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Reducing albinism related stigma in Tanzania: an exploration of the impact of radio drama and radio interview

DE GROOT, T M M
VELDMAN, M
JACQUET, W
PETERS, R M H
VANWING, T
MEURS, P
2021

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Reducing stigma is key to improving the wellbeing of people with albinism in Tanzania. This study aimed to obtain more insight into the effects of two radio interventions with regard to albinism-related stigma: a radio drama and a radio interview. Assessment of the radio interventions was based on two attitude measurement instruments (The Albinism Explanatory Model Interview Catalogue Community Stigma Scale and the Albinism Social Distance Scale), an entertainment scale, and two informal (group) interviews. In total, 111 community members participated in the assessment prior to the radio drama, and 65 after. In the case of the radio interview, 123 community members participated in the assessment prior to the radio show, and 77 after. Following the radio drama, a significant reduction was found in terms of community stigma, and a reduction in social distance was found after both interventions. The entertainment score for both interventions was high, but significantly higher for the radio drama. The respondents indicated that they had gained more understanding of albinism as a result of the interventions, and were positive about this type of education. The current study shows that a radio show in which the listener interacts with someone with albinism can contribute to a reduction in stigma, and demonstrates that different types of radio intervention can have different outcomes.

Pre-Primary and Primary Inclusive Education for Tanzania (PPPIET) – Foundation phase : Desk Review presented by the Task Team February 2020

JUDGE, Emma
August 2020

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The Disability Inclusive Development (DID) consortium is working together on the Pre-Primary and Primary Inclusive Education in Tanzania (PPPIET) programme whose ultimate goal is to foster quality sustainable inclusive education for all children with disabilities (CWD) at scale across Tanzania in mainstream pre-primary and primary government schools.  To achieve this, it aims to support collective, coordinated systems change by establishing an agreed common model of basic inclusive pre-primary and primary education in mainstream government schools, and galvanising significant progress in spreading its systematic implementation for all CWD across Tanzania over six years.

 

This task requires the cooperation of government, civil society and DPOs to achieve real change.  No single organisation or government department can achieve inclusive education on its own.  Cooperation between all government ministries, including education, health, finance and social welfare are key to providing individual support to learners with disabilities.  Pooling the skills and resources, and exchanging learnings to achieve quality inclusive education of children can help all involved.  Working together will build collective commitment and action, not just amongst DID consortium members but also across government, donors, education actors and the private sector. 

 

The first part in this process was for the Task Team to conduct a desk review to establish an overview of the current educational context with regards to children with disabilities, including legislative, policies and practice, inclusive education strategies, disability contexts, cultural perspective, interventions, existing assessment and quality assurance processes, and opportunities and challenges. 

Disability Inclusive Development - Tanzania Situational Analysis

ROHWERDER, Brigitte
June 2020

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This situational analysis (SITAN) addresses the question: “what is the current situation for persons with disabilities in Tanzania?”. It has been prepared for the Disability Inclusive Development programme (which works on access to education, jobs, healthcare, and reduced stigma and discrimination for persons with disabilities in Bangladesh, Jordan, Kenya, Nepal, Nigeria, and Tanzania), to better understand the current context, including COVID-19, and available evidence in Tanzania. It will be helpful for anyone interested in disability inclusion in Tanzania, especially in relation to stigma, employment, education, health, and humanitarian issues. This SITAN has been briefly updated from the April 2019 SITAN.

Disability stigma in the Disability Inclusive Development (DID) programme countries: an overview of the evidence

ROHWERDER, Brigitte
September 2019

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This literature review outlines factors contributing to disability stigma in low- and middle-income countries. Overviews of disability stigma in the six Disability Inclusive Development (DID) programme countries – Bangladesh, Jordan, Kenya, Nepal, Nigeria, and Tanzania – are presented next. The review then looks at the literature on interventions to reduce disability stigma. Interventions aimed at addressing disability stigma in developing countries have been aimed at the intrapersonal and familial level; the interpersonal level; and the structural level.

