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Leaving no-one behind: Building inclusive social protection systems for persons with disabilities

KIDD, Stephen
et al
February 2019

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How to make social protection systems and schemes more inclusive of persons with disabilities is examined. Social protection can play a key role in empowering persons with disabilities by addressing the additional costs they face, yet the majority of persons with disabilities are currently excluded from schemes.

The report identifies a wide range of barriers persons with disabilities experience in accessing social protection to be overcome. It calls for better data on disability, disability-specific and old age pension schemes and expanded coverage; adapting communications about social protection schemes; and improving disability assessment mechanisms. The research underpinning the report comprised involved a review of the literature, an analysis of household survey datasets, and consultations with key stakeholders and persons with disabilities in seven low- and middle-income countries: Brazil, India, Kenya, Mauritius, Rwanda, South Africa and Zambia.

Topics covered include:

  • Types of social protection schemes for persons with disabilities
  • Levels of investment in social protection for persons with disabilities
  • Coverage of persons with disabilities by social protection
  • Impacts of social protection on persons with disabilities
  • Barriers to accessing social protection and measures to address them
  • Links between social protection schemes and other public services

Leaving no-one behind: Building inclusive social protection systems for persons with disabilities

KIDD, Stephen
et al
February 2019

Expand view

This report identifies a wide range of barriers persons with disabilities experience in accessing social protection to be overcome. It calls for better data on disability, disability-specific and old age pension schemes and expanded coverage; adapting communications about social protection schemes; and improving disability assessment mechanisms. The project involved a review of the literature, an analysis of household survey datasets, and consultations with key stakeholders and persons with disabilities in seven low- and middle-income countries: Brazil, India, Kenya, Mauritius, Rwanda, South Africa and Zambia.

Everybody Matters: Good practices for inclusion of people with disabilities in sexual and reproductive health and rights programmes

Van SLOBBE, Caroline
November 2017

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This publication provides introductory chapters from two activists who work to create better opportunities for people with disabilities in Nigeria and India. Subsequently, the challenges that organisations worldwide have encountered whilst improving the access to and knowledge of sexual and reproductive health and rights for people with disabilities are presented. Ways in which they managed to find solutions and the results achieved are reviewed. Some cases show the importance of a more personal approach whilst others emphasise the advantage of changing systems and policies. Different regions, types of disabilities and various SRHR-topics are reflected in these stories. All cases provide lessons learnt that contribute to a set of recommendations for improved responses. The closing chapter highlights the challenges, solutions, and ambitions that are presented and lead up to a concise overview of recommendations.  

Good practice examples include:

A shift in SRH programming (Nepal)

Breaking Barriers with performance art (Kenya)

Her Body, Her Rights (Ethiopia)

People with disabilities leading the way (Israel Family Planning Association)

Best Wishes for safe motherhood (Nepal)

It’s my body! (Bangladesh)

Calling a spade a spade (Netherlands)

Four joining forces (Colombia)

Change agents with a disability (Zimbabwe)

Tito’s privacy and rights (Argentina)

Sign language for service providers (Kenya)

Mobile for development : transforming global healthcare through mobile technology

THEVATHASAN, Vanessa
GRADZEWICZ, Agnes
RUETZEL, Sonja
2015

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This paper outlines the need for greater connectivity & accessibility in less developed countries. Following this, the authors present the benefits of various different ‘mHealth’ solutions, presented through case studies. The report concludes by outlining some of the constraints holding back greater ‘mHealth’ innovation, including financing and sustainability issues

Examining factors impacting community based rehabilitation in a refugee camp : an exploratory case study

WEE, Joy
2010

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"This paper examines factors that impact the ability of refugees within a refugee camp in Kenya to participate in their communities through community-based rehabilitation (CBR). Exploratory case study design was employed. Data triangulation combined observations from teaching encounters, clinics, available reports, individual interviews, and focus groups involving participants from various sectors within the refugee camp. Themes arising from this study reveal that persons with disability and their families are disadvantaged because of issues relating to distribution systems and physical access, discrimination, security, access to information, and lack of community awareness of the capabilities of persons with disability. The existing emergency mode of operation appears to perpetuate disability. Barriers for persons with disability were reported by all participants from differing sectors in the refugee camp. Though many barriers exist, CBR seems feasible and ongoing efforts should be encouraged and supported in the refugee camp setting"
Asia Pacific Disability Rehabilitation Journal, Vol 21, No 2

