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Psychosocial Functioning in Children with Dyslexia: Perspectives from Parents, Counsellors and Teachers

BAJAJ, Deepali
BHATIA, Sangeeta
2020

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Purpose: The study aimed to understand the issues and challenges encountered by various stakeholders (teachers, parents and counsellors) working with children with dyslexia in the inclusive school context.

 

Method: Using purposive and snowball sampling, 20 teachers, 20 counsellors and 20 parents (mothers) of children with specific learning disability (dyslexia) were selected from 8 inclusive schools in Delhi. A qualitative approach was adopted, with a semi-structured interview schedule to elicit responses. Qualitative thematic analysis was used as a framework for data analysis.

 

Results: Parents experienced negative feelings due to lack of awareness and acceptance of dyslexia. Counsellers felt parental ignorance led to delay in assessment and remediation. Parents and counsellors perceived lack of support from schools and lack of empathy among teachers. Teachers confessed they lacked training to deal with dyslexic learners, were unaware of policies and concessions for them, and were currently overburdened with their workload.

 

Conclusion: There is a need to hold psycho-educational workshops for parents in order to increase their awareness, and conduct training workshops (pre-service and in-service) for teachers to increase awareness and build empathy. Schools should provide in-house assistive services such as assessment and remediation, and redefine the goals of education to focus on the holistic skills of children.

‘Education for All’ under lockdown: the path ahead for inclusion of children with disabilities

NATH, Seema
June 2020

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During the COVID-19 pandemic, schools around the world experience extraordinary times and as education moves online, those who have historically faced marginalisation find themselves facing new challenges to access education. The situation is disproportionately affecting those within marginalised communities in India and across the globe. In education, these disadvantages are amplified for learners with disabilities belonging to low socio-economic backgrounds. Lessons to be learned from schools that are incorporating the principles of inclusion and social justice while approaching these challenges are highlighted.

Association of anxiety and depression with physical and sensory functional difficulties in adults in five population-based surveys in low and middle-income countries

WALLACE, Sarah
MACTAGGART, Islay
MORGON BANKS, Lena
POLACK, Sarah
KUPER, Hannah
June 2020

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The aim of this study was to assess the association between anxiety and depression with physical and sensory functional difficulties, among adults living in five low and middle-income countries (LMICs).

A secondary data analysis was undertaken using population-based disability survey data from five LMICs, including two national surveys (Guatemala, Maldives) and 3 regional/district surveys (Nepal, India, Cameroon). 19,337 participants were sampled in total (range 1,617–7,604 in individual studies). Anxiety, depression, and physical and sensory functional difficulties were assessed using the Washington Group Extended Question Set on Functioning. Age-sex adjusted logistic regression analyses were undertaken to assess the association of anxiety and depression with hearing, visual or mobility functional difficulties.

The findings demonstrated an increased adjusted odds of severe depression and severe anxiety among adults with mobility, hearing and visual functional difficulties in all settings (with ORs ranging from 2.0 to 14.2) except for in relation to hearing loss in India, the Maldives and Cameroon, where no clear association was found. For all settings and types of functional difficulties, there was a stronger association with severe anxiety and depression than with moderate. Both India and Cameroon had higher reported prevalences of physical and sensory functional difficulties compared with Nepal and Guatemala, and weaker associations with anxiety and depression

Voices of people with disabilities during the COVID19 outbreak

INTERNATIONAL DISABILITY ALLIANCE (IDA)
May 2020

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A collection of stories from people with various disabilities across the globe sharing their experiences with the COVID-19 outbreak and pandemic risk reduction strategies implemented by their governments. Some stories are written by IDA and some are external.

Examples are:

  • How absence of transport can be fatal: A Story from Uganda
  • In Uganda, a Deaf man loses his leg after being shot during curfew
  • Voices of Mexico: Disability and COVID-19 | Voces de Mexico: Discapacidad y COVID-19
  • COVID-19 in Mexico: the experience of deafblind children told by their mothers (Espanōl)
  • Reaching Persons with Deafblindness
  • COVID-19 and The Forgotten People (Indonesia)
  • When accessible information is far from a reality: Zimbabwe during COVID-19
  • The experience of a blind woman in Kenya under COVID-19 outbreak
  • Being a single mother of two persons with disabilities under COVID-19 (South Africa)
  • Autistic students in South Africa: how has their life changed?
  • The Story of Rose Rokiatou: COVID-19 Pandemic and Financial Vulnerability of Persons with Disability in Mali
  • COVID-19 in Romania: Life-threatening situations reported
  • COVID-19 in Nepal: What are the challenges for indigenous persons with disabilities?
  • COVID-19 in India : Technology can be your best friend or worst enemy

