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Disability and global health: Special issue of International Journal of Environmental Research and Public Health

KUPER, Hannah
POLAK, Sarah

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Papers included in this special issue are:


WHO/ILEP technical guide on community-based rehabilitation and leprosy


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This technical guide provides a reorientation and familiarisation tool for managers of leprosy projects and programmes. The analysis includes an outline of the broad objectives of CBR, the roles and tasks of programme managers, and the responsibilities of community workers. This resource would be useful for anyone with an interest in disability and development

Re-enablement of the neurologically impaired hand - 2 : surgical correction|Report of a surgical workshop held at Green Pastures Hospital and Rehabilitation Centre, November 2004, Pokhara, Nepal

December 2006

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"In this paper, the common surgical procedures (of neuropathic conditions of the hand) are discussed. The procedures for uncomplicated neurologically impaired hand with paralysis of ulnar, median or radial nerve paralysis will be discussed first, followed by surgical interventions for the impairments that may have developed secondary to the paralysis or the surgery. Recommendations for best practice and further research will be given"
Leprosy Review, Vol 77, Issue 4

The participation scale : measuring a key concept in public health v4.1

et al
February 2006

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This is a report of a study, carried out in Nepal, India and Brazil, to develop a scale to measure (social) participation for use in rehabilitation, stigma reduction and social integration programmes. The report concludes that the Participation Scale is reliable and valid to measure client-perceived participation in people affected by leprosy or disability

The effects of the stigma of leprosy on the income generation of leprosy affected people in the Terai area of South East Nepal


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[Author's abstract] This study explores the effect of stigma on the income generation of people affected by leprosy in the southeast Terai area of Nepal. Semi-structured interviews were conducted to explore experiences of stigma and the effect on income generation. Results showed a negative effect on income generation - with employment being lost as a direct result of stigma in several cases. The negative physical effects of the disease were for many the main reason for lost income, or employment

Risk factors for participation restriction in leprosy and development of a screening tool to identify individuals at risk

et al
December 2005

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This paper explores risk factors for participation restrictions experienced by people affected by leprosy. The objective was to develop a screening tool to identify individuals at risk. An initial round of qualitative fieldwork in eight centres in Nepal, India and Brazil identified 35 potential risk factors for participation restriction. This was further assessed through quantitative fieldwork in six centres in India and Brazil. In all, 264 individuals receiving leprosy treatment or rehabilitation services made a retrospective assessment of their status at time of diagnosis. Their level of participation restriction was assessed using the Participation Scale, and regression analysis identified risk factors for participation restriction. Four consolidated items were identified as the basis for a simple screening tool to identify individuals at risk: physical impact of leprosy, an emotional response to the diagnosis, female gender and having little or no education. Such a tool may form the basis for a screening and referral procedure to identify newly diagnosed individuals at risk of participation restrictions and the need of actions that may prevent such restrictions
Leprosy Review, Vol 76, Issue 4

STEP : an intervention to address the issue of stigma related to leprosy in southern Nepal

December 2005

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"This paper focuses primarily on the extent to which a Stigma Elimination Programme (STEP) affected the social participation of people affected by leprosy in southern Nepal. The Participation Scale (popularly known as The P Scale) was applied to compare leprosy affected people who participated in STEP groups with a control group comprising leprosy affected people who lived in villages where STEP had not been implemented"
Leprosy Review, Vol 76, Issue 4


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