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Reducing albinism related stigma in Tanzania: an exploration of the impact of radio drama and radio interview

DE GROOT, T M M
VELDMAN, M
JACQUET, W
PETERS, R M H
VANWING, T
MEURS, P
2021

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Reducing stigma is key to improving the wellbeing of people with albinism in Tanzania. This study aimed to obtain more insight into the effects of two radio interventions with regard to albinism-related stigma: a radio drama and a radio interview. Assessment of the radio interventions was based on two attitude measurement instruments (The Albinism Explanatory Model Interview Catalogue Community Stigma Scale and the Albinism Social Distance Scale), an entertainment scale, and two informal (group) interviews. In total, 111 community members participated in the assessment prior to the radio drama, and 65 after. In the case of the radio interview, 123 community members participated in the assessment prior to the radio show, and 77 after. Following the radio drama, a significant reduction was found in terms of community stigma, and a reduction in social distance was found after both interventions. The entertainment score for both interventions was high, but significantly higher for the radio drama. The respondents indicated that they had gained more understanding of albinism as a result of the interventions, and were positive about this type of education. The current study shows that a radio show in which the listener interacts with someone with albinism can contribute to a reduction in stigma, and demonstrates that different types of radio intervention can have different outcomes.

Aid Connect Inclusion Works (NIGERIA) Qualitative Formative Research

BBC Media Action
April 2020

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BBC Media Action is implementing a Department for International Development (DfID) funded project aimed at increasing action and investment from private, public and civil society actors to enable economic inclusion for women and men with disabilities through employment, with focus on FCT, Lagos and Kano states. The formative research provides insights to help (re)shape the design and implementation of media capacity strengthening activities on the project.

 

The opinions expressed are those of the authors and do not necessarily reflect the views or policies of the UK government or members of the Inclusion Works consortium.

Disability & the Global South (DGS), 2018, Vol. 5 No. 1

2018

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Articles include:

  • Inclusive Education in the global South? A Colombian perspective: ‘When you look towards the past, you see children with disabilities, and if you look towards the future, what you see is diverse learners
  • Services for people with Communication Disabilities in Uganda: supporting a new Speech and Language Therapy profession
  • Frida Kahlo and Pendular Disability Identity: A Textual Examination of El Diario de Frida Kahlo
  • Health Information-Seeking Behaviour of Visually Impaired Persons in Ibadan Metropolis, Nigeria
  • Online Collective Identities for Autism: The Perspective of Brazilian Parents
  • Transnationalizing Disability Policy in Embedded Cultural-Cognitive Worldviews: the Case of Sub-Saharan Africa
  • Portrayal of Disabled People in the Kuwaiti Media

Portrayal of disabled people in the Kuwaiti media

ALENAIZI, Hussain Mohammed
2018

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This paper explores the views of 10 participants on how the Kuwaiti media represents disabled people. Participants expressed their views through focus groups and interviews. The findings show that, generally, disabled people in Kuwait are shown in a negative light in the media. The media depicts disabled people as ‘pitiable’, ‘violent’, ‘sinister’, ‘tragic’, and as a ‘tool of ridicule’. The findings, however, witness some positive examples of media representation regarding how some TV shows portray deaf people in a positive light. On the other hand, the study suggests that learning disabled people are the most negatively depicted group in Kuwaiti society. There are also indications of implicit endorsement or internalisation by the participants of views of disabled people as ‘extraordinary’ despite the presence of their impairments. The study concludes that it is more important that the media shows the everyday lives of disabled people before showing their abilities and achievements.

 

Disability and the Global South, 2018, Vol.5, No. 1

A world without Down’s syndrome? Online resistance on Twitter: #worldwithoutdowns and #justaboutcoping

BURCH, Leah
2017

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Presented by actress and comedian Sally Phillips, A World Without Down’s Syndrome has brought important ethical debates regarding prenatal screening into the public domain. By talking to people with Down’s syndrome, family members, and professionals, Sally has presented a nuanced and thorough examination of the type of world we are living in. Following the documentary, Twitter users have continued to engage with debates and have created a resilient platform for challenging public attitudes. This paper explores the ways in which Twitter hashtags have provided a space for such important and long overdue conversations. While it would not be possible to provide a full overview of the topical conversations that the two hashtags have provoked, I aim to focus on some of the most prominent topics. The following, then, will explore the potential of alternative narratives that resist, and disrupt, normative notions of the human using the hashtags #worldwithoutdowns and #justaboutcoping.