Improving the education response to HIV and AIDS : Lessons of partner efforts in coordination, harmonisation, alignment, information sharing and monitoring in Jamaica, Kenya, Thailand and Zambia

VISSER-VALFREY, Muriel
March 2008

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This report presents the overall findings from case study exercises carried out in Jamaica, Kenya, Thailand and Zambia to examine the quality, effectiveness and coordination of the education sector's response to the HIV epidemic. The report also makes recommendations for improving coordination across agencies in support of country-level and global actions. The case studies were carried out by the UNAIDS Inter-Agency Task Team on Education

Factors shaping attitudes towards physical disability and availability of rehabilitative support systems for disabled people in rural Kenya

MONK, Julie
WEE, Joy
2008

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"This study examines the range of attitudes towards persons with physical disability in a rural community in western Kenya. It also evaluates the availability of services for persons with disabilities in the community...The responses suggest that this community may be ready to support increased participation by its members, possibly through a community based rehabilitation programme"
Asia Pacific Disability Rehabilitation Journal, Vol 19, No 1

Pain relieving drugs in 12 African PEPFAR countries : mapping current providers, identifying current challenges, and enabling expansion of pain control provision in the management of HIV/AIDS

HARDING, Richard
et al
January 2007

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This study aims to identify current opioid prescribing services and regulatory bodies within 12 African PEPFAR (Presidents Emergency Plan for AIDS Relief ) countries, and to examine the barriers to, and appraise the potential for, expansion in the number of opioid providers, for people with HIV and AIDS according to the World Health Organization pain ladder. It concludes that while there are common issues raised by services and International Narcotics Control Board competent authorities, it is clear that these key stakeholders have concerns regarding the potential roll-out of opioids

Changing children's lives : experiences from memory work in Africa

HEALTHLINK WORLDWIDE
2007

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This publication aims to share learning from the memory work that Healthlink Worldwide and six other NGOs across sub-Saharan Africa have developed in response to the HIV epidemic. The focus is on learning and analysis in the theory and practice of memory work as well as demonstrating its effectiveness as an HIV response. It is aimed at international and national level policy makers who design and support HIV initiatives, as well as practitioners, who implement responses to the HIV epidemic directly at a local and national level

Addressing violence against women in HIV testing and counselling

WORLD HEALTH ORGANIZATION (WHO)
2006

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This is a summary and recommendations from an international consultation co-convened by the WHO departments of Gender, Women and Health (GWH) and of HIV & AIDS to identify and review promising strategies or good practices to support women who may fear or experience violence as a consequence of HIV testing and/or HIV status disclosure; and develop recommendations to guide programmes and policies related to HIV testing and counselling, in light of current strategies to expand access to these and related services

Delivering antiretroviral therapy in resource-constrained settings : lessons from Ghana, Kenya and Rwanda

RITZENTHALER, Robert
July 2005

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This publication is aimed at governments, development partners, and public and private health facilities seeking to provide ART as part of comprehensive care and support for people living with HIV and AIDS. It describes valuable lessons learned from several ART learning sites throughout Ghana, Kenya and Rwanda. By the end of April 2005, more than 5,800 new patients had initiated ART through this treatment and care initiative. Strategies, challenges and key recommendations are presented and comments by national and community leaders, providers and patients appear throughout the text to give readers a sense of the programs as they progressed. The lessons may not have direct relevance to all health facilities providing or planning to provide ART; it should be used or adapted depending on the epidemiological, political, social, cultural and economic context of each setting

Disability and rehabilitation status : review of disability issues and rehabilitation services in 29 African countries

GIANNELLLI, Massimo
DEEPAK, Sunil
Eds
December 2004

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This report provides information related to disability issues and rehabilitation services, provided by 29 countries of Africa, and includes demographics, the presence of national policies and NGOs. The report is divided into the following three parts: a global review of information, the country profiles and a summary table of the information provided in individual countries. This report is useful for people interested in disability and rehabilitation services in Africa

