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Disability interactions creating inclusive innovations

HOLLOWAY, Catherine
BARBARESCHI, Giulia
January 2022

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Disability interactions (DIX) is a new approach to combining cross-disciplinary methods and theories from Human Computer Interaction (HCI), disability studies, assistive technology, and social development to co-create new technologies, experiences, and ways of working with disabled people. DIX focuses on the interactions people have with their technologies and the interactions which result because of technology use. A central theme of the approach is to tackle complex issues where disability problems are part of a system that does not have a simple solution. Therefore, DIX pushes researchers and practitioners to take a challenge-based approach, which enables both applied and basic research to happen alongside one another. DIX complements other frameworks and approaches that have been developed within HCI research and beyond. Traditional accessibility approaches are likely to focus on specific aspects of technology design and use without considering how features of large-scale assistive technology systems might influence the experiences of people with disabilities. DIX aims to embrace complexity from the start, to better translate the work of accessibility and assistive technology research into the real world. DIX also has a stronger focus on user-centered and participatory approaches across the whole value chain of technology, ensuring we design with the full system of technology in mind (from conceptualization and development to large-scale distribution and access). DIX also helps to acknowledge that solutions and approaches are often non-binary and that technologies and interactions that deliver value to disabled people in one situation can become a hindrance in a different context. Therefore, it offers a more nuanced guide to designing within the disability space, which expands the more traditional problem-solving approaches to designing for accessibility. This book explores why such a novel approach is needed and gives case studies of applications highlighting how different areas of focus—from education to health to work to global development—can benefit from applying a DIX perspective. We conclude with some lessons learned and a look ahead to the next 60 years of DIX.

 

https://doi.org/10.1007/978-3-031-03759-7

 

STEP-UP: Enabling low-cost IMU sensors to predict the type of dementia during everyday stair climbing

HOLLOWAY, Catherine
BHOT, William
YONG, Keir Y. Y.
et al
January 2022

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Posterior Cortical Atrophy is a rare but significant form of dementia which affects people's visual ability before their memory. This is often misdiagnosed as an eyesight rather than brain sight problem. This paper aims to address the frequent, initial misdiagnosis of this disease as a vision problem through the use of an intelligent, cost-effective, wearable system, alongside diagnosis of the more typical Alzheimer's Disease.

Frontiers in Computer Science, 31 January 2022

 

ICT Directory for Inclusive Education

Humanity and Inclusion
et al
December 2021

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•The ICT Directory for Inclusive Education presents Information and Communication Technologies (ICTs) that have the potential to foster the education of children with disabilities in inclusive schools.
•The ICTs are presented according to the type of difficulties they can address. These difficulties, which are defined in the Washington Group questionnaire, can affect a student’s participation in the classroom:
-Visual impairment
-Hearing impairment
-Communication difficulties
-Difficulty remembering/concentrating/learning
-Difficulty moving upper limbs
 

Social protection for disability inclusion in Uganda

Development Initiatives
December 2021

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Investing in disability-inclusive social protection programmes is critical for addressing the diverse risks, poverty, inequalities and exclusion that are often associated with disability. Moreover, persons with disabilities and their families live with lifelong consequences that are exacerbated by disability-related costs and barriers that exclude or limit their active participation in community engagements and socioeconomic spheres.

This paper provides an in-depth assessment of the progress that the Uganda government has made to establish disability-inclusive social protection programmes. The paper reviews the legal and policy frameworks and the institutional arrangement for social protection in Uganda. It also assesses the investment in disability-specific and mainstream social protection programmes based on a budget tracking exercise covering the five financial years (FY) from 2016/17 to 2020/21.

Social protection for disability inclusion in Kenya

Development Initiatives
December 2021

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Disability and poverty are inextricably linked, with lifelong consequences for persons with disabilities and their families. Investing in a disability-inclusive social protection system, therefore, is critical for addressing the diverse risks, inequalities, disability-related costs and barriers that limit the participation of persons with disabilities in their communities.