Benefits stigma in Britain

BAUMBERG, Ben
et al
November 2012

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This report presents the results of a research study assessing the impact of stigma and other social influences on applying for benefits in the UK

Disability and the media : how disability is dealt with in the West African media - Burkina Faso, Mali, Niger, Senegal, Sierra Leone and Togo

MANDRILLY-JOHN, Aline
December 2010

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This document presents the results of surveys analysing the portrayal of disability in national media in the 6 countries of the DECISIPH project: Burkina Faso, Mali, Niger, Senegal, Sierra Leone and Togo. It contains recommendations for disabled people’s organisations (DPOs) on how to ensure disability is better portrayed in the West African media, and a questionnaire for readers to complete about examples of disability portrayal in the media

Disability in the press : how disability and people with disabilities are depicted in print media in Bosnia and Herzegovina, Montenegro and Serbia in 2006

ADAMS, Lisa
June 2008

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This report looks at major trends in disability reporting in Bosnia and Herzegovina, Montenegro and Serbia. It investigates some of the main problems concerning negative media depictions of disability issues and people with disabilities themselves. It would be useful for anyone with an interest in representations of disability in the media and promoting attitudinal change

Living on the outside : key findings and recommendations on the nature and impact of HIV/AIDS-related stigma

HEALTH AND DEVELOPMENT NETWORKS (HDNET)
AIDS-CARE-WATCH CAMPAIGN
2006

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This publication presents an overview of discussions, evidence and proposals contributed to the Stigma-AIDS eForurm by both experts and people living with HIV and AIDS, and moderated by Health and Development Networks (HDNet). Three major areas are covered: HIV stigma and place, including the work place, health care services and religious settings; HIV stigma and people living with HIV/AIDS, addressing self-stigma and injection drug users; HIV stigma and society, with a focus on the role of the media. Each topic includes a brief commentary and sets out specific recommendations. It is aimed at individuals, organisations and policy makers willing to learn about practical approaches to reduce HIV/AIDS-related stigma

Civil society perspectives on TB policy in Bangladesh, Brazil, Nigeria, Tanzania, and Thailand

Public Health Watch, Open Society Institute
2006

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This publication contains an overview of the common themes and funding resulting from five country reports, and the five reports themselves. The World Health Organization has designated all five as TB-high burden countries. The research findings show a low level of awareness about TB, and TB and HIV co-infection; about how TB is transmitted and how it can be cured; and about the link between poverty and TB; as well as low media coverage of TB and a lack of strong communication strategies for national TB programmes. It also contains country-specific recommendations

Disablist Britain : barriers to independent living for disabled people in 2006

MILLER, Paul
GILLINSON, Sarah
HUBER, Julia
January 2006

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This report draws on qualitative and quantitative evidence to portray the extent of institutional discrimination in services for health, rehabilitation, welfare, employment, built environment, media coverage and education. It also addresses societal stigma and its impact on disabled peoples lack of access to goods and services. This report would be useful for anyone with an interest in human rights and approaches to disability issues

Guidelines for reducing stigma and discrimination and enhanacing care and support for people living with HIV and AIDS

KHAN, Naira
LOEWENSON, Rene
2005

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In many communities, stigma and fear of discrimination often exacerbate the impact of the AIDS epidemic and prevent people living with HIV (PLWH) from accessing support services. This document, commissioned by SANASO, and incorporating inputs from faith-based organisations, union representatives, people living with HIV and the media, examines how to address stigma and discrimination in key settings of social life, such as the family, the workplace, faith-based organisations, and the media. It suggests good practices, policies or behavioural changes which should foster a supportive environment for PLWH and improve the general response to HIV and AIDS

Advocacy guide: HIV/AIDS prevention among injecting users : workshop manual

WORLD HEALTH ORGANIZATION (WHO)
JOINT UNITED NATIONS PROGRAMME ON HIV/AIDS (UNAIDS)
2004

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This useful, accessible manual provides an overview of advocacy and describes advocacy processes, methods and approaches in detail, including strategy development, community-based approaches, and working with the media. The final section provides advice on developing arguments and provides a wide range of question-and-answer style stances on controversial issues (eg 'needle programmes send the wrong message'). The final chapter is a comprehensive list of further resources. This focuses mostly on advocacy and HIV, but includes some materials addressing harm reduction and injecting drug users

Disentangling HIV and AIDS stigma in Ethiopia, Tanzania and Zambia

NYBLADE, Laura
et al
2003

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This report explores the causes, manifestations and consequences of HIV and AIDS related stigma in sub-Saharan Africa. Based on a study in Ethiopia, Tanzania and Zambia, it acknowledges stigma as complex, caused by incomplete knowledge, fears of death and disease and sexual transmission. Stigma is also influenced by socio-economic status, age and gender. The report also discusses in detail how people living with HIV react to stigma, and also how they and their families/ friends develop strategies to cope with stigma. Recommendations include the need to provide safe spaces to discuss the values and beliefs about sex, morality and death, find a common language to talk about stigma and ensure a contextually appropriate and ethically responsible role for people living with HIV

Counselling guidelines on disclosure of HIV status

SOUTHERN AFRICAN AIDS TRAINING PROGRAMME (SAT)
2000

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This booklet describes the importance of disclosure for people who are living with HIV. It covers the basics of effective counselling in the context of dealing with issues around disclosure. It then discusses the process of disclosure, possible consequences, partial, involuntary and non-disclosure, and media issues

Happy ever afters : a storybook guide to teaching children about disability

SAUNDERS, Kathy
2000

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This books gives a framework for examining children's fiction for out-dated or erroneous portrayals of disability. This book: explains how certain familiar storybooks can be interpreted to highlight major disability awareness concepts; suggests how these can be used to promote discussion about disability with children, for early years to adolescence; shows how to identify texts which create misleading ideas about disability; indicates how disability interests can be included in a number of curriculum areas

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