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Everybody Matters: Good practices for inclusion of people with disabilities in sexual and reproductive health and rights programmes

Van SLOBBE, Caroline
November 2017

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This publication provides introductory chapters from two activists who work to create better opportunities for people with disabilities in Nigeria and India. Subsequently, the challenges that organisations worldwide have encountered whilst improving the access to and knowledge of sexual and reproductive health and rights for people with disabilities are presented. Ways in which they managed to find solutions and the results achieved are reviewed. Some cases show the importance of a more personal approach whilst others emphasise the advantage of changing systems and policies. Different regions, types of disabilities and various SRHR-topics are reflected in these stories. All cases provide lessons learnt that contribute to a set of recommendations for improved responses. The closing chapter highlights the challenges, solutions, and ambitions that are presented and lead up to a concise overview of recommendations.  

Good practice examples include:

A shift in SRH programming (Nepal)

Breaking Barriers with performance art (Kenya)

Her Body, Her Rights (Ethiopia)

People with disabilities leading the way (Israel Family Planning Association)

Best Wishes for safe motherhood (Nepal)

It’s my body! (Bangladesh)

Calling a spade a spade (Netherlands)

Four joining forces (Colombia)

Change agents with a disability (Zimbabwe)

Tito’s privacy and rights (Argentina)

Sign language for service providers (Kenya)

DFID data disaggregation action plan - Better data for better lives

UK DEPARTMENT FOR INTERNATIONAL DEVELOPMENT (DFID)
UK AID
January 2017

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This action plan sets out the steps that the UK Department for International Development (DFID) will take to promote, provide and make use of their own development and humanitarian programme data which can be disaggregated on the basis of sex, age, disability status and geography (in the short term). It also has the objective to build the culture within DFID on disaggregated data, and to work with others to change the international development system on disaggregated data. A review is scheduled for 2020. Working with partners, influencing, capacity building and management information, research, analysis and reporting are outlined. Trailblazer country programmes with Bangladesh, Nepal, Zimbabwe and Rwanda are reported.

Enabling education review, issue 4

ENABLING EDUCATION NETWORK
December 2015

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This newsletter contains a variety of articles about inclusive education in several countries around the world. The topics focus mostly on funding, managing and sustaining inclusive education; engaging and empowering beneficiaries in finding solutions; facilitating parental and child involvement and early childhood education

Enabling Education Review, issue 4

Equal basis 2014 : access and rights in 33 countries

BURKE, Megan
PERSI VICENTIC, Loren
December 2014

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This report presents research about efforts to meet the needs and uphold the rights of persons with disabilities in four thematic areas: health care, rehabilitation, work and employment, and accessibility and enabling environments. Research findings are drawn from the experiences of landmine and cluster munition survivors and other persons with similar needs in 33 countries experiencing armed conflict or emerging from armed conflict or political or economic transition. Findings are placed within the context of relevant articles of the Convention on the Rights of Persons with Disabilities and the World Report on Disability

Including children with disabilities in primary school : the case of Mashonaland, Zimbabwe

DELUCA, Marcella
TRAMONTANO, Carlo
KETT, Maria
October 2014

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This paper summarises education information disaggregated by age, gender and impairment gathered on children with disabilities in 268 schools in four districts in Mashonaland West Province (MWP), Zimbabwe, and outlines results from a survey given to parents, caregivers and teachers on knowledge, attitudes and practices. Findings highlighted a lack of training in inclusive education and the major barriers identified were a lack of assistive devices; distance to school and lack of transportation; cost; and human resource allocation. This research forms part of a three-year project led by Leonard Cheshire Disability Zimbabwe Trust to promote the provision of inclusive primary education for children with disabilities in that province and these findings provide the programme team with the possibility of adapting interventions and measuring changes over the duration of the project

Working Paper 26

The African report on violence against children

THE AFRICAN CHILD POLICY FORUM (ACPF)
September 2014

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This report reveals that Africa’s children are still subjected to levels of physical and emotional violence despite more than a decade of efforts by governments. The report “constitutes the most comprehensive study to date of the phenomenon in Africa and lays down the priorities for action at various levels that will be required to achieve better protection of children.  The report’s findings are principally informed by large scale surveys undertaken in Ethiopia, Kenya, Malawi, Mali, Morocco, Uganda, Zambia and Zimbabwe, and a review of more than 75 studies and reports. It reveals that a distinctive range of social, cultural and economic factors can combine to increase the risk of African children facing increased levels of physical and emotional violence in domestic settings, at schools, in institutions and in the workplace. These risks may be exacerbated in times of political upheaval and conflict, and girls are particularly vulnerable”

