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Missing millions: How older people with disabilities are excluded from humanitarian response

SHEPPARD, Phillip
POLACK, Sarah
McGIVERN, Madeleine
July 2018

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The aim of this study was to explore the experiences of older people with disabilities across a range of humanitarian settings, considering:

  • whether older people with disabilities have additional needs and challenges accessing humanitarian assistance and protection
  • what factors facilitate or limit access by older people with disabilities to humanitarian assistance and protection
  • to what extent is humanitarian response inclusive of older people with disabilities

A systematic literature review of published studies was conducted. Key online humanitarian guidelines were explored to review how far they explicitly address older people with disabilities. Data from six population-based disability surveys comparing the living situation of older people with and without disabilities were analysed. These included databases from two crises-affected populations in Haiti (post-earthquake) and Palestine. Data from four non-humanitarian settings was also reviewed to explore more broadly the situation for older people with disabilities – India, Guatemala, Cameroon and Nepal. Interviews were held with older people with disabilities, members of their families and local key informants in two conflict-affected populations in Ndutu and Mtendeli refugee camps in Western Tanzania, and Donetsk and Luhansk regions of Eastern Ukraine to find out about their experiences. Staff of five international agencies working in humanitarian response were also interviewed. 

 

Findings highlight particular issues facing older people with disabilities in humanitarian crises: more risk escaping from danger;  barriers to accessing social protection and work; barriers to accessing health and rehabilitation services; barriers to accessing food and other essentials; unsuitable housing and poor living conditions;  insecurity and discrimination; threats to dignity and independence; social isolation and loneliness; risks to mental health; and missing from humanitarian response.

 

A table brings together the findings from the different components of the research to show the needs, risks, barriers and enablers for older people with disabilities identified in the research. Recommendations are provided to humanitarian donors, policy makers and practitioners

Exploring the links between water, sanitation and hygiene and disability; Results from a case-control study in Guatemala

KUPER, Hannah
et al
June 2018

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A case-control study was conducted, nested within a national survey. The study included 707 people with disabilities, and 465 age- and sex-matched controls without disabilities. Participants reported on WASH access at the household and individual level. A sub-set of 121 cases and 104 controls completed a newly designed, in-depth WASH questionnaire.

Global Report on the participation of organisations of persons with disabilities (DPOs) in VNR Processes

INTERNATIONAL DISABILITY ALLIANCE
2017

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Within the Stakeholder Group of Persons with Disabilities, a working group was created on the Voluntary National Reviews (VNRs) aimed at raising awareness among Organisations of Persons with Disabilities (DPOs) to engage with their governments in the national consultation processes on SDG implementation, with particular focus on the 2017 44 volunteering countries. The VNR working group are compiling an outcome document reflecting the work that DPOs carried out at the national, regional and global levels. A comprehensive report – called the Global Report on DPO Participation in VNR Processes – will be issued in draft form prior to the HLPF and will be updated afterward with concrete findings. 

The report will showcase the national level DPO work carried out in different regions as well as best practices and challenges, and will serve as a case study for Member States. It will additionally be useful for DPOs as a model to engage with their government. The case study will feature the volunteering countries of Denmark, Italy, Sweden, Nigeria, Togo, Kenya, Ethiopia, Argentina, El Salvador, Peru, Guatemala, Indonesia, Bangladesh, India and Jordan.

Guatemala National Disability Study ENDIS 2016 Report

DONICIO Carlos
GRECH Shaun
Islay MACTAGGART
Jonathan NABER
Dr Ana Rafaela SALAZAR DE BARRIOS
Gonna ROTA,
Sarah POLLACK
April 2017

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The Guatemala National Disability Study (ENDIS 2016) was undertaken to address a need for up to date reliable data on disability in Guatemala.

