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Report of the informal consultation on stopping discrimination and promotion inclusion of persons affected by Leprosy. New Delhi, 14–16 Nov 2017

COOREMAN, Erwin
WHO SEARO/Department of Control of Neglected Tropical Diseases
et al
2018

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An Informal Consultation on Stopping Discrimination and Promoting Inclusion of Persons Affected by Leprosy was held in New Delhi from 14 to 16 November 2017. Forty delegates with diverse backgrounds, experience and expertise enriched the discussions. Persons affected by leprosy brought to the table the challenges faced in daily life and suggested actions to be taken to reduce stigma and discrimination related to leprosy. Representatives of national programmes presented actions taken in their respective countries. The participants acknowledged the fact that stigma and discrimination related to leprosy still exists at a significant level. Information about stigma and discrimination related to leprosy needs to be collected in a more systematic manner to assess the magnitude of the problem and to further plan activities to reduce it.

Key recommendations from the consultation included counselling and reporting of incidences of discrimination. Efforts should be continued to inform facts about leprosy to the community.

The participants strongly recommended that leprosy programmes should adopt a ‘rights-based approach’ in line with the Sustainable Development Goals.

Rehabilitation in health systems

WORLD HEALTH ORGANISATION (WHO)
2017

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This document provides evidence-based, expert-informed recommendations and good practice statements to support health systems and stakeholders in strengthening and extending high-quality rehabilitation services so that they can better respond to the needs of populations. The recommendations are intended for government leaders and health policy-makers and are also relevant for sectors such as workforce and training. The recommendations and good practice statements may also be useful for people involved in rehabilitation research, service delivery, financing and assistive products, including professional organisations, academic institutions, civil society and nongovernmental and international organisations. The recommendations focus solely on rehabilitation in the context of health systems. They address the elements of service delivery and financing specifically. The recommendations were developed according to standard WHO procedures, detailed in the WHO handbook for guideline development

Capturing the difference we make : community-based rehabilitation indicators manual

WORLD HEALTH ORGANIZATION (WHO)
2015

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This manual presents indicators that "capture the difference (Community-Based Rehabilitation) CBR makes in the lives of people with disabilities in the communities where it is implemented. This manual presents these (base and supplementary) indicators and provides simple guidance on collecting the data needed to inform them. The indicators have been developed to show the difference between people living with a disability and their families and those without disabilities in relation to the information reported in the indicators. This comparability provides valuable information to CBR managers, donors and government agencies alike, which can be used to guide decision-making, support advocacy and improve accountability. Further, the ability of the indicators to provide a comparison of the populations of persons with disability to persons without disability aligns with the United Nations Convention on the Rights of Persons with Disabilities (CRPD), which states that persons with disability have equal rights to those without disabilities...this manual serves to standardize the monitoring of differences made by in the lives of people with disabilities and their families, making it possible to compare the difference CBR makes across areas and countries. This manual aligns with the WHO Global Disability Action Plan 2014–2021, and may also be used to monitor other development plans in an easy and efficient way”

Disability action plan

WORLD HEALTH ORGANIZATION (WHO)
April 2014

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The Action Plan is based on the recommendations of the WHO and World Bank World report on disability and in line with the Convention on the Rights of Persons with Disabilities. It was developed in consultation with Member States, United Nations organizations and national and international partners including organizations of people with disabilities.

The Action Plan has three objectives : to remove barriers and improve access to health services and programmes; to strengthen and extend rehabilitation, habilitation, assistive technology, assistance and support services, and community-based rehabilitation; to strengthen collection of relevant and internationally comparable data on disability and support research on disability and related services

Community-based rehabilitation : CBR guidelines

WORLD HEALTH ORGANIZATION (WHO)
et al
2010

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These guidelines provide an overview of key CBR concepts, indentify goals and outcomes that CBR programmes should be working towards, and provide suggested activities to achieve these goals. The guidelines are presented in seven separate booklets: Introductory booklet, Health component, Education component, Livelihood component, Social component, Empowerment component and Supplementary booklet. This resource is useful for people interested in inclusive community-based development for people with disabilities
Note: Links are provided to the CBR Matrix and MP3 audio files