‘Black on the inside’: albino subjectivity in the African novel

LIPENGA, Ken Junior
NGMIRA, Emmanuel
2018

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The last decade has seen increased attention to the treatment of people with albinism in several African countries, particularly the peril they find themselves in due to stigma and superstition. As a way of countering these misconceptions, there has been educative activism from legal, medical as well as religious perspectives. In this paper, we draw upon a different discourse- literary representation- arguing that in selected African novels, the authors employ a variety of strategies that counter harmful stereotypes about albinism, and in the process act as literary interventions that enable an appreciation of the person behind the skin condition. Drawing from insights in Literary Disability Studies, the discussion examines the representation of albinism in four African novels: Petina Gappah’s The Book of Memory (2015), Meg Vandermerwe’s Zebra Crossing (2013), Unathi Magubeni’s Nwelezelanga: The Star Child (2016), and Jenny Robson’s Because Pula Means Rain (2000), and highlights the way albinism is presented as bodily condition that intersects with other experiences on the continent, including indigenous epistemologies, gender, sexuality and family relationships. 

 

Disability and the Global South, 2018, Vol.5, No. 2

Report of the Independent Expert on the enjoyment of human rights by persons with albinism on her mission to the United Republic of Tanzania

ERO, Ikponwosa
December 2017

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In accordance with the mandate set out in Human Rights Council resolution 28/6 and at the invitation of the Government of the United Republic of Tanzania, the Independent Expert on the enjoyment of human rights by persons with albinism, Ikponwosa Ero, conducted an official visit to the United Republic of Tanzania from 18 to 28 July 2017. The objective of the visit was to assess the human rights situation of persons with albinism throughout the country, with particular attention to be given to the relatively high number of reports of attacks against them

Family perceptions of intellectual disability : understanding and support in Dar as Salaam

ALDERSEY, H. M
2012

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"This article outlines and discusses interviews that were conducted in Dar es Salaam, Tanzania, with family members of children and adults with intellectual disabilities. These interviews explore how families came to understand that their child had an intellectual disability; the availability of family support; and family hopes and dreams for the future, and were a part of a wider exploratory study that gathered insight from individuals with disabilities, families, and other providers of support to explore understandings and perceptions of disability in Dar es Salaam"
African Journal of Disability, Vol 1, Issue 1, Art. #32

A research study on individuals with disabilities in the Masai tribe of Tanzania

FEINSTEIN, Sheryl
2009

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"The purpose of this qualitative study was to investigate the life of individuals with a disability in the Maasai Tribe in Tanzania. The study consisted of 68 participants. Individuals with a disability did not engage in tribal traditions, go to school or seek modern health care"
Review of Disability Studies : An International Journal, Vol 5, Issue 4

Growing pains : how poverty and AIDS are challenging childhood

SWIFT, Anthony
MAHER, Stan
2008

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This report looks at projects and programmes that aim to respond to the needs of very young children in southern and eastern Africa whose lives have been affected by both poverty and HIV. What is highlighted in the interventions that are examined is the effort of human beings in caring and supporting people and sharing resources

Supporting HIV-positive teachers in East and Southern Africa

MALLOURIS, Chrstoforos
BOLER, Tania
September 2007

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This report provides an overview of the impact of HIV on teachers and the specific issues HIV-positive teachers face. It also summarises support mechanisms for teachers with HIV and presents key conclusions and recommendations from the consultation regarding how the education sector can support HIV-positive teachers. The report is the result of a consultation involving a range of different stakeholders including representatives of Ministries of Education, teachers' unions and HIV-positive teachers' networks from six countries in East and Southern Africa

Civil society perspectives on TB policy in Bangladesh, Brazil, Nigeria, Tanzania, and Thailand