This analysis provides an in-depth assessment of the progress that the national government of Kenya has made to establish disability-inclusive social protection programmes. It reviews the policy/legal framework and the institutional arrangements for social protection in Kenya. It also reviews public investments in disability-specific and mainstream social protection programmes based on a budget tracking exercise covering five financial years (FY) between 2017/18 and 2021/22.

Engagement with Organizations of Persons with Disabilities. Learning about meaningful engagement in public health emergencies, including COVID-19

UNITED NATIONS CHILDREN'S FUND (UNICEF)
December 2021

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This report was produced under a United Nations Partnership on the Rights of Persons with Disabilities (UNPRPD) project to support countries in designing and implementing disability-inclusive response and recovery planning for COVID-19. Throughout this project, UNICEF documented examples of good practice and learnings from partnerships with organizations of people with disabilities (OPDs) in public health emergencies, including COVID-19. The objectives of this initiative were to gain a better understanding of the factors that facilitate effective partnerships between humanitarian actors and local, regional, and national OPDs, and the challenges to be addressed.

This report presents the findings from a ‘deep dive’ undertaken by UNICEF East Asia and the Pacific Regional Office to consider the experiences in Cambodia, Indonesia, the Lao People’s Democratic Republic, Malaysia, Myanmar, the Philippines and the Pacific. The target audience for this report includes OPDs and humanitarian actors at global, regional, and country levels.

Applying market shaping approaches to increase access to assistive technology in low- and middle-income countries

SAVAGE, Margaret
ALBALA, Sarah
SEGHERS, Frederic
KATTEL, Rainer
LIAO, Cynthia
CHAUDRON, Mathilde
AFDHILA, Novia
December 2021

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Development outcomes are inextricably linked to the health of the marketplace that delivers products and services to people in low- and middle- income countries (LMIC). Shortcomings in the market for assistive technology (AT) contribute to low access in LMIC. Market shaping is aimed at improving a market’s specific outcomes, such as access to high quality, affordable AT, by targeting the root causes of these shortcomings. The paper summarizes the findings of a market and sector analysis that was conducted under the UK aid funded AT2030 programme and aims to discuss how market shaping can help more people gain access to the AT that they need and what are the best mechanisms to unlock markets and commercial opportunity in LMICs.

 

Assistive Technology 
The Official Journal of RESNA
Volume 33, 2021 - Issue sup1: Companion Papers to the Global Report on Assistive Technology

https://doi.org/10.1080/10400435.2021.1991050

A review of innovation strategies and processes to improve access to AT: Looking ahead to open innovation ecosystems

HOLLOWAY, Catherine
MORGADO RAMIREZ, Dafne Zuleima
BHATNAGAR, Tigmansu
OLDFREY, Ben
et al
December 2021

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It is essential to understand the strategies and processes which are deployed currently across the Assistive Technology (AT) space toward measuring innovation. The main aim of this paper is to identify functional innovation strategies and processes which are being or can be deployed in the AT space to increase access to AT globally.

 


Assistive Technology 
The Official Journal of RESNA
Volume 33, 2021 - Issue sup1: Companion Papers to the Global Report on Assistive Technology
 

https://doi.org/10.1080/10400435.2021.1970653

Measuring assistive technology supply and demand: A scoping review

DANEMAYER, Jamie
BOGGS, Dorothy
SMITH, Emma
DELGADO RAMOS, Vinicius
BATISTELLA, Linamara R
HOLLOWAY, Catherine
POLACK, Sarah
December 2021

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The supply of and market demand for assistive products (APs) are complex and influenced by diverse stakeholders. The methods used to collect AP population-level market data are similarly varied. In this paper, we review current population-level AP supply and demand estimation methods for five priority APs and provide recommendations for improving national and global AP market evaluation.

Abstracts resulting from a systematic search were double-screened. Extracted data include WHO world region, publication year, age-groups, AP domain(s), study method, and individual assessment approach.

 

Assistive Technology 
The Official Journal of RESNA
Volume 33, 2021 - Issue sup1: Companion Papers to the Global Report on Assistive Technology

https://doi.org/10.1080/10400435.2021.1957039

Uganda's disability data landscape and the economic inclusion of persons with disabilities

Development Initiatives
November 2021

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This report looks at the landscape of data on disability in Uganda – summarising what data on persons with disabilities is available, who produces and uses it, and how – as well as what this means for the economic inclusion of persons with disabilities.

