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No tech about us, without us

SALELKAR, Amba (IDA)
BANDUDKA, Maryam (GDI hub)
OJOK, Banya (IDA)
September 2023

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Two short talks concerning the centering of assistive technology projects on persons with disabilities and organisation of persons with disabilities (OPD/DPO). The talks are presented by a representative from IDA in India and one from IDA in Uganda. The talks are introduced by Maryam Bandudka of GDI hub. Story telling, the CPRD, communities of practice and advocacy are mentionned

 

Presented at the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023.

Embedding vital life skills into education to increase access to life opportunities

DONNELLY, Pete (Wheelchair Skills College)
September 2023

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A short talk given in the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023.

 

Difficulties experienced by children who are wheelchair users, both in use of the wheelchair and also in wider society are briefly described. The set up, and some of the associated issues in the set up,  of an organisation to teach wheelchair skills and life skills to wheelchair users is outlined. 

 

An introduction is given by Dr Tigmanshu Bhatnagar entitled "Innovation: are ecosystems ready to scale for success?"

How Koalaa is aiming to create sustainable access to prosthetics globally

MARSHALL, Niall (Koalaa)
September 2023

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A short talk given in the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023.

 

The start up, development and potential progress of a technology company manufacturing upper limb prosthetics is outlined. Pilot projects were set up and that in Sierra Leone is briefly described. It began with developing a network, listening to users comments, redeveloping the product and representing it to users. The challenges of the next step into larger scale manufactuing and supply, following positive outcomes from pilot projects round the world, are outlined. 

Evolution of inclusive design

MacKINNON, Iain
PATRICK, Michaela
September 2023

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A short talk given in the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023

 

A short account of the development of the knowledge around inclusive design starting with the London Olympic and Paralympic 2020 Games in East London and the growth of that knowledge with the growth of the GDI hub.

The intersectionality of inclusive design and effects of climate change are explored. The importance of inclusive design in future building in cities is emphasised.

Assistive Technology: what’s missing and why aren’t we there already?

BOTHELO, Fernando (UNICEF)
September 2023

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A short talk given in the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023

 

The importance of making accessibility a reality by default is highlighted in the context of business development. Long and short term economics are talked about. Internships and flexibility in job descriptions are highlighted. 

What next for disability innovation; assistive tech build in as the new standard of tech accessibility for all?

GOMPERTZ, Nick
September 2023

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A short talk given in the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023.

 

The story of the progress in the development and of issues with the roll out of Earswitch is briefly outlined. The particular advantages for people with communication difficulties owing to cerebral palsy, motor neurone disease and locked in syndrome and also the advantages for the general population are highlighted.  Work is being carried out on eye tracking. Difficulties in transitioning to market are discussed.

Can cities be inclusive?

PATRICK, Michaela
ARRUBLA PALACIO, Maria Clara
VASUDEVAN, D
JAMIL, Fuad
CHOUDHARY, Utsav
NARANGEREL, Tamirkhuu
September 2023

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5 short talks covering disability inclusivity in cities with speakers from Colombia, Indian, Indonsia and Mongolia. Part of the Disability Innovation Summit: Inclusive Interactions summit of 13 Sep 2023 held by the Global Disability Hub.

Strengthening government systems to empower children via early access to AT

SEGHERS, Fre (Clinton Health Access Initiative (CHAI))
September 2023

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A short talk in the Disability Innovation Summit: Inclusive Interactions conference held by GDI hub on 13 Sep 2023

Work required to shape markets for assistive technology for young children is explored including assessing numbers and types of disability, regulations, and community leaders involvement

AT DIGEST Issue 1, September 2023

INTERNATIONAL DISABILITY ALLIANCE (IDA)
GLOBAL DISABILITY INNOVATION HUB (GDI)
September 2023

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AT Digest is a quarterly publication curated by the International Disability Alliance with the objective of increasing awareness about the possibilities offered by assistive technology as experienced by its users. Additionally, it aims to disseminate information to a broad spectrum of assistive technology stakeholders, such as present and prospective users, manufacturers, and policymakers. Fellows of IDA and GDI’s Assistive Technology User Fellowship Program are the key creators of this publication, as they share their experiences, highlights from project activities, and author insightful, original articles.

 

This issue of the AT Digest is about CRPD jurisprudence on assistive technology. Fellows have collaboratively authored a substantive article titled Evolution of CRPD jurisprudence on Assistive Technologies through Concluding Observations: An analysis from Global South perspectives by analyzing AT related recommendations from IDA`s compilations of CRPD Committee`s concluding observations. 