Palliative care in Sub-Saharan Africa : an appraisal

HARDING, Richard
HIGGINSON, Irene
2004

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This report was written from the belief that palliative care is, and will be for the forseeable future, an essential component in the continuum of managing HIV/AIDS in sub-Saharan Africa. There is now a wealth of experience in sub-Saharan Africa about the ways in which palliative care can be delivered both affordably and effectively. However, there remains a lack of properly documented evidence and research to demonstrate the importance of this work and promote its development. This report provides a review of existing evaluations of palliative care projects in sub-Saharan Africa with an emphasis on isolating the factors that lead to sustainability, local ownership and scaling up; the role of palliative care in the management of HIV/AIDS and how to integrate palliative care and Anti-Retroviral Therapy (ART); primary health based care projects in two countries, Kenya and Malawi, that could provide lessons for the implementation of palliative care; lessons from other parallel programmes which mirror palliative care delivery, for example, tuberculosis programmes, and primary care programmes with good links to local clinics and hospitals, and community mobilization and empowerment projects linked to health facilities. In this way it contributes to the effort of providing an evidence base to demonstrate the importance of palliative care and provides a source of reference for policy makers, practitioners, donors and researchers

Women's stories, women's lives : experiences with cervical cancer screening and treatment

BOYD, Anne R
BURNS, Michele
Eds
2004

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This publication is a collection of stories based on interviews with women in developing countries who participated in ACCP programmes. These women's stories illustrate the unnecessary suffering cervical cancer can cause women and their families and how prevention programs can save women's lives. ACCP projects have focused on regions in which cervical cancer incidence and mortality are highest: sub-Saharan Africa, Latin America and South Asia, and have also focused on reaching women in their 30s and 40s

Adherence to antiretroviral therapy in adults : a guide for trainers

HORIZONS. Population Council
2004

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Successful HIV therapy requires 95% adherence. As antiretrovirals are becoming more widely available and an increasing number of ARV programmes are launched in developing countries, HIV patients need to be helped to strictly follow a treatment plan. This manual, one of the first adherence training tools developed in Africa, has been designed for health professionals in the province of Mombasa, but can be adapted to other contexts. It consists of four modules, each including Power Point presentations, suggested activities and additional informative material. Module 1 provides basic information on adherence, highlighting the consequences of non-adherence. Module 2 deals with all aspects of patient preparation for adherence and module 3 aims to provide trainees with specific skills in preparatory counseling for patients prior initiating ARV treatment. Finally, module 4 is designed to help health care providers assist patients during treatment

Evaluating the impact of a community-based rehabilitation intervention

HARTLEY, Sally
2003

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This project evaluation summarizes the impact of community-based action by local women’s groups to improve the communication ability and quality of life of disabled children with communication problems. The project was designed to increase the present knowledge concerning appropriate interventions for children with communication problems who live in low-income countries. This report is useful to anyone interested in community-based nterventions for children with communication problems

HIV/AIDS and early childhood [whole issue]

BARTLETT, Kathy
ZIMANYI, Louise
Eds
December 2002

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This is one of the few publications solely dedicated to early childhood and HIV/AIDS. It contains articles examining the particular experience of the very young child and the social, psychosocial and nutritional impact on their lives in AIDS affected communities. There is also an article about infant feeding practices in Africa. It makes some policy recommendations and the several case studies provide some direct examples of programming in this area

Ancient remedies, new disease : involving traditional healers in incresing access to AIDS care and prevention in East Africa

KING, Rachel
2002

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This report presents three initiatives, in Kenya, Tanzania and Uganda, that have used an integrated approach to HIV prevention and treatment, combining traditional and biomedical health systems. In resource poor countries, traditional healers become part of the solution, helping provide a comprehensive response to the challenges of the disease, particularly when provided with adequate training. The report shows that implementation of programmes of this kind at larger scale could have the potential of bringing appropriate AIDS information and effective treatment to isolated communities at little cost

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