Disability, CBR and inclusive development (DCID), Vol 31, No 1 (2020)

2020

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Original Research Articles

  • Measuring Stigma related to People with Albinism in Tanzania: A Cultural Validation Study of the EMIC-CSS and SDS among Adults
  • Community-Based Screening and Early Intervention for Birth Defects and Developmental Disabilities: Lessons from the RBSK Programme in India
  • Management of Undergraduate Community-Based Rehabilitation Programmes in the Philippines: A Cross-Sectional Survey
  • Physical Activity, Enjoyment and Quality of Life among Institutionalised Older Adults in Malaysia: A Cross-Sectional Study

 

Brief reports

  • Monitoring the Internal Training Load and Surrogate Measures in a Senior Female Paralympic Athlete with Spinal Cord Injury: A Case Study
  • Spinal Postures of Children seated on the floor in Schools in Ahmedabad District, India
  • Accessing Healthcare in Ghana: Challenges Encountered and Strategies Adopted by Persons with Disabilities in Accra

Guidelines prepared by DEPwD for safety of Divyangjan during lockdown period

The Ministry of Health and Family Welfare, Government of India
March 2020

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In view of the pandemic situation due to the outbreak and rapid spread of COVID19 across the world, the public health has been endangered both nationally and internationally, necessitating urgent measures on the part of both the Central and State Governments, aimed at containing the spread of the disease. The Government of India has declared the situation arising out of COVID 19 as a National Disaster and necessary guidelines have been issued under the National Disaster Management Act, 2005.

Integrating geospatial data and measures of disability and wealth to assess inequalities in an eye health survey: An example from the Indian Sunderbans

MOHANTY, Soumya
et al
December 2019

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The Sunderbans are a group of delta islands that straddle the border between India and Bangladesh. For people living on the Indian side, health services are scarce and the terrain makes access to what is available difficult. In 2018, the international non-governmental organisation Sightsavers and their partners conducted a population-based survey of visual impairment and coverage of cataract and spectacle services, supplemented with tools to measure equity in eye health by wealth, disability, and geographical location. Two-stage cluster sampling was undertaken to randomly select 3868 individuals aged 40+ years, of whom 3410 were examined

 

Int J Environ Res Public Health. 2019 Dec; 16(23): 4869

doi: 10.3390/ijerph16234869

India’s disability estimates: Limitations and way forward

RAKHI, Dandona
et al
September 2019

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With India preparing for the next decennial Census in 2021, disability estimates and data collection methodology between the Census 2011 and the most recent population-level survey for India and its states were compared, to highlight the issues to be addressed to improve robustness of the disability estimates in the upcoming Census.

 

Data from the Census 2011 and from two complementary nationally representative household surveys that covered all Indian states with the same methodology and survey instruments–the District-Level Household Survey-4 (DLHS-4, 2012–2013) and the Annual Health Surveys (AHS three rounds, 2010–11, 2011–12 and 2012–13) were used. Data from DLHS-4 and AHS 2012–13 round were pooled to generate estimates for the year 2012–13. Data collection methodology between the sources was compared, including the review of definitions of each type of disability. The overall, mental, visual, hearing, speech, and movement disability rate (DR) per 100,000 population were compared between the sources for India and for each state, and the percent difference in the respective rates was calculated
 

Disability Inclusion Helpdesk Report : What works in mental health services and community interventions to support people with mental health conditions and psychosocial disabilities: a rapid evidence review

MILLS, China
AHLENBÄCK, Veronica
HAEGEMAN, Emma
September 2019

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Summaries on the findings from the following queries:

What works to develop quality services and community interventions to support people with mental health conditions and psychosocial disabilities and wellbeing for all, across the lifecycle?

What are examples of effective interventions in this area?

Barriers and Facilitators to Community Ambulation in Maharashtra, India: Perception of Individuals with Stroke

SHAIKH, Atiya A
ATRE, Janhavi Jagdish
2019

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Purpose: The study aimed to understand the self-perceived environmental barriers/ facilitators to community ambulation among stroke survivors in Maharashtra State, India.

 

Method: The Facilitators and Barriers Survey /Mobility Questionnaire (FABS/M) was used to collect information from a convenience sample of 50 individuals with stroke. Data was analysed using descriptive statistics in Statistical Package for Social Sciences (SPSS) 22.00.

 

Results: Curbs, gravel surfaces, rain, noise, and crowd were marked as barriers by 56%, 58%, 52%, 36% and 50% of the participants, respectively. Ramps, elevators, and flat surfaces were reported as facilitators by 42%, 70% and 82% of the participants, respectively. Participants also mentioned the absence of automatic doors and escalators in community areas (92% and 88%), specialised exercise equipment, handrails and specialised bathroom equipment at home (92%, 50% and 52%), and inaccessibility to public places (50%), as barriers to easy mobility. 