Public Health Watch, Open Society Institute
2006

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This publication contains an overview of the common themes and funding resulting from five country reports, and the five reports themselves. The World Health Organization has designated all five as TB-high burden countries. The research findings show a low level of awareness about TB, and TB and HIV co-infection; about how TB is transmitted and how it can be cured; and about the link between poverty and TB; as well as low media coverage of TB and a lack of strong communication strategies for national TB programmes. It also contains country-specific recommendations

HIV/AIDS stigma : finding solutions to strengthen HIV/AIDS programs

INTERNATIONAL CENTER FOR RESEARCH ON WOMEN (ICRW)
2006

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This paper gives an overview of the research findings of ICRW and its partners in Ethiopia, Tanzania, Vietnam and Zambia into stigma and discrimination around HIV & AIDS, which show many common causes and similar outcomes, and looks at ways to combat stigma

Inside voices : CBR workers stories

OKUNE, Joan
Ed
2006

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This book is an output from three CBR writing workshops held in Kenya, Tanzania and Malawi with the aim to facilitate the capacity of CBR workers to communicate their experiences thus increasing documentation of CBR practices in Africa. The book contains articles based on participants’ experience of CBR and is useful to anyone interested in CBR experiences in Kenya, Tanzania and Malawi

Working report measuring HIV stigma : results of a field test in Tanzania

TANZANIA STIGMA-INDICATORS FIELD TEST GROUP
June 2005

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This is the working report of a project that builds expressly on the findings of the International Center for Research on Women (ICRW) and its partners in a multi-country study on stigma and on the Horizons and POLICY Project work on stigma and HIV. The specific aim of this project is to examine, test and validate selected stigma indicators in Tanzania as a first step to coming up with a set indicators that can reliably assess stigma in a given setting and measure progress in reducing it

Common at its core : HIV-related stigma across contexts

OGDEN, Jessica
NYBLADE, Laura
2005

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The report begins by defining stigma and providing background about projects that ICRW and its partners in four countries carried out into HIV-related stigma and discrimination. It then discusses that, in spite of different contexts, the four countries where the studies took place share key features that shape the nature and forms of HIV-related stigma and it presents findings focusing on the similarities across the four different country contexts. It concludes with a discussion of the way forward and an overview of the two anti-stigma toolkits that grew out of the projects’ findings: one that is suitable to many African settings; and one, adapted from the first, which is tailored for Vietnam but suitable for adaptation elsewhere in the Asian region

Disentangling HIV and AIDS stigma in Ethiopia, Tanzania and Zambia

NYBLADE, Laura
et al
2003

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This report explores the causes, manifestations and consequences of HIV and AIDS related stigma in sub-Saharan Africa. Based on a study in Ethiopia, Tanzania and Zambia, it acknowledges stigma as complex, caused by incomplete knowledge, fears of death and disease and sexual transmission. Stigma is also influenced by socio-economic status, age and gender. The report also discusses in detail how people living with HIV react to stigma, and also how they and their families/ friends develop strategies to cope with stigma. Recommendations include the need to provide safe spaces to discuss the values and beliefs about sex, morality and death, find a common language to talk about stigma and ensure a contextually appropriate and ethically responsible role for people living with HIV

The interaction between disabled and non-disabled people in Tanzania : community experiences with promoting human rights for people with disabilities

LINTNER, Natalija

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"This action research was conducted in 2011/2012 by ICD to investigate the interaction between disabled and non-disabled community members in Tanzania. Disabled teachers and other human rights activists discussed in a workshop setting and observed in the field to answer the questions of how are PWDs interacting with their communities, how are the communities interacting with PWDs and what are the challenges (and possible solutions) of their activist work...This research wanted to get a comprehensive picture of the current situation of PWDs in Tanzania. It concludes that mutual distrust is the main attitude that characterizes the relationship between disabled and non-disabled Tanzanians and that only intensive and targeted confrontations and exchanges between the two parties can achieve a signifi cant attitude change"
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