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Seeing the invisible: Sexuality-related knowledge, attitudes and behavior of children and youth with disabilities in China

SHANGHAI INSITITUTE OF PLANNED PARENTHOOD RESEARCH (SIPPR)
UNESCO
HUMANITY & INCLUSION (HI)
2019

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Young people with disabilities have the same right to Sexual and Reproductive Health (SRH) as their peers without disabilities, but their needs and rights are often overlooked. This study examines the SRH status of young people with disabilities in China. In particular, the study explored the sexuality-related knowledge, attitudes and behaviour of young people with disabilities as well as their access to sexuality-related information, education and services. The findings of the study are intended to provide evidence to support decision-making by government agencies, educators, development workers and other relevant stakeholders regarding developing and implementing disability-inclusive SRH and sexuality education policies and programmes for young people in China.

The study, using quantitative and qualitative methods, was conducted in 2015 among unmarried young persons aged 12 to 24 living with visual, hearing, physical and intellectual disabilities, in both urban and rural areas. The analysis was based on data collected through 707 completed valid questionnaires, 20 group interviews and 35 individual interviews with young people with disabilities, and individual interviews with 60 parents and teachers, along with one case study.

Asia Disability Toolkit

COMMUNITY BUSINESS
2018

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Community Business works with companies to build disability confidence and remove barriers to inclusion for people with disabilities. Asia Disability Toolkit provides ideas and resources to support companies to plan activities and raise awareness internally. 

Eight ideas are provided:

Engage your disability network; learn about the "this is me" campaign; share an interesting video or TED talk; run a Lunch and Learn session; facilitate a discussion - show a movie or run a book club; host a training workshop; review accessibility; share top tips. Resources and suggestions are provided for each of the activities.

 

Other resources are also given: research, articles and disability organisations in the area.


 

The economic burden of dementia in China, 1990–2030: implications for health policy

WORLD HEALTH ORGANIZATION
January 2017

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Objective To quantify and predict the economic burden of dementia in China for the periods 1990–2010 and 2020–2030, respectively, and discuss the potential implications for national public health policy. Methods Using a societal, prevalence-based, gross cost-of-illness approach and data from multiple sources, we estimated or predicted total annual economic costs of dementia in China. We included direct medical costs in outpatient and inpatient settings, direct non-medical costs – e.g. the costs of transportation – and indirect costs due to loss of productivity. We excluded comorbidity-related costs.

Findings The estimated total annual costs of dementia in China increased from 0.9 billion United States dollars (US$) in 1990 to US$47.2 billion in 2010 and were predicted to reach US$ 69.0 billion in 2020 and US$ 114.2 billion in 2030. The costs of informal care accounted for 94.4%, 92.9% and 81.3% of the total estimated costs in 1990, 2000 and 2010, respectively. In China, population ageing and the increasing prevalence of dementia were the main drivers for the increasing predicted costs of dementia between 2010 and 2020, and population ageing was the major factor contributing to the growth of dementia costs between 2020 and 2030.

Conclusion In China, demographic and epidemiological transitions have driven the growth observed in the economic costs of dementia since the 1990s. If the future costs of dementia are to be reduced, China needs a nationwide dementia action plan to develop an integrated health and social care system and to promote primary and secondary prevention.

Training social facilitators in personalised social support: Trainers’ booklet

LAFRENIERE, Annie
RELANDEAU, Audrey
KIANI, Shirin
December 2015

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This booklet is the gateway for a training kit on personalised social support (PSS). The aim of this training course is to train social facilitators either in the personalised approach only, or in how to carry out a complete PSS process. The aim of this booklet is therefore to impart the methodological and educational components required to use the content of this training course to Handicap International’s (now Humanity and Inclusion) future PSS trainers. It therefore takes another look at the entire content of the PSS training course, explains the educational choices, presents the modules and other teaching tools created, and above all, provides advice/recommendations for future designers and trainers/facilitators on this theme. Throughout this booklet, internet links provide the reader with quick access to the content of training courses and other relevant resources

Participation and quality of life outcomes among individuals with earthquake-related physical disability: A systematic review