 

Conclusions: To enhance community mobility of individuals with stroke, environmental barriers should be reduced and facilitators should be enhanced. The marked absence of facilitators in the environment should be rectified and appropriate steps should be taken to enhance ambulation. 

 

Limitations of the study are the small sample size. Factors like balance, economic status, physical activity of the stroke individuals and severity of stroke were also not considered.

Introduction of Indian Sign Language in Inclusive Education

GOSWAMI, SP
GGR, Anita Ravindra
SHARMA, Kanchan
2019

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Purpose:  The predominant mode of human communication is speech, and whenever it is hindered, humans resort to the tactile-kinaesthetic mode.  Use of sign language by persons with speech-hearing impairments is a classic example of such adaptation. The Demonstration School at the Regional Institute of Education in Mysuru, South India, undertook training of typically-developing students in Indian Sign Language (ISL), so as to facilitate communication and instruction of students with hearing impairment who are in mainstream learning environments. 

 

Method: Training in ISL was imparted to140 typically-developing students in higher primary classes. Twenty-four 40-minute sessions were conducted over a month. After theoretical orientation in logical bases of manual communication, practical training commenced with elementary manual alphabets, progressed through essential daily-life vocabulary necessary to construct simple sentences and carry out general conversations, and culminated in signing the Indian National Anthem.

 

Results: Typically-developing students gained primary benefits such as improved awareness about non-verbal communication modes, mastery of basic skills in ISL, and positive attitudes towards sign languages.

 

Conclusion: The UNCRPD 2006 authorises sign language as the linguistic identity of the Deaf, and encourages the use of sign language in learning environments. Future research should add to the findings on secondary benefits in the form of scholastic and sociometric advantages derived by students with hearing impairments who receive instructions in sign language in mainstream learning environments.

 

Disability, CBR and inclusive development (DCID), Vol 30, No 4 (2019)

2019

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Original Research Articles

  • The Cultural Validation of Two Scales assessing Albinism - related Social Stigma among High School Students in Tanzania
  • Increasing Attention and Mood of Post-Stroke Clients using Natural Restorative Environment
  • Psychosocial Functioning in Children with Dyslexia: Perspectives from Parents, Counsellors and Teachers
  • Association of Occupational Stress and Emotional Intelligence among Physiotherapists in Malaysia: A Cross-sectional Study
  • Introduction of Indian Sign Language in Inclusive Education
  • Barriers and Facilitators to Community Ambulation in Maharashtra, India: Perception of Individuals with Stroke

 

Brief reports

  • An Educational Intervention to Promote Access to Rehabilitation for People Living with HIV

Disability, CBR and inclusive development (DCID), Vol 30, No 3 (2019)

2019

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Original Research Articles

  • Quality of Life of Persons with Disabilities in Southern Nations, Nationalities, and Peoples’ Region, Ethiopia
  • Health-Related Quality of Life of Wheelchair Fencers, Sedentary People with Disability and Conventional Fencers in Brazil, Assessed by Short Form 36 (SF-36)
  • Environmental Accessibility Assessment for People with Vision, Hearing and Speech Disabilities in Mongolia
  • Impact of Exercise Training on Depression among People with Type 2 Diabetes Mellitus: A Narrative Review
  • Intersections of Disability and Gender in Sports: Experiences of Indian Female Athletes
  • ‘Enabling Access’: A Pilot Study on Access and Use of Assistive Products in the Northern Province, Sri Lanka

 

Brief reports

  • Happiness and Resilience among Young Physically Disadvantaged Employees in India: A Pilot Study
  • Barriers Faced by Persons with Disabilities in Formal Employment in India

Intersections of Disability and Gender in Sports: Experiences of Indian Female Athletes

SETH, Nainika
DHILLON, Megha
2019

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Purpose: This qualitative study aimed to compare the experiences of two groups of female athletes - those with and without visual disability- who participate in sports.

 

Method: In-depth interviews were conducted with 16 athletes and thematic analysis of the data was done.

 

Results: Both groups identified various benefits of engaging in sports, including increased fitness and higher self-esteem. Para-athletes felt that sports provided them with opportunities to break stereotypes associated with disability. Both groups also identified certain barriers impeding sports participation, the most pervasive of these being poor infrastructure.  In terms of differences, athletes without disability were initiated into sports at a much earlier age, had enjoyed more freedom in choosing their sport, and were given more family support than the para-athletes.