Community-based rehabilitation : CBR guidelines|Health component

WORLD HEALTH ORGANIZATION (WHO)
et al
2010

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This component of the CBR Guidelines focuses on health and how to make it inclusive. It describes "the role of CBR is to work closely with the health sector to ensure that the needs of people with disabilities and their family members are addressed in the areas of health promotion, prevention, medical care, rehabilitation and assistive devices. CBR also needs to work with individuals and their families to facilitate their access to health services and to work with other sectors to ensure that all aspects of health are addressed"
It outlines key concepts and then presents the core concepts, examples and areas of suggested activities in each of the following five elements: Health promotion; Prevention; Medical care; Rehabilitation; and Assistive devices. This guideline is useful for anyone interested in health component of CBR

International day of persons with disabilities : 3 December 2010|Keeping the promise : mainstreaming disability in the millennium development goals towards 2015 and beyond

WORLD HEALTH ORGANIZATION (WHO)
2010

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"CBR has become a flexible and dynamic strategy which can be adapted to suit different contexts, and where properly funded and supported, can make a contribution towards the implementation of the CRPD and achievement of the MDGs." This factsheet outlines how CBR can be used as a strategy to achieve the MDGs

Community-based rehabilitation : CBR Guidelines|Education component

WORLD HEALTH ORGANIZATION (WHO)
et al
2010

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This component of the CBR Guidelines focuses on education and how to make it inclusive. It describes "the role of CBR is to work with the education sector to help make education inclusive at all levels, and to facilitate access to education and lifelong learning for people with disabilities." It outlines key concepts and then presents the core concepts, examples and areas of suggested activities in each of the following five elements: Early childhood care and education; Primary education; Secondary and higher education; Non-formal education; and Lifelong learning. This guideline is useful for anyone interested in the education component of CBR

Community-based rehabilitation : CBR guidelines|Livelihood component

WORLD HEALTH ORGANIZATION (WHO)
et al
2010

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This component of the CBR Guidelines focuses on inclusive livelihoods. It describes "the role of CBR is to facilitate access for people with disabilities and their families to acquiring skills, livelihood opportunities, enhanced participation in community life and self-fulfilment." The guideline outlines key concepts, and then presents the core concepts, examples and areas of suggested activities in each of the following five elements: Skills development; Self-employment; Wage employment; Financial services; Social protection. This guideline is useful for anyone interested in livelihood component of CBR

Community-based rehabilitation : CBR Guidelines|Social component

WORLD HEALTH ORGANIZATION (WHO)
et al
2010

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This component of the CBR Guidelines focuses on social component. It describes "the role of the CBR is to work with all relevant stakeholders to ensure the full participation of people with disabilities in the social life of their families and communities. CBR programmes can provide support and assistance to people with disabilities to enable them to access social opportunities, and can challenge stigma and discrimination to bring about positive social change." The guideline outlines key concepts, and then presents the core concepts, examples and areas of suggested activities in each of the following five elements: Personal Assistance; Relationships, marriage and family; Culture and arts; Recreation, leisure and sport; Justice. This guideline is useful for anyone interested in social component of CBR

Community-based rehabilitation : CBR guidelines|Supplementary booklet

WORLD HEALTH ORGANIZATION (WHO)
et al
2010

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"These community-based rehabilitation (CBR) guidelines are applicable to all disability groups. However, the need was identified for a supplementary booklet to highlight a number of issues which CBR programmes have historically overlooked, i.e. mental health problems, HIV/AIDS, leprosy and humanitarian crises...CBR is a strategy for community-based inclusive development which takes into account the principles of the Convention on the Rights of Persons with Disabilities, e.g. non-discrimination and the need to include all people with disabilities in development initiatives. Therefore, it is important that CBR programmes take steps to address issues which they have traditionally excluded, such as mental health problems, HIV/AIDS, leprosy and humanitarian crises. While these four issues have been chosen for inclusion in this booklet, CBR programmes are encouraged to think broadly about other issues (e.g. CBR and children, CBR and ageing) that are particularly relevant in their communities and which may be included in future editions of the guidelines"

