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COVID-19 outcomes among people with intellectual and developmental disability living in residential group homes in New York State

LANDES, Scott D.
TURK, Margaret A.
FORMICA, Margaret K.
McDONALD, Katherine E.
STEVENS, J. Dalton
June 2020

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In order to investigate whether people with intellectual and developmental disabilities (IDD) are at higher risk of severe outcomes from COVID-19, the COVID-19 outcomes among people with IDD living in residential groups homes in the state of New York and the general population of New York State were compared. Data for people with IDD are from a coalition of organizations providing over half of the residential services for the state of New York, and from the New York State Department of Health. Analysis describes COVID-19 case rates, case-fatality, and mortality among people with IDD living inresidential group homes and New York State through May 28, 2020

 

Disability and Health Journal, https://doi.org/10.1016/j.dhjo.2020.100969

 

Adding meaning to physical fitness test results in individuals with intellectual disabilities

OPPEWAL, Alyt
HILGENKAMP, Thessa I M
February 2019

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Purpose: Evaluating physical fitness in individuals with intellectual disabilities (ID) is challenging, and a multitude of different versions of tests exist. However, psychometric properties of these tests are mostly unknown, and both researchers as clinical practitioners struggle with selecting appropriate tests for individuals with ID. We aim to present a selection of field tests with satisfactory feasibility, reliability, and validity, and of which reference data are available.

 

Methods: Tests were selected based on (1) literature review on psychometric properties, (2) expert meetings with physiotherapists and movement experts, (3) studies on population specific psychometric properties, and (3) availability of reference data. Tests were selected if they had demonstrated sufficient feasibility, reliability, validity, and possibilities for interpretation of results.

 

Results: We present a basic set of physical fitness tests, the ID-fitscan, to be used in (older) adults with mild to moderate ID and some walking ability. The ID-fitscan includes tests for body composition (BMI, waist circumference), muscular strength (grip strength), muscular endurance (30 second and five times chair stand), and balance (static balance stances, comfortable gait speed).

 

Conclusions: The ID-fitscan can be used by researchers, physiotherapists, and other clinical practitioners to evaluate physical fitness in adults with ID. Recommendations for future research include expansion of research into psychometric properties of more fitness tests and combining physical fitness data on this population in larger datasets.

2030 Agenda for sustainable development: Selected SDG indicators disaggregated by disability status

WASHINGTON GROUP ON DISABILITY STATISTICS
October 2018

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In light of the importance of disability data collection and the disaggregation of Sustainable Development Goal (SDG) outcome indicators by disability status, the Washington Group on Disability Statistics (WG) undertook an exercise to review, among WG member countries, the extent to which data on SDG indicators currently available can be disaggregated by disability status. Requests for disaggregated SDG data for 13 selected indicators were sent to 146 member countries. 48 countries responded and 39 provided data. Response data is tabulated and discussed.

Global health advocacy manual

GLOBAL HEALTH COUNCIL
2003

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A guide to lobbying and advocating in the United States by mobilising others, contacting congressional representatives, and using the media (eg newspapers)

Rural healthcare delivery : connecting communities through technology

TURISCO, Fran
METZGER, Jane
December 2002

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The report aims to provide an overview of practical technology solutions for rural providers and to help them get started. It assists readers in understanding technology and provides case examples of technology solutions. It raises practical issues in getting started and provides a list of other resources on the subject. The report is geared to a US-based audience and does not specifically cover developing country issues

Edutainment for development and sexual health [whole issue]

2002

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This issue of Sexual Health Exchange includes articles on performance art / theatre for development projects in 12 countries. The diverse projects described tend to focus on social change as well as behaviour change communications, and range from peer education projects to edu-clowns to mass-media soap operas

Speaking of health : assessing health communication strategies for diverse populations

INSTITUTE OF MEDICINE
2002

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This book looks at the challenges of delivering important health messages to different audiences. Using case studies in the areas of diabetes, mammography, and mass communication campaigns, it examines the ways in which messages must be adapted to the unique informational needs of their audiences if they are to have any real impact. It also looks at basic theories of communication and behaviour change and focuses on where they apply and where they don't. Although written for the context of the USA, the principles of adapting health messages to the needs of minority populations may have relevance in developing countries

HIV/AIDS and security

CARBALLO, M
CILLONIZ, J
BRAUNSCHWEIG, S
2001

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This report provides a comprehensive analysis of the ways in which the growing HIV/AIDS pandemic is affecting national and human security. It looks at the impact of sexually transmitted diseases on the military and other uniformed services, what is known about the incidence / prevalence of the problem, and where and why military personnel are most vulnerable. It also reviews what some of the main international agencies and NGOs are doing in this field and provides information on selected case studies

Worker-led participatory research and evaluation : lessons from the real world : reflections of the SREPP participants

ECKMAN, A
MCQUISTON, T
LIPPON, T
2000

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In 1997, four US union health and safety training programmes entered into a three-year, multi-union learning action-research collaborative, the Self-sufficiency Research and Evaluation Pilot Project (SREPP). This initiative sought to build the research and evaluation capacities of the participating unions' training by offering a new model of participatory learning and action in the area of worker health and safety. Existing examples of participatory action research in this field have tended to concentrate on single worksites and start with a stakeholder labour management model. By contrast, this project has sought to foster participatory learning across programmes from a union perspective. It uses and expands on the peer-training model to institutionalise a new base of worker produced knowledge. During the last of SREPP’s four training workshops participants reflected on their experiences in the project through a series of participatory activities. In this article the background to the project is followed by the words of SREPP participants describing what it takes to learn about and do participatory evaluation in the context of union-based, worker-led health and safety training programmes. This includes a look at what was learned and how, as well as supports and barriers to participatory evaluation and the model that they have developed

First steps : stories on inclusion in early childhood education

UNITED NATIONS EDUCATIONAL, SCIENTIFIC AND CULTURAL ORGANIZATION (UNESCO)
September 1997

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Early childhood intervention is a strategy that can promote inclusive education leading to a deeper understanding by the general public on disability. Targeted at early development programmes and interventions to include disabled children

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