NUNNERLEY, Joanne
DUNN, Jennifer
McPHERSON, Kathryn
et al
May 2015

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A literature review to evaluate quality of life and participation outcomes of individuals with earthquake-related physical injury. A systematic review was performed searching MEDLINE, Embase, PsychINFO, CINAHL and AMED electronic databases from 1966 to January 2014. Studies that measured quality of life or participation outcomes among individuals who acquired a physical disability as a result of an earthquake injury were included, with no limits on research design. The search yielded 961 potentially relevant articles after removal of duplicates. Of these, only 8 articles met the inclusion criteria. Seven papers were reviewed from the following 5 earthquakes: 2001 Gujarat earthquake, India; 2008 Wenchuan earthquake, China (also known as the Sichuan earthquake); 2005 Kashmir earthquake, Pakistan (27); 2009 Padang earthquake, Indonesia; 2010 Port-au-Prince earthquake.

Journal of Rehabilitation Medicine, vol.47, no.5, 2015, 385-393

10.2340/16501977-1965

Mobile for development : transforming global healthcare through mobile technology

THEVATHASAN, Vanessa
GRADZEWICZ, Agnes
RUETZEL, Sonja
2015

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This paper outlines the need for greater connectivity & accessibility in less developed countries. Following this, the authors present the benefits of various different ‘mHealth’ solutions, presented through case studies. The report concludes by outlining some of the constraints holding back greater ‘mHealth’ innovation, including financing and sustainability issues

Inclusion of youth with disabilities: The business case

INTERNATIONAL LABOUR ORGANISATION
January 2014

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This is a how-to guide for companies interested in integrating youth with disabilities into their workforce. "This guide is based on initiatives that are currently tried out by ten companies to employ youth with disabilities in eight countries (Brazil, Chile, China, India, Norway, Republic of Serbia, Singapore and the United States). Good practices and useful insights are identified and explained through first-hand accounts. First, the business case for employing youth with disabilities is made. This section will highlight how two companies benefited from initiatives to employ youth with disabilities. Next, four reoccurring good practices that were cited in the featured cases are given particular consideration:

  • partner with an organization that specializes in disability services;
  • provide (when necessary) disability-accessible skills training;
  • offer recruitment and job placement services;
  • embrace a policy of inclusion and non-discrimination"

Making rights a reality : young voices on the UN convention of the rights of persons with disabilities

LEONARD CHESHIRE DISABILITY YOUNG VOICES
November 2013

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This report focuses on the organisation’s work in 14 countries on the implementation of the CRPD, and in particular on awareness raising, accessibility, education, work and employment, and participation in political and public life in respect to young people. The report highlights the progress made, spotlights the challenges ahead, and makes recommendations for each of the countries

Good practices in the inclusion of persons with disabilities in the Tibet Autonomous Region, China : how to ensure the rights of persons with disabilities are promoted and respected?

HANDICAP INTERNATIONAL
November 2012

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The report is a collection of good practices of inclusion of people with disabilities in the Tibet Autonomous Region of China, compiled through the ‘Support to DPOs’ project. Making It Work methodology was used to collect good practice of social integration and participation by people with disabilities; good practice in terms of working methods to ensure partner ownership and long term sustainability; and good practice in terms of process, such as participative working methods to ensure the long-term ‘real’ inclusion of persons with disabilities. The target of the report is the Disability Working Committee, the key Government body in decision making on disability issues. The report considers 13 case studies on such topics as DPO activity, inclusive education, community participation, rehabilitation and livelihoods. For each case study, influencing factors (positive and negative) are identified, and possible improvements and recommendations for replication suggested. This collection of good practices gives a diverse range of possible actions for the enhanced inclusion of persons with disabilities; combining access to services (early education, mainstream education, and rehabilitation), arts and culture, awareness-raising, and active participation in political and social life

Bridging the gaps between research, policy and practice in low- and middle-income countries : a survey of health care providers

GUINDON, G Emmanuel
et al
May 2010

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This article discusses the results of a survey to examine the gaps that continue to exist between research based evidence and clinical practice. Health care providers in 10 low- and middle-income countries were surveyed about their use of research-based evidence and examined factors that may facilitate or impede such use. The conclusion is that locally conducted or published research plays an important role in changing the professional practice of health care providers surveyed in low- and middle-income countries and increased investments in local research, or at least in locally adapted publications of research-based evidence from other settings, are therefore needed. Although access to the Internet was viewed as a significant factor in whether research-based evidence led to concrete changes in practice, few respondents reported having easy access to the Internet. Therefore, efforts to improve Internet access in clinical settings need to be accelerate