 

For persons with disabilities to benefit from and contribute to society and the economy there needs to be effective policies, programmes and services that support their inclusion, particularly in employment. Reliable information and data on persons with disabilities, known as ‘disability data’, is essential to planning and for decision-making. When it is of high quality, accessible and used effectively, disability data can help organisations of persons with disabilities (OPDs), civil society, government and businesses better understand and prioritise interventions that are vital for supporting persons with disabilities and ensuring their inclusion.

 

OPDs, civil society and the government have an important role to play in strengthening the landscape of disability data. Developed as part of Development Initiatives’ work on data to support disability inclusion, in consultation with Uganda’s disability rights movement, this report presents an analysis of Uganda’s landscape of disability data. It highlights important data sources, challenges and recommendations, providing a valuable evidence base to inform efforts aimed at strengthening the enabling environment for disability inclusion.

Inclusive design and accessibility of the built environment in Varanasi, India: AT2030 Inclusive Infrastructure Case Studies

PATRICK, Michaela
MCKINNON, Iain
MISHRA, Satish
GUPTA, Shivani
ROY, Prabha
CHOUDHURY, Utsav
MURUGHAR, Kavita
RAHEJA, Gaurav
October 2021

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This is the second of six case studies analysing the state of accessibility and inclusive design in low-resource contexts around the world. The six independent case studies will be analysed to develop a comparison report and finally a global action report that will offer evidence and recommendations that support making infrastructure, the built environment and urban development in low-resource settings more accessible and inclusive.

This purpose of this case study is to explore the state of inclusive and accessible environments for persons with disabilities in Varanasi, India, through engagement with policy, industry and community stakeholders (policy, practice and people). Through this engagement, the case study is developing evidence on the challenges and opportunities for implementing inclusive and accessible design in Varanasi and makes recommendations on local actions towards becoming a more inclusive city.

No safe recovery: The impact of explosive ordnance contamination on affected populations in Iraq

HUMANITY & INCLUSION (HI)
October 2021

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Based on desk review and qualitative interviews with land release operators, local and international humanitarian actors, government representatives, community leaders, survivors and members of their families and communities, this report identifies and describes the negative impact of Explosive Ordnance (EO) contamination on affected communities in the Ninewa governorate, Iraq. EO continues to pose a threat to people’s lives, their safety, and their access to land and other resources and services in contaminated areas in Ninewa. It also hampers the efforts of humanitarian and development actors. Moreover, certain groups, such as women and persons with disabilities are likely to be more vulnerable to the reverberating effects of EO contamination.

The report focused on Iraq’s heavily populated governorate of Ninewa, home to the cities of Mosul, Sinjar, and Tel Afar. Demining bombed-out cities costs six times as much as it does to clear a rural setting.

Lives turned upside down in COVID-19 times: exploring disabled people's experiences in 5 low-and-middle income countries using narrative interviews

WICKENDEN, Mary
SHAW, Jackie
THOMPSON, Stephen
ROHWERDER, Brigitte
2021

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This article explores COVID-19 related experiences of disabled people in Bangladesh, Kenya, Nigeria, Nepal and Uganda. Narrative interviews generated storied responses, focussing on respondents' priorities, which enabled us to hear what was most significant for them and their families. 143 interviews were conducted online or by phone by 7 local researchers (3 disabled), with appropriate inclusive support. Nearly everyone was interviewed twice to capture the progression of impacts over time. The data was analysed thematically through a virtual participatory approach. An overarching 'subjective' theme of feelings experienced by the participants was labelled 'destabilisation, disorientation and uncertainty'. We also identified 'concrete' or material impacts. People experienced various dilemmas such as choosing between securing food and keeping safe, and tensions between receiving support and feeling increased vulnerability or dependence, with interplay between the emotions of fear, loss and hope. We found both the concept of liminality and grief models productive in understanding the progression of participants' experiences. Disabled people reported the same feelings, difficulties and impacts as others, reported in other literature, but often their pre-existing disadvantages have been exacerbated by the pandemic, including poverty, gender and impairment related stresses and discrimination, inaccessible services or relief, and exclusion from government initiatives.