Report on the consensus conference on wheelchairs for developing countries

SHELTON, Sarah
JACOBS, Norman A
Eds
2008

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This conference report assisted the development of guidelines on provision of manual wheelchairs in less-resourced settings for which training and education are key elements. It recommends the adoption of the wheelchair International Organization for Standardization (ISO) standards as a minimum. This report is useful for government and non-government policy makers, practitioners, providers and users of wheelchair services

WHO/ILEP technical guide on community-based rehabilitation and leprosy

WORLD HEALTH ORGANIZATION (WHO)
INTERANTIONAL FEDERATION OF ANTI-LEPROSY ASSOCIATIONS (ILEP)
2007

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This technical guide provides a reorientation and familiarisation tool for managers of leprosy projects and programmes. The analysis includes an outline of the broad objectives of CBR, the roles and tasks of programme managers, and the responsibilities of community workers. This resource would be useful for anyone with an interest in disability and development

Report on the 4th meeting of the development of CBR guidelines

WORLD HEALTH ORGANIZATION (WHO)
2007

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This report finalises each chapter of the first draft of the CBR Guidelines and decides on the layout, printing and production. Furthermore, the report addresses the dissemination strategy, fundraising strategy and the possibility to develop training packages for practitioners and design a future plan of action. This document is useful for people interested in CBR and the development of the CBR Guidelines

Meeting report on the development of guidelines for community based rehabilitation (CBR) programmes

WORLD HEALTH ORGANIZATION (WHO)
2005

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This report discusses the links between poverty and disability, and community based rehabilitation (CBR). CBR is a strategy for socio-economic development and it is essentially about human rights. The key principles of CBR are poverty alleviation, education, health and rehabilitation and enabling people with disabilities to participate in the whole range of human activities. The report presents a CBR draft framework, a step-by-step practical guideline for CBR programme implementers. The meeting also identified steps to be taken to develop CBR guidelines

2nd meeting report on the development of guidelines for community based rehabilitation (CBR)

WORLD HEALTH ORGANIZATION (WHO)
2005

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This meeting decided that the CBR guidelines would be a joint document of ILO, UNESCO and WHO. The members of the advisory group were finalised, and their reponsibilities were outlined to decide the content of the guidelines and its development. A revised CBR matrix was drafted. This document is useful for people interested in CBR and the development of the CBR Guidelines

CBR : a strategy for rehabilitation, equalization of opportunities, poverty reduction and social inclusion of people with disabilities - joint position paper 2004

WORLD HEALTH ORGANIZATION (WHO)
International Labour Organization (ILO)
United Nations Educational, Scientific and Cultural Organization (UNESCO)
et al
2004

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In 1994 the ILO, WHO and UNESCO published the first version of this joint position paper. Since then progress has been made in several fields. Nevertheless many disabled people are still not reached or included in the fields of rehabilitation, employment or education - particularly disabled women, people with mental health problems or HIV/AIDS and poor disabled people.
This paper underlines that community-based rehabilitation is a strategy promoting multi-sectoral collaboration to reach different community groups. CBR has to be based on the principles of equal opportunities, participation and human rights.

The relationship between prosthetics and orthotics services and community based rehabilitation (CBR)

WORLD HEALTH ORGANIZATION (WHO)
INTERNATIONAL SOCIETY FOR PROSTHETICS AND ORTHOTICS (ISPO)
November 2003

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"This document attempts to describe the relationship between prosthetics and orthotics services and community-based rehabilitation activities. It shows how the services offered by central/specialized, provincial and district institutions and the community can work together to provide a comprehensive prosthetics and orthotics service across the country. It should be noted that no definitive model of community based rehabilitation in prosthetics and orthotics is available; each country requires to develop its own system according to its needs and the resources available"

International consultation on reviewing community-based rehabilitation (CBR) organized by WHO : in collaboration with UN organisations, NGOs and DPOs hosted by the government of Finland Helsinki 25-28 May 2003, Theme Paper

WORLD HEALTH ORGANISATION (WHO)
MINISTRY OF SOCIAL AFFAIRS AND HEALTH
May 2003

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The conference was held to review the experiences of 20 years of CBR and evaluate the impact of the approach in order to provide a direction for the development of CBR in the new millennium

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