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‘I felt pain. Deep pain…’: Experiences of primary caregivers of stroke survivors with aphasia in a South African township

MASUKU, Khetsiwe P.
MOPHOSHO, Munyane
TSHABALALA, Muziwakhe
2018

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Background: Aphasia is an acquired impairment in language and in the cognitive processes that underlie language. Aphasia affects the quality of life of the person with aphasia (PWA) and his or her families in various ways in diverse contexts and cultures. It is therefore important that speech language therapists understand how different contextual and cultural factors may mediate experiences.


Purpose: The aim of the study was to describe the caregiving experience of female caregivers of PWA residing in Tembisa, a township situated in the east of Johannesburg.


Method: Qualitative, semi-structured interviews were conducted with primary caregivers of PWA. Purposive sampling was used to recruit 14 primary caregivers of PWA who were daughters, daughters-in-law or wives of the PWA. The interviews were conducted in participants’ first language and analysed by the researcher, who is proficient in isiZulu. Data were analysed according to the principles of thematic analysis.


Results: Findings indicated that caregivers are unfamiliar with aphasia and the support available to them. Participants experienced frustration and found communication to be challenging owing to their lack of communication strategies. The participants’ experiences reflected their context-specific experiences, such as feminisation of caregiving, barriers to healthcare, the influence of low health literacy and contextual perspectives on stroke and aphasia.


Conclusions: Contextual factors of caregivers in Tembisa have an influence on the experiences between caregivers and PWA, the feelings of individuals and families and health-seeking behaviours of individuals and families.

Disability and social change : a South African agenda

WATERMEYER, Brian
et al
2006

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This book has been produced to promote the social rights of people with disabilities. It presents extensive research on the South African context of disability and society and draws upon contributions from a diverse range of specialists in the field. A key aim of the text is to unite the disability movement in South Africa through research discourse, as a means to drive processes of social change. Key sections of the book cover: theoretical approaches to disability; governmental and societal responses to disability; disability and education; disability poverty and social security; disability and service provision; disability and human spaces. This book would be of interest to anybody working in the fields of disability, development and social inclusion

Community-based rehabilitation : new challenges

RULE, Sarah
LORENZO, Theresa
WOLMARANS, Milani
2006

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The chapter reports on two CBR programmes in South Africa: the CBR Education and Training for Empowerment (CREATE) programme in Pietermaritzburg and the CBR partnership programme between Disabled People South Africa (DPSA) and the provincial Department of Health in Mpumalanga. It explores the implementation of CBR as a strategy for community development, the development of grassroots workers and challenges facing CBR
Chapter 20 from ‘"Disability and social change : a South African agenda " edited by WATERMEYER, Brian et al

Community television for the poor : a scoping study. Final technical report. The one to watch, literally?

BACHELOR, S
SCOTT, N
EASTWICK, G
et al
2005

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A technical report on the use of community television. The purpose of the research was to explore the opportunities presented by digital convergence for locally produced and broadcast integrated television and radio for development education, development communication strategies and local content capture among the poor. The research confirms the starting premises of the research, that community radio is known to have strong developmental benefits; that there is a strong trend towards television, even among the poor; and that there will be new opportunities for audiovisual media presented by digital convergence. The report concludes that community television could play a huge role in empowering local communities

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