Surviving spinal cord injury in low income countries

ODEROD, Tone
August 2014

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Life expectancy and the situation of persons living with Spinal Cord Injury (SCI) in low income settings was explored. Mortality rates from injuries and challenges in daily lives of people with injuries from poorer economic backgrounds are were investigated and are compared with those with higher incomes. Literature studies and qualitative methods were used. Qualitative data was collected through semi-structured interviews with 23 informants from four study sites in Zimbabwe representing persons with SCI, their relatives and rehabilitation professionals.

There are few publications available about life expectancy and the daily life of persons with SCI in low income countries. Those few publications identified and the study findings confirm that individuals with SCI are experiencing a high occurrence of pressure sores and urinary tract infections leading to unnecessary suffering, often causing premature death. Pain and depression are frequently reported and stigma and negative attitudes are experienced in society. Lack of appropriate wheelchairs and services, limited knowledge about SCI amongst health care staff, limited access to health care and rehabilitation services, loss of employment and lack of financial resources worsen the daily challenges.

Conclusion: The study indicates that life expectancy for individuals with SCI in low income settings is shorter than for the average population and also with respect to individuals with SCI in high income countries. Poverty worsened the situation for individuals with SCI, creating barriers that increase the risk of contracting harmful pressure sores and infections leading to premature death. Further explorations on mortality and how individuals with SCI and their families in low income settings are coping in their daily life are required to provide comprehensive evidences.

HIV-related disability in HIV hyper-endemic countries : a scoping review

HANASS-HANCOCK, Jill
et al
September 2013

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This article presents the results of the first scoping review to examine the extent, nature and range of disability among people living with HIV in HIV hyper-endemic countries. The studies indicate that people living with HIV experience a variety of disabilities. Impairments in body structure/function comprise the majority of data, with particular focus on mental function. Data on activity limitations and participation restriction were limited, however, they were recorded. They indicate severe impact on people’s life and possible adherence. The review argues that the time has come to elevate the focus holistically on health and life-related consequences of living with HIV and to integrate disability into the discussions and approaches to HIV care

World Journal of Aids, Vol 3, No 3

Zimbabwe sexual and reproductive health sign language dictionary

THE HIV AND AIDS MANAGEMENT AND SUPPORT ORGANIZATION (THAMASO-ZIMBABWE)
DISABILITY AND HIV AND AIDS TRUST(DHAT)
2012

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"The Dictionary includes an illustrated guide to signing and signing for individual letters, along with illustrations and descriptions for common words and for those new HIV/SRHR signs that have been developed, making it an invaluable reference for both those with hearing impairments and those without hearing challenges. The dictionary is suitable for use in educational institutions (schools, colleges and universities) as well as in health institutions such as hospitals, clinics and VCT centres. Counsellors and all staff working directly and indirectly in the HIV and SRHR sectors will find the dictionary most useful"

Country profile reports

KOTZE, Hermien
2012

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This report provides a compilation of detailed country reports providing a comprehensive overview of existing disability policies and legislation in nine southern African countries

Disability and poverty in developing countries : a snapshot from the World Health Survey

MITRA, Sophie
POSARAC, Aleksandra
VICK, Brandon
April 2011

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This paper outlines the economic and poverty situation of working-age persons with disabilities and their households in 15 developing countries. Using data from the World Health Survey, the study presents estimates of disability prevalence, individual-level economic well-being, household-level economic well-being, and multidimensional poverty measure. Detailed appendices are provided to support the results of the study. This paper is useful for people interested in the social and economic conditions of people with disabilities in developing countries
Social Protection Discussion Paper No 1109

Strategic funding : strengthening partnernship for real development

HEALTHLINK WORLDWIDE
June 2010

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'This learning paper considers how strategic funding allows community based and non-governmental organisations the flexibility to develop their responses to HIV and AIDS; it creates the space for organisational development to enable those changes and for organisations to learn from, and share with, each other'

HIV decline in Zimbabwe due to reductions in risky sex?|Evidence from a comprehensive epidemiological review