Disability Innovation Summit: Inclusive Interactions

GLOBAL DISABILITY INNOVATION HUB
September 2023

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Disability Innovation Summit: Inclusive Interactions [13th & 14th Sept 2023]. Bringing together global experts and new voices to share big ideas and ask the question: What next for disability innovation?

DAY 1: Sharing big ideas and powerful insights

Disability innovation today...the good, the bad, the untold

Inclusive infrastructure: can cities be inclusive?
Innovation: are ecosystems ready to scale for success?
Participation and leadership: No tech about us, without us
What fails: and what's not needed. Disability dongles, failure or learning curve
What works: and why

DAY 2: Exploring a new horizon

Disability innovation tomorrow...what next

Disability justice: a disability innovation ambition or contradiction?
Para sport: a vehicle for community level social change?
Systems Strengthening, Disability innovation and Finance: is it possible to create the mechanisms for change?
Future tech: revolutionary solutions and AI – the new face of disability inclusion?

Innovative data use: can we learn more from what is already available?

DANEMAYER, Jamie
September 2023

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A short talk given at the Disability Innovation Summit: Inclusive Interactions conference organised by GDI hub on 13 Sep 2023.

The use of published datasets on the prevalence of disability is reviewed. The numbers of datasets and their harmonisation is described and the advantages, limitations and opportunities for use are outlined. 

My entrepreneurial journey: as a young person with cerebral palsy

SMITH, Lizzie
September 2023

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A short talk given in the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023.

The development of a company who creates children’s picture books to aid the delivery of complex disability and illness-related news to young children (0-5 years old) is outlined. The personal experiences from which the resources were developed are described (the author and company owner has cerebral palsy and has degrees in fine art and pyschology).

Inclusive Design and Accessibility in Medellín, Colombia. AT2030 Inclusive Infrastructure Case Studies

PATRICK, M
MULDOWNEY, A
ARRUBA PALACIO, M
AGUIRRE, M
McKINNON, I
August 2023

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Prepared by the Global Disability Innovation Hub and partners for the UK Foreign, Commonwealth and Development Office

Medellín, Colombia is the sixth and final case study city under the Global Disability Innovation Hub (GDI Hub) led and UK Aid funded AT2030 Inclusive Infrastructure sub-programme. Colombia’s second largest city, Medellín is well-known for its progress in urban development in the last 20 years, moving forward from its violent history. Medellín has been designated a district of innovation and is known for innovative urban projects such as its cable cars and electric escalators that connect higher altitude, low-income communities on the peripheries of the city. This case study explores the current state of accessibility and inclusion in the city for persons with disabilities and helps understand whether such urban innovations are inclusive for all the city’s residents.

Medellín is home to nearly 80,000 persons with disabilities and Colombia does have strong legal frameworks in place to support persons with disabilities. However, this case study found that the numerous laws and regulations are not always well implemented and there is also a need to consider more diverse disabilities in city planning and design.

The research took place in 3 phases between December 2022 and May 2023, combining both virtual and face to face approaches. Phase 1 focused on understanding the current state of accessibility through desk-based research and interviews. Phase 2 captured the lived experience of persons with disabilities through interviews, photo diaries and co-design activities. Phase 3 then synthesised the findings, running multiple in-person workshops to validate and create actions towards the creation of more inclusive environments. Thematic analysis was applied to understand the research data, identifying key themes across three different stakeholder groups of People, Policy, and Practice.

The themes identified span across daily life for persons with disabilities including, poverty, transport, housing, healthcare, public spaces and recreational activities. Quotes from participants are interwoven throughout the report and strengthen the concluding actions. The report recognises what has worked in Medellin as well as areas for improvement.

Inclusive Design and Accessibility of the Built Environment in Nairobi, Kenya

PATRICK, M
MULDOWNEY, A
KILIMANJARO BLIND TRUST AFRICA
TANUI, G
BUKACHI, V
CAMPBELL CLAUSE, J
McKINNON, I
October 2022

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Prepared by the Global Disability Innovation Hub and partners for the UK Foreign, Commonwealth and Development Office

This case study, funded through UK aid AT2030 programme, explores the current situation of inclusive and accessible environments for people with disabilities living in Nairobi. The research findings detailed in this report describe the current challenges and opportunities for embedding inclusive design in Nairobi’s future, providing priority recommendations and forward-thinking next steps.

The research took place in three phases between July 2021 and January 2022, combining both virtual and face to face approaches. Phase 1 focused on understanding the current state of accessibility through desk research and interviews, phase 2 captured the lived experience of people with disabilities utilising interviews, photo diaries and co-design activities. Phase 3 then synthesised findings, running multiple workshops to create actions towards inclusive environments. Thematic analysis was applied to understand the research data, identifying key themes across three different stakeholder groups of People, Policy, and Practice.

