of data : baseline report

JOLLEY, Emma
THIVILLIER, Pauline
SMITH, Fred
December 2014

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“This baseline report contains information on the initial steps (prior to the start of data collection) undertaken to include disaggregation of data by disability in two projects in Tanzania and India. The report includes information on project selection, development of an Monitoring and Evaluation (M&E) plan, adaptation of data collection tools and training of Country Office staff, partners and data collectors. This baseline also captures the knowledge, attitudes and practices of programme managers, decision makers and data collectors around disability, the availability of data, and the experiences of Sightsavers’ implementing staff”

Note: The user has given permission for the uploaded document to be reproduced and made publicly available on the Source website

A qualitative study: Barriers and support for participation for children with disabilities

MARIE, Anne
HANSEN, Witchger
SIAME, Musonde
VAN DER VEEN, Judith
2014

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Background: This qualitative–exploratory study examined the barriers to participation amongst children with disabilities in Lusaka, Zambia, from the mothers’ perspective.

 

Objectives: The objectives of this study were to understand how mothers of children with physical and cognitive disabilities who engaged their children in community-based rehabilitation (CBR) services in Lusaka, Zambia, perceived and described (1) the level of support they received and the barriers they encountered in terms of their child’s meaningful social participation; (2) the use and awareness of these barriers to identify and pursue advocacy strategies; and (3) hopes for their child’s future.

 

Methods: Data were collected through semi-structured interviews with each mother in her home.Results: Findings revealed both support and barriers to the child’s social participation in relationship to their family, friends and community. Support also came from the CBR programme and mothers’ personal resourcefulness. Mothers identified their child’s school,their immediate environment and financial burdens as barriers to participation as well as their own personal insecurities and fears. Strategies to overcome barriers included internal and external actions. The mothers involved in the study hope their child’s abilities will improve with continued CBR services. Some mothers described a bleak future for their child due to alack of acceptance and access to education.

 

Conclusion: The findings of this study suggest the significant role the mother of a child with a disability plays in her child’s social participation. Recommendations include enhancing CBR programming for families, especially for mothers, and advocating on behalf of children with disabilities and their families to attract the attention of policy makers.

Inclusive Tanzania network : access to education and political participation of persons with disabilities

LIGHT FOR THE WORLD
Ed
October 2014

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MTAJU - Inclusive Tanzania was a pilot project aiming to empower persons with disabilities through inclusive education and political participation that ran from November 2005 to December 2010. MTAJU is a network of Tanzanian Disabled People’s Organizations (DPOs) and Pro Disability Organizations (PDOs), who campaign together for an inclusive society where people with disabilities enjoy the same rights as other citizens. The project's main aims were the legal, political and social establishment of the right to education of children with disabilities and the right to political participation of persons with disabilities. This short learning guide is based on the full project report and highlights the key lessons learned by the project team. This guide would be very useful for anyone interested in the access to education for children with disabilities and the participation of disabled people in public and political life in Africa in particular and the global south in general

Learning Guide, 2/2014

Climate change and persons with disabilities

LOCKWOOD, Elizabeth
September 2014

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This blog follows the UN Climate Summit on Tuesday, 23 September 2014 in New York City. Due to this high-level event, climate change has been a pervasive topic at the UN and in NYC and this theme will continue to be important as the post-2015 development agenda progresses. With this increased emphasis on climate change – and related disaster risk reduction (DRR) – in the post-2015 process, this blog outlines why it is crucial that persons with disabilities are included in these conversations, debates and initiatives, and presents a number of recommendations

Recognising the agency of people with dementia

BOYLE, Geraldine
May 2014

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People with dementia have been assumed to possess weak or even no agency, so this paper provides a novel contribution to academic debate by examining their actual potential for agency. The author draws on findings from a qualitative study of everyday decision-making by people with dementia that aimed to iden- tify the role of social factors (such as gender) in influencing their involvement in decisions. Whilst decision-making constitutes a form of deliberative agency, the research also identified when agency was alternatively habituated, embodied or emotional. The Economic and Social Research Council-funded research was undertaken in the North of England. Existing theoretical perspectives on agency are critiqued, particularly in relation to rationality, language and individualised agency. The study highlighted that people with dementia who lack deliberative capacity can nonetheless demonstrate creative capacity for agency. A more expansive concept of agency is needed in social science theory that is informed by the experiences of cognitively disabled people.

Rapid outcome mapping approach (ROMA) : a guide to policy engagement and policy influence

YOUNG, John
et al
2014

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ROMA (the RAPID Outcome Mapping Approach) is an approach to improve policy engagement processes and in­fluence change. It comprises a suite of tools that any organisation can use at any stage in their policy engagement process to improve how they diagnose the problem, understand the types of impact their work could have on policy-making, set realistic objectives for policy infl­uence, develop a plan to achieve those objectives, monitor and learn from the progress they are making and refl­ect this learning back into their work

Note: The guide is available in pdf and online webpage formats from the links above

World report 2014 : events of 2013

HUMAN RIGHTS WATCH
2014

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This report is Human Rights Watch’s 24th annual review of human rights practices around the globe. It summarises key humanitarian rights issues in more than 90 countries and territories worldwide, drawing on events through November 2013. It presents extensive investigative work that Human Rights Watch undertook in close partnership with human rights activists on the ground.  The report is divided into three main parts: an essay section, photo essays, and country-specific chapters