GREGSON, Simon
et al
April 2010

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This article presents research which assessed the contributions of rising mortality, falling HIV incidence and sexual behaviour change to the decline in HIV prevalence in Zimbabwe. It comprised of a comprehensive review and secondary analysis of national and local sources on trends in HIV prevalence, HIV incidence, mortality and sexual behaviour in the period 1985 - 2007. The findings provide the first convincing evidence of an HIV decline accelerated by changes in sexual behaviour in a southern African country, nevertheless, in 2007 one in seven adults in Zimbabwe was still infected by a life-threatening virus and mortality rates remained at crisis point

National response to disability and HIV in Eastern and Southern Africa

HANASS-HANCOCK, Jill
GRANT, Kitty
February 2010

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Although people with disabilities are often at increased risk of exposure to HIV, this policy brief outlines that less than half of the national strategic plans in Eastern and Southern Africa recognise disability as an issue of concern. Recommendations are provided to governments and civil society on how to address the issue effectively. This policy brief would be useful to people interested in HIV policies in Africa

Disability in national strategic plans on HIV and AIDS : a review on the national response to the interrelations of disability and HIV in eastern and southern Africa|Final report

GRANT, Kitty
STRODE, Ann
HANNASS-HANCOCK, Jill
December 2009

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This report examines national AIDS and HIV strategic plans (NSPs) in eastern and southern Africa and includes findings, discussions and best practice examples on the integration of disability throughout the countries. "Generally, the findings of the report show that less than 50% of the countries in Eastern and Southern Africa recognise disability as an issue of concern, or specifically recognise the vulnerability of people with disabilities to HIV and AIDS within their NSPs. Furthermore, it found that even where countries have recognised disability as an issue, there is limited specific guidance within the NSP on HIV-related service provision to meet the needs of people with disabilities. Only one country, South Africa, showed extensive integration of disability into the various focus areas of its NSP." The report concludes with recommendations and provides detailed appendices of national reports for each country surveyed

The loss of the middle ground : the impact of crises and HIV and AIDS on ‘skipped-generation’ households

SAMUELS, Fiona
WELLS, Jo
November 2009

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This project briefing presents key findings and policy recommendations from a study conducted in the East and Southern African region that aimed to improve understanding on how these households cope during emergencies. A literature review was followed by country case studies in Northern Uganda and Zimbabwe in which members of self-help group households, both older people and children, and organisations involved in the emergency response were interviewed. Recommendations are provided on how emergency preparedness and response can better meet the needs of such households in the region
Project briefing, No 33

The efficacy of community based rehabilitation for children with or at significant risk of intellectual disabilities in low and middle income countries : a review

ROBERTSON, Janet
EMERSON, Eric
HATTON, Chris
August 2009

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"The aim of the present review is to summarise evidence regarding the efficacy of CBR in relation to one particular ‘high risk’ group of disabled children; children with intellectual disabilities (ID)...Only 10 studies were identified for inclusion in the review of research on the effectiveness of CBR for children and adolescents with ID and these are summarised in Appendix Two. An examination of reviews on the effectiveness of CBR for all people with disabilities points to two main reasons for this low level of evidence. Firstly, CBR has not been the subject of a significant amount of rigorous evaluation. Secondly, children and adolescents with ID have not been the recipients of significant amounts of CBR. We will discuss the reviews on the effectiveness of CBR generally and indicate what they say about ID before outlining the extremely small amount of information available on the effectiveness of CBR for children and adolescents with ID"
CeDR Research Report 2009:4

Migration as a form of workforce attrition : a nine-country study of pharmacists

WULIJI, Tana
CARTER, Sarah
BATES, Ian
April 2009

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"There is a lack of evidence to inform policy development on the reasons why health professionals migrate. Few studies have sought to empirically determine factors influencing the intention to migrate and none have explored the relationship between factors. This paper reports on the first international attempt to investigate the migration intentions of pharmacy students and identify migration factors and their relationships"

Gender, HIV and the church : a case study

MARSHALL, Mandy
OUEDRAOGO, Idrissa
SANDILANDS, Maggie
March 2009

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This case study describes a two-year pilot project to engage local churches in reflecting on gender issues with local faith-based organisations in Zimbabwe and Burkina Faso. It includes the outline for a workshop on gender and gender roles

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