 

Conclusion: An analysis of the findings in terms of the Self-Determination Theory (Deci & Ryan, 2002) indicated that needs for competence, autonomy and relatedness were being more wholly met through sports-related experiences for athletes without disability than for the para-athletes.

 

Implications: Current conditions within para-sport need to be improved by providing more sporting choices to athletes with disability, easier access to sports opportunities at an earlier age, development of self-efficacy with regard to sports, challenging of stereotypes, and generating awareness among parents that sports can be a viable and safe option for their daughters.

State of the Education Report for India 2019: Children with disabilities

RAMCHAND, Mythili
et al
July 2019

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The past twenty years in India have seen significant legal and political commitments towards universalization of education and the right to education. This report documents the considerable effort undertaken in the country to protect the right to education of children with disabilities (CWD) and outlines what remains to be done to achieve its full realization. 

The report is based on extensive research of national and international literature and attempts to provide comprehensive information on the current status of education of CWDs, evidence of achievements and continuing concerns. It extensively draws upon a series of thematic research studies between 2017 and 2018. 

The report has taken a participatory approach with contributions, in the form of case studies, from specialists and those working directly in the field. 

NOTHING ABOUT US WITHOUT US! Cooperation with organisations of persons with disabilities in community programmes A learning guide

LIGHT FOR THE WORLD
June 2019

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Good practices of DPO (Organisations of Persons with Disabilities) involvement in Light for the World programmes are analysed and successful ways of supporting DPO empowerment are reported. The paper is based on interviews and focus group discussions with organisations of persons with disabilities (DPOs), other project partners and Light for the World programme colleagues in Bolivia, Ethiopia, Mozambique, Northeast India and South Sudan

Disability, CBR & Inclusive Development (DCID), 2019, Vol. 30 No, 2

2019

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Research articles are:

  • Stereotypes about Adults with Learning Disabilities: Are Professionals a Cut Above the Rest?
  • Perceptions of Primary Caregivers about Causes and Risk Factors of Cerebral Palsy in Ashanti Region, Ghana
  • Changes in Social Participation of Persons Affected by Leprosy, Before and After Multidrug Therapy, in an Endemic State in Eastern India
  • Users’ Satisfaction with Assistive Devices in Afghanistan
  • Perceived Benefits and Barriers to Exercise among Physically Active and Non-Active Elderly People

Brief reports are:

  • The GRID Network: A Community of Practice for Disability Inclusive Development
  • A Preliminary Report of the Audiological Profile of Hearing Impaired Pupils in Inclusive Schools in Lagos State, Nigeria

An experiential report is given:

  • MAANASI - A Sustained, Innovative, Integrated Mental Healthcare Model in South India

 

Sightsavers' approach to making health services inclusive for everyone

Sightsavers
April 2019

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Sightsavers has produced a new film that sets out our work to make health care services accessible and inclusive for everyone. It focuses on our programmes in Bhopal, India and Nampula, Mozambique. This highlights how we work and share learnings globally, but also shows how programmes can be made locally relevant by working with partners with direct experience.

The film showcases some of the people who work hard to make our inclusive health programmes a success, from Sightsavers experts and government health workers to leaders of disabled people’s organisations.

To find out more our inclusive health work and how we are developing best practice in terms of inclusive health programmes, visit our website: https://www.sightsavers.org/disability/health/

India inclusion summit 2018

March 2019

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India Inclusion Summit is a community driven initiative that aspires to build an Inclusive India by 2030. It is an annual event that began in 2012 to create awareness about disabilities and the need for Inclusion. The event brings together thought leaders and unsung heroes from the field of disability and inclusion to deliberate, discuss and drive change in our society.

 

Videos of some of the presentations are available including:

My Journey and ‘Deaf gain’ing an accessible India:  Vaibhav Kothari (18 mins), signed

You’re not just special. You’re Special Edition:  SwarnaLatha (11 mins)

Don’t let disability come in the way of things you love: Zoyeb Zia (10 mins), signed

The Adventure of Autism and quest to serve each other: Rupert Isaacson (20 mins), signed

Making a billion people read despite their disabilities: Brij Kothari (21 mins), signed

The ability needed to be whoever you want to be: Devika Malik (13 mins), signed

Everyone has something to give: Suchitra Shenoy (11 mins), signed

From being inclusive to doing acts of inclusion: Yetnebersh Niguissie (12 mins), signed

Finding your missing piece: Jerry White (18 mins), signed

Listening to the voice within that opens infinite possibilities: Rajni Bakshi (15 mins), signed

Being a mother is the most satisfying role: Suhasini Maniratnam (21 mins) signed

 

 

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