Bridging the gaps between research, policy and practice in low- and middle-income countries a survey of researchers

LAVIS, John N
et al
May 2010

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This article describes the findings from a study which examined efforts to bridge the gaps between research, policy and practice in 10 low- and middle-income countries in which researchers conducting research in one of four clinical areas relevant to the Millennium Development Goals: prevention of malaria (Ghana, Laos, Senegal and Tanzania), care of women seeking contraception (China, Kazakhstan, Laos and Mexico), care of children with diarrhoea (Ghana, India, Pakistan and Senegal) and care of patients with tuberculosis (China, India, Iran and Mexico) were surveyed

Contribution of chronic diseases to disability in elderly people in countries with low and middle incomes : a 10/66 dementia research group population-based survey

SOUSA, Renata M
et al
November 2009

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This article assesses "the contribution of physical, mental, and cognitive chronic diseases to disability, and the extent to which sociodemographic and health characteristics account for geographical variation in disability." Using cross sectional surveys of people aged over 65 in seven low and middle income countries, the findings highlight specific associations of chronic diseases to disability and overall that dementia, not blindness, is overwhelmingly the most important independent contributor to disability for elderly people in low and middle income countries. This resource is useful to people interested in the contribution of chronic diseases to disability in elderly people
The Lancet, Vol 374, Issue 97041
To access this article, users need to register (free) online

Responding to children, young people and AIDS : collection of best practices under UNTG on AIDS, working group on children

June 2009

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This collection of best practices on the prevention of mother to child transmission; treatment and care for women and children with HIV; vulnerability reduction for youth; and stigma reduction, aims to contribute to experience- and expertise-sharing about tailored interventions to meet the needs of target populations. The publication was produced by the United Nations Theme Group (UNTG) on AIDS, Working Group on Children to contribute to sharing between UN agencies, NGOs and bilateral organisations and civil society. The Chinese Campaign on HIV Prevention for Children and Young People was launched by the Government of China in September, 2006 under the global campaign 'Unite for Children, Unite against AIDS'

Intellectual property rights and access to ARV medicines : civil society resistance in the global south|Brazil, Colombia, China, India, Thailand

REIS, Renata
TERTO, Veriano Jr
PIMENTA, Maria Cristina Pimenta
Eds
2009

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This book looks at "...the recent history and the many struggles related to advocacy for access to [antiretroviral] medicines of engaged civil society. Through the experiences of five middle-income countries - Brazil, China, Colombia, India, and Thailand." It presents "...the perspective of local civil society organisations about the national impact of intellectual property protection and access to medications. "These five countries were chosen due to their accumulated experience in this field, their capacity to produce generic medication, their activist efforts, and the exchange of ideas and information that already exists between them"

The price of exclusion : the economic consequences of excluding people with disabilities from the world of work

BUCKUP, Sebastian
2009

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People with disabilities can work and contribute to the economy, just like people without disabilities. This report highlights the macro-economic cost of excluding people with disabilities from the labour market. The study quantifies the economic losses of ten countries in Asia and Africa and presents the outcomes. It would be useful to people interested economic and employment issues for people with disabilities

Annual review of HRH situation in Asia-Pacific region 2006-2007

DING Yang
TIAN Jiang
August 2008

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"This report reviews the Human Resources for Health (HRH) status in the targeted countries by mainly focusing on health education and training, distribution and retention of health workers, community health workers. Eighteen countries have been included in the report: Bangladesh; Cambodia; China; Fiji; India; Indonesia; Lao PDR; Myanmar; Nepal; Philippines; Papua New Guinea; Samoa; Sri Lanka; Thailand; Vietnam; Australia; New Zealand and Mongolia"

Making schools inclusive : how change can happen|Save the Children's experience

PINNOCK, Helen
LEWIS, Ingrid
2008

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This report looks at how non-governmental organisations (NGOs) can help school systems in developing countries become more inclusive. It shares experience of developing tools and approaches that have improved education for the most excluded children in society. Taking examples from 13 countries around the world it describes case study programmes that: target specific groups of vulnerable children; build inclusive school communities; promote change throughout an education system; and address financial barriers to inclusive education. This report will be of interest to policy-makers, managers and advisers in government, donors and NGOs, and to education students

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