Through a population based survey:

* To estimate the national disability prevalence among adults and children in Guatemala, and to provide regional estimates for 5 broad regions

* To disaggregate the prevalence of disability in Guatemala by age, sex, type of functional limitation and socio-economic status

* To explore the impact of disability on: poverty, quality of life, participation, health and opportunities to go to school and to work amongst children and adults respectively

Through a qualitative study:

* To explore cultural, ideological, and social interpretations and responses to disability; provide insight into the disability and poverty relationship; and examine social, political, and economic dimensions operating within this relationship.

Who is being left behind in sub-Saharan Africa, Asia and Latin America? 3 reports from ODI

LYNCH, Alainna
BERLINER, Tom
MAROTTI, Chiara
BHAKTAL Tanvi
RODRIGUEZ TAKEUCHI Laura
et al
February 2016

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The commitment to ‘leave no one behind’ has been a key feature of all the discussions on the Sustainable Development Goals (SDGs). Here are three papers setting out the first step to implementing this agenda - the step of identifying marginalised communities. The focus is on two case study countries for each of the three regions, sub-Saharan Africa, Asia, and Latin America and the papers identify gaps in achieving a number of outcomes relating to key SDGs targets for marginalised groups. The paper on Asia highlights people with disabilities in Bangladesh.

Disability, poverty, and livelihoods guide : guidance from Trickle Up

SANSON, Jo
FELIX, Michael
November 2013

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"This guide is intended to encourage and assist organizations seeking to include people with disabilities in their economic strengthening and livelihood programs. It contains lessons for organizations that aim to move households out of poverty, [and] those that seek to economically and socially empower particularly vulnerable members of poor household"

Assessment of election access barriers in Guatemala

SERPE, Lauren
November 2012

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This research report presents the lessons learned from various activities to improve the inclusion of persons with disabilities in the electoral process and future programming needs in Guatemala. Three research activities captured the different perspectives of those working on or affected by inclusion issues: a survey of 250 electoral authorities; six focus groups consisting of persons with disabilities and those who work with persons with disabilities; and six in-depth interviews with leaders of disabled persons organizations (DPOs) with whom IFES had worked during the previous electoral cycle

Promoting good practices to reach personal mobility of persons with disabilities in the metropolitan area of Guatemala

QUAN CHANG, Silvia Judith
2010

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This presentation discusses the Making It Work multi-stakeholder initiative which documented and promoted good practice of accessible transportation in order to improve accessibility in three municipalities in Guatemala. Good practice examples were collected from other South American cities relating to: legislation and policies; disabled people’s organisations participation and political advocacy results; and technical solutions.  The presentation summarises the objectives and approach of the report, and advocacy activities, and it does not give examples of good practice or recommendations

Note: The original report is in Spanish and has not been translated

Sexual-health communication across and within cultures : the clown project, Guatemala

SAVDIE, Anthony
CHETLEY, Andrew
June 2009

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This paper puts forward an argument in favour of careful and critical analysis of culture in formulating communication strategies with and for specific groups, based on experience drawn from the Clown Project in Guatemala and other countries in Central America. The Clown Project uses labour-intensive face-to-face street theatre and dialogue, participatory workshops, and symbolic communication such as print-based material to reach those most vulnerable to the spread and impact of HIV and AIDS . The analysis takes into account relations of power within and between vulnerable groups, examining the centre-periphery dynamic between classes, genders, ethnicities, age groups, and other social identities. Both appropriately supported insider perspectives and appropriately processed outsider knowledge are recommended, along with ways of bridging science and the field, theory and practice

Advocacy for change : lessons from Guatemala, Brazil, and USA

LEON, Rosario
Ed
2009

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This resource summarises a systematization of advocacy experiences related to the status of youth (in Guatemala), the right to education (in Brazil) and farming (in the United States). The systematizations allowed the actors involved to consider the evolution of the experiences and to identify lessons and insights for future interventions. The Guatemala systematization product was documented in writing and film, the US experience in writing, and the Brazil experience in film

Transitions in the early years : a learning opportunity [whole issue]

