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Zero Project Report 2019: Independent living and political participation

FEMBEK, Michael
January 2019

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The Zero Project Report 2019 focuses on Article 19 (Living independently and being included in the community) and Article 29 (Participation in political and public life) of the UN CPRD, as well as related topics such as Article 12 (Equal recognition before the law) and Article 13 (Access to justice)

For 2019 the Zero Project selected 66 Innovative Practices and 10 Innovative Policies from 41 countries that positively impact the rights of persons with disabilities in their ability to live more independently and to take part in political life

 

This Report is composed of five main sections, summarizing the annual research, followed by an Annex:

• Executive Summary, including background information on this year’s research topic and the Zero Project methodology

• Innovative Polices and Practices: Fact Sheets and Life Stories

• Description of the Zero Project–Impact Transfer programme

• Description of EU-grant-funded TOPHOUSE projects

• A summary of this Report in easy language

• An Annex listing all Zero Project network members active in 2018–2019

The Zero Project Report is also available on the Zero Project Website in an accessible pdf format.

 

At risk of exclusion from CRPD and SDGs implementation: Inequality and persons with deafblindness. Initial global report on situation and rights of persons with deafblindness

JENSEN, Rune
et al
September 2018

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Representing between 0.2% to 2% of the population, persons with deafblindness are a very diverse yet hidden group and are, overall, more likely to be poor and unemployed, and with lower educational outcomes. Because deafblindness is less well-known and often misunderstood, people struggle to obtain the right support, and are often excluded from both development and disability programmes. This initial global report on the situation of persons with deafblindness seeks to start a dialogue between international disability rights and development stakeholders, and is based on research undertaken by the World Federation of the Deafblind (WFDB) combining the largest population-based analysis of persons with deafblindness conducted to date (disaggregation of 22 population-based surveys from low, middle and high-income countries), an academic literature review, two surveys conducted among members and partners of WFDB and Sense International. Women and men with deafblindness from across the world took part in the Helen Keller World Conference in June 2018, and were consulted to confirm the findings and elaborate on the recommendations for this report.

 

Data and discussion are presented on people with deafblindess and: inequality; poverty; work; education; health; participation on political and public life; and social life. Datasets are included. 

 

The right to live independently and be included in the community : Addressing barriers to independent living across the globe

ANGELOVNA-MLADENOVA, Lilia
June 2017

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"This reports looks at the main barriers to the realisation of disabled people’s right to live independently and be included in the community, which is set out in Article 19 of the UN Convention on the Rights of Persons with Disabilities (CRPD). They are grouped in seven broad areas: (1) misunderstanding and misuse of key terms, (2) negative attitudes and stigma, (3) lack of support for families, (4) prevalence of institutional services, (5) barriers related to community support services, (6) barriers in mainstream services and facilities, and (7) barriers, concerning other CRPD provisions, with effect on Article 19. A set of recommendations is also provided, outlining measures required to address these barriers"

The right to live independently and be included in the community : Addressing barriers to independent living across the globe

ANGLELOVA-MLADENOVA, Lilia
June 2017

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This reports looks at the main barriers to the realisation of disabled people’s right to live independently and be included in the community, which is set out in Article 19 of the UN Convention on the Rights of Persons with Disabilities (CRPD). They are grouped in seven broad areas: (1) misunderstanding and misuse of key terms, (2) negative attitudes and stigma, (3) lack of support for families, (4) prevalence of institutional services, (5) barriers related to community support services, (6) barriers in mainstream services and facilities, and (7) barriers, concerning other CRPD provisions, with effect on Article 19. A set of recommendations is also provided, outlining measures required to address these barriers.

The recommendations in this report – presented below - were shared with the UN Committee on the Rights of Persons with Disabilities when they were drafting the General Comment on Article 19. They can be used by governments and civil society organisations, alongside the General Comment, to identify actions needed to implement Article 191 CRPD.

 

Making support services better in the future. A joint agreement.