The themes identified span across daily life, poverty, transport, housing, sanitation, public spaces and recreational activities. Quotes from participants are interwoven into this report, and strengthen the concluding actions towards inclusion.

 

Assistive Technology in two humanitarian contexts: Bangladesh and Jordan

KETT, Maria
June 2022

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Despite increased focus on the need for assistive technology (AT), along with estimates of need and gaps in provision in humanitarian contexts, very little is actually known about how people who need AT are managing in these contexts. To address this need, this study explored four main questions: 

What do we currently know about the need for AT in humanitarian contexts?
How is this need currently met?
What gaps are there in the evidence about these needs?
What mechanisms are needed to ensure provision of AT in humanitarian contexts? 

It explored these questions through individual interviews with AT users and their families, as well as people working in the sector, in two humanitarian response contexts: Bangladesh and Jordan. In Bangladesh, we partnered with CBM Global and their local partner, the Centre for Disability in Development, and in Jordan, all those interviewed were beneficiaries of HelpAge International.

The questions focused on the areas identified as gaps in the initial literature review, and used qualitative methodologies to probe and gain further insight into gaps across the entire AT ecosystem.

Assistive Technology in urban low-income communities in Sierra Leone & Indonesia: Rapid Assistive Technology Assessment (rATA) survey results

CAREW, Mark
WALKER, Julian
OSSUL-VERMEHREN, Ignacia
BARTLETT DEVELOPMENT PLANNING
January 2022

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It is estimated by the World Health Organisation (WHO) that 15% of the world's population has a disability and one billion people need one or more Assistive Products (AP) but as little as one in ten have access to the device they need. There is however very little data to define this need for AP in low-resource settings. 

To contribute to the knowledge gap, the findings from the surveys presented in this report give a unique insight into disability prevalence and access to AT in five urban low-income communities in Sierra Leone and Indonesia, where a total of 4,256 individuals were surveyed using the rATA tool.

The rATA tool is designed for the rapid evaluation of the need, use, supply and impact of AT, Rapid Assistive Technology Assessment (rATA) is a new survey from WHO. A version modified by the Development Planning Unit-University College London (DPUUCL) was conducted in September 2019 for the research project “AT2030 community led solutions”, as part of the AT2030 programme led by Global Disability Innovation Hub.

Inclusive design and accessibility of the built environment in Varanasi, India: AT2030 Inclusive Infrastructure Case Studies

PATRICK, Michaela
MCKINNON, Iain
MISHRA, Satish
GUPTA, Shivani
ROY, Prabha
CHOUDHURY, Utsav
MURUGHAR, Kavita
RAHEJA, Gaurav
October 2021

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This is the second of six case studies analysing the state of accessibility and inclusive design in low-resource contexts around the world. The six independent case studies will be analysed to develop a comparison report and finally a global action report that will offer evidence and recommendations that support making infrastructure, the built environment and urban development in low-resource settings more accessible and inclusive.

This purpose of this case study is to explore the state of inclusive and accessible environments for persons with disabilities in Varanasi, India, through engagement with policy, industry and community stakeholders (policy, practice and people). Through this engagement, the case study is developing evidence on the challenges and opportunities for implementing inclusive and accessible design in Varanasi and makes recommendations on local actions towards becoming a more inclusive city.

Preventing lifelong impairment: Access to clubfoot treatment in low and middle income countries

CLINTON HEALTH ACCESS INITIATIVE (CHAI)
July 2021

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Congenital talipes equinovarus (CTEV), commonly known as clubfoot is one of the most common congenital conditions, affecting 1 in 800 births. Left untreated, it can lead to life-long impairment, impacting participation in society, education, and employment. Most children with clubfoot can be successfully treated with the Ponseti method, a low-cost, cost-effective, and minimally invasive treatment protocol. Despite progress, less than 1 in 5 children born with clubfoot in low- and middle-income countries (LMICs) currently receive treatment.

Recommendations are made to increase this treatment rate.

Preventing lifelong impairment: Access to clubfoot treatment in low and middle income countries

CLINTON HEALTH ACCESS INITIATIVE (CHAI)
July 2021

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Congenital talipes equinovarus (CTEV), commonly known as clubfoot is one of the most common congenital conditions, affecting 1 in 800 births. Left untreated, it can lead to life-long impairment, impacting participation in society, education, and employment. Most children with clubfoot can be successfully treated with the Ponseti method, a low-cost, cost-effective, and minimally invasive treatment protocol. Despite progress, less than 1 in 5 children born with clubfoot in low- and middle-income countries (LMICs) currently receive treatment

Clubfoot services require coordination and leadership between different departments within health ministries. Both are often missing

 

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