Childhood disability and malnutrition in Turkana Kenya : a summary report for stakeholders and policy

KISIA, James
et al
2014

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This study aimed to assess whether children with disabilities were included within humanitarian and food security response programmes and whether there was an association between disability and malnutrition. The fieldwork was conducted in 2013 in the Turkana region of Kenya, a region repeatedly classified as experiencing a humanitarian emergency, and used both qualitative and quantitative methods. The key finding of the report is that children with disabilities are more likely to be malnourished and the key recommendations are that children with disabilities should be targeted in food aid and food assistance programmes, and that further efforts are needed to include children with disabilities in education.   The report is intended for stakeholders to inform policy

Research summary : childhood disability and malnutrition in Turkana Kenya

KISIA, James
et al
2014

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This report summarises a study that aimed to assess whether children with disabilities were included within humanitarian and food security response programmes and whether there was an association between disability and malnutrition. The fieldwork was conducted in 2013 in the Turkana region of Kenya, a region repeatedly classified as experiencing a humanitarian emergency, and used both qualitative and quantitative methods. The key finding of the report is that children with disabilities are more likely to be malnourished and the key recommendations are that children with disabilities should be targeted in food aid and food assistance programmes, and that further efforts are needed to include children with disabilities in education.  The report is intended for stakeholders to inform policy 

Parent peer advocacy, information and refusing disability discourses

BELL, M
FITZGERALD, R
LEGGE, M
2013

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Parent peer advocacy is a distinct type of empowering relationship practised in Parent to Parent New Zealand that shares experiential knowledge gained from raising a child with disability, chronic illness or special needs and draws on both partnership and participation ideals of support. This support organisation matches families with impairment, illness and genetic difference in light of issues they encounter as families with disability. In this paper we discuss disabling historical contexts countered by the provision of information as advocacy, ambivalence towards difference in the organisation, and the rise in prospective parents seeking parent peer support. These thematic areas allow us to create an analytical framework to be used in the next phase of an empirical study with Parent to Parent New Zealand.

SIR, an ’’out of the box’’ project

THEBAULT DIAGNE, Guilaine
Ed
June 2013

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This newsletter provides an update on the social inclusion and rights (SIR) Project in West Africa and features information and links to various resources undertaken as part of the DECISIPH project
DECISIPH Newsletter, Number 014

OHCHR Report 2012

UNITED NATIONS OFFICE OF THE HIGH COMMISSIONERS FOR HUMAN RIGHTS (OHCHR)
May 2013

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This comprehensive report presents OHCHR’s role, work, structure, managerial outputs, finance and expenditure. It details information about the focuses of their work on various thematic issues including: discrimination; immunity and the rule of law; poverty and economic, social and cultural rights; migration; violence and insecurity; and human rights mechanisms. The report highlights OHCHR’s progress towards the expected accomplishments illustrated by numerous results
Note: CD is also available

Children and young people with disabilities : factsheet

UNITED NATIONS CHILDREN’S FUND (UNICEF)
May 2013

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"This Fact Sheet on children with disabilities provides a global snapshot of the key issues affecting the lives of children with disabilities and an overview of evidence currently available. It is not a comprehensive review, but rather is intended to provide a starting point for approaching policies and programmes that can make a difference in the lives of these children, their families and their communities. Knowledge and understanding of the barriers and challenges faced by children with disabilities is essential if their rights are to be realised"

Adult ward should have right to vote : court

JAPAN TIMES
March 2013

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This short article reports on a landmark ruling in Tokyo where the court ordered that an adult woman with Down Syndrome, who had been barred from voting due to her intellectual disability, was entitled to vote in all elections. The law barring persons with intellectual disabilities from voting was held to unconstitutional. This article will be of interest to anyone interested in the right of people with disabilities participating in political and public life

The right to vote of persons with disabilities in Chile : Law no 20.183 as a factor of progress for inclusive democracy

REYES, Maria Soledad Cisternas
March 2013

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"This article describes the process of adoption of Law 20.183 of 2007, which recognises the right of persons with disabilities to have support in the act of voting. The process began with a lawsuit which inspired legal research conducted at the national level. A project of civil society advocacy was subsequently developed and implemented to promote the right to vote of persons with disabilities. The process resulted in a legislative initiative and culminated in the adoption of the 2007 Constitutional Act on voting and elections which recognized the right to support in the act of voting for persons with disabilities"
IDA Human Rights Publication Series, Issue 1, The Right to Vote and to Stand for Election

The role of Germany’s National CRPD Monitoring Body in implementing Article 29

PALLEIT, Leander
March 2013

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"This article aims to briefly describe the actions taken by the National CRPD monitoring body in Germany (Monitoring-Stelle zur UN-Behindertenrechtskonvention) in order to promote the implementation of Article 29 of the Convention on the Rights of Persons with Disabilities (CRPD)"
IDA Human Rights Publication Series, Issue 1, The Right to Vote and to Stand for Election

Voter’s opinion of the election process in Libya

ABDUL-LATIF, Rola
March 2013

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This research report examines the perspective of voters and their opinions of the election process. It presents the findings from eight focus group discussions in November 2012 with Libyan citizens who voted in the General National Congress (GNC) elections

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