EUROPEAN ASSOCIATION OF SERVICE PROVIDERS FOR PEOPLE WITH DISABILITIES (EASPD)
Inclusion Europe
Confederation of Family Organisations in the European Union (COFACE)
European Disability Forum
European Network on Independent Living
Mental Health Europe
2017

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A joint declaration of a two year service agreement between six disabled persons support organisations. The agreement is based on the UN CPRD, primarily:

Article 12: Equal recognition before the law

Article 19: Living Independently and being included in the community

Article 24: Education

Article 27: Work and Employment

Making migration accessible: Inclusive relocation for people with disabilities

GHENIS, Alex
February 2016

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Factors associated with complex and specific needs of people with disabilities who become migrants owing to climate change are discussed and rights of disabled migrants as covered by  UNCRPD Article 11: Situations of Risk and Humanitarian Emergencies and UNCRPD Article 18: Liberty of Movement and Nationality are highlighted. The challenge of disability-inclusive planning to incorporate migrants with disabilities in a way that maintains health, physical access and necessary support throughout the migration or relocation process and once at their destination is reported. This involves maximizing accessibility of transit and infrastructure (namely temporary camps, long-term housing and public spaces); maintaining personal care and communal support networks; and guaranteeing vital health-care and social services.

Migration, Environment and Climate Change: Policy Brief Series: Issue 6 | Vol. 2 | June 2016

Thematic study on the right of persons with disabilities to live independently and be included in the community : Report of the Office of the United Nations High Commissioner for Human Rights

OFFICE OF THE UNITED NATIONS HIGH COMMISSIONER FOR HUMAN RIGHTS (UN OHCHR)
December 2014

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"The present study, developed under Human Rights Council resolution 25/20, is focused on the right to live independently and be included in the community, and the enjoyment, protection and promotion of that right as a substantive means for the realization of other rights, as a condition for avoiding institutionalization and segregation in health and social settings, and as a prerequisite to provide for the full development of the capabilities of persons with disabilities and their meaningful participation in, and contribution to, society"

The African disability rights yearbook

NGWENA, Charles
et al
Eds
2013

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This Yearbook “aims to bring into prominence an area traditionally neglected by both African governments and academics. Following in the wake of the adoption of the United Nations Convention on the Rights of Persons with Disabilities, it is the first peer-reviewed journal to focus exclusively on disability as human rights on the African continent. The Yearbook, which is projected to appear annually, is set out in three sections. Section A contains academic articles; Section B consists of country-based research, charting recent developments on disability rights legislation, case law and policy developments in selected African states; and Section C deals with relevant developments in the African Union (AU) and African sub-regional organisations”

Volume 1

Inclusion international campaign on Article 19 : living in the community

INCLUSION INTERNATIONAL
2012

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This paper provides information about Inclusion International’s campaign on article 19 of the Convention on the Rights of Persons with Disabilities living in the community. It reviews background information, provides a definition of ‘institution’, and outlines the campaign goals and action plan. It also provides information about how to support the campaign

A community for all : checklist

PARKER, Camilla
December 2011

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This checklist outlines out ten key areas of work that governments will need to take if they are to comply with their obligations under Article 19 of the Convention on the Rights of Persons with Disabilities (CRPD), which provides unequivocally that people with disabilities have the right to live independently and be included in the community. The checklist includes an overview of the CRPD and its relevance to efforts to replace a system that institutionalizes people with disabilities with appropriate community-based services that promote social inclusion

A community for all : implementing article 19|A guide for monitoring progress on the implementation of the convention on the rights of persons with disabilities

PARKER, Camilla
2011

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"This Guide aims to show how the Convention on the Rights of Persons with Disabilities (CRPD) can be used to promote the right of people with disabilities to live and participate in the community as equal citizens. Its primary focus is Article 19 of the CRPD (Living independently and being included in the community), which provides that people with disabilities have the right to live in the community, with the same choices as others"

Global campaign on Art 19

INCLUSION INTERNATIONAL

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The campaign on Article 19 is Inclusion International (II)'s project to look at how Article 19 of the United Nation Convention on the Rights of Persons with Disabilities is implemented globally in different people's lives, and what needs to be done to make living independently and being included in the community a reality for everyone. This website features information about the campaign and self-advocacy, as well as related news and resources

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