November 2006

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This issue of Early Childhood Matters presents a number of perspectives around children's transition from home environments to primary schooling and includes practical examples of initiatives in a number of countries, including the US, India, Uganda, Guatemala, Poland, Brazil and Israel. Articles look at transition and school readiness as a challenge and a learning opportunity rather than as a problem. In different contexts the emphasis of related early childhood programmes varies. The 'Parques Infantis' in Brazil focuses on children's rights, while in Guatemala and Uganda programmes reflect a need to promote local culture and support children learning the mainstream language. The Mississippi Delta Children's Partnership encourages interaction between pre-schools, primary schools and parents as a means to facilitate transition and supports school readiness through after-school programmes

National institutional frameworks and human rights of persons with disabilities

DEPARTMENT FOR ECONOMIC AND SOCIAL AFFAIRS (DESA), UNITED NATIONS
August 2006

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This resource compares national disability institutions and frameworks in Australia, Sweden, India, Guatemala and the UK. It aims to: identify the core institutions concerned with disability rights and describe how they were established; review the legislative framework; and examine the organisational structure, mandates and activities of the states’ monitoring institution/s

Creating an enabling environment for the advancement of women and girls : a briefing paper to the United Nations commission on the status of women at its 50th session

HOFFMAN HANCHETT, Ruthi
BRANDT, Don
SOJWAL, Sanjay
March 2006

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This briefing paper contains reports and recommendations, from World Vision's gender and development, relief, and advocacy experts in the Sudan, Uganda, Ethiopia, United Kingdom, Guatemala, Sri Lanka, Indonesia, India, and the former states of the Soviet Union. They focus on the challenges and promising practices for the advancement of women and girls in the areas of education, health, work, and those trapped in situations of violence

Youth and technology : IPPF/WHR experiences to promote sexual and reproductive health

INTERNATIONAL PLANNED PARENTHOOD FEDERATION. WESTERN HEMISPHERE REGION (IPPF/WHR)
2004

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This report evaluates the experience of member associations of the International Planned Parenthood, Western Hemisphere Region, in the development of programmes that use computer technologies to reach young people with sexual and reproductive health information. It identifies key issues for youth-and-technology projects and makes strategic recommendations for future development. The review of case studies from IPPF/WHR member associations in Chile, El Salvador, Guatemala and Peru provides important insight related to the preliminary effects of and lessons learned from the implementation of first-generation youth and technology projects in the region. Strategic recommendations for the development of second-generation projects in this area are also proposed

IDRM : regional report of the Americas

CENTRE FOR INTERNATIONAL REHABILITATION
2004

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This International disability rights monitor takes a snapshot of the situation of disabled people in the Americas for disabled people and the extent to which they are included in society. The report examines education, employment, legislation and other areas. It gives non-governmental organisations, policy makers and individuals an opportunity to research the living conditions of disabled people in this part of the world

Conference 2003 : reproductive health from disaster to development

MATTHEWS, Julia
KRAUSE, Sandra
CHYNOWETH, Sarah
December 2003

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Provides the proceedings of the conference along with the presentations that were made. The presentations provide information on specific activities, projects or research, along with the methods used, the findings and the implications for future work (lessons learned)

Youth telephone hotlines in Guatemala and Colombia [whole issue]|Líneas telefónicas de ayuda para jóvenes en Guatemala y Colombia

INTERNATIONAL PLANNED PARENTHOOD FEDERATION. WESTERN HEMISPHERE REGION (IPPF/WHR)
2001

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Youth telephone hotlines were established by the Asociación Pro-Bienestar de la Familia de Guatemala (APROFAM) in Guatemala and the Asociación Pro-Bienestar de la Familia Colombiana (PROFAMILIA) in Colombia as a means of providing an anonymous and free point of first contact for adolescents in need of sexual and reproductive health information. The goal of APROFAM's hotline was to improve adolescents' sexual, reproductive and mental health by offering emergency counselling and referrals. PROFAMILIA's goal was to offer counselling and referrals to those adolescents with questions or problems related to sexual and reproductive health but without direct access to services

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