A disability inclusive response to COVID-19 - four lessons learned about including people with disabilities in humanitarian aid

MORRIS, Lisa
ELLIOTT, Chris
PIERI, Susan
September 2021

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Inclusive Futures played a crucial role in supporting some of the most marginalised people with disabilities in Bangladesh, Kenya, Nepal, Nigeria, and Tanzania during the COVID-19 pandemic. This paper summarises what we learned and it can be used to include people with disabilities in future programming, particularly in contexts at risk of crisis.

The Globalization of the Diabetes Epidemic

BONNEAU, Claire
2021

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As globalization continues to bring everyone and everything closer together, not all of the trade-offs are necessarily positive. As we export our unique cultures and experiences around the globe, we also increase the spread of chronic health problems.

For much of the 20th century, a person’s likelihood of developing a chronic health disease like type II diabetes depended on the wealth of the country they lived in equally as much as their own biology and genetic factors. In wealthy, developed countries, people are much more likely to survive to old age and eventually pass away from diseases of affluence — chronic diseases like cancer, heart disease, and diabetes that primarily impact the ageing population. In contrast, people living in developing nations are much more likely to experience malnourishment, violence, and communicable diseases that have a major impact on their overall health and quality of life.

This distinction has proven to be true across many developed countries, including globalization giants like the United States. Even in the more economically disadvantaged areas of America, hardly anyone dies as a result of communicable diseases like tuberculosis, a disease that is still a serious problem in lesser developed nations. Alternatively, in low to middle-income countries, these types of health concerns are still a going concern. Alongside the increased risk of encountering a communicable disease, people living in these areas are also at a higher risk for developing diseases of affluence such as type II diabetes. In this way, people living in developing nations are more likely to experience cancer while also battling cholera infections, and someone living with diabetes is also more likely to be struggling with chronic malnourishment. This lack of distinction between diseases of affluence and communicable diseases puts people living in developing nations at a disadvantage.

In this new global landscape of health and disease, the impact of diabetes is truly overwhelming. Since 1980, the number of people living with diabetes has almost doubled from 152 million to between 285-347 million (1). As a result of this dramatic increase, health spending and global costs have also had to increase to meet the growing demand for care. In 2019, it is estimated that diabetes caused over 760 billion USD in health expenditures, making up about 10% of all global spending on adults (2).

As the prevalence of diabetes continues to grow around the world, we need to shift our attention to finding global solutions to this invisible epidemic. Understanding the connection between obesity, globalization, and diabetes is a great starting point in order to tackle this ever-growing global health problem.

Consequences of Exclusion: A Situation Report on Organisations of People with Disabilities and COVID-19 in Bangladesh, Nigeria, and Zimbabwe

September 2021

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The COVID-19 pandemic has exacerbated inequalities and barriers to social inclusion for people with disabilities. These experiences of social exclusion have been feltto an even greater extent by women with disabilities and under-represented groups of people with disabilities, leading to a range of effects on the operations and priorities of OPDs. To address a critical gap in the evidence base, the Disability Inclusion Helpdesk carried out a rapid assessment of the role of OPDs during the pandemic, and how the pandemic has affected OPDs’ operations and priorities.

“No One Represents Us” Lack of access to political participation for people with disabilities in Iraq

HUMAN RIGHTS WATCH
September 2021

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This report documents that Iraqi authorities have failed to secure electoral rights for Iraqis with disabilities. People with disabilities are often effectively denied their right to vote due to discriminatory legislation and inaccessible polling places and significant legislative and political obstacles to running for office.

Between January and August, Human Rights Watch interviewed 14 people with disabilities as well as activists, authorities, and the staff of the Independent High Electoral Commission (IHEC).

While the Iraqi government has not collected any reliable statistics on the number of people with disabilities, in 2019, the United Nation’s Committee on the Rights of Persons with Disabilities said that Iraq, plagued by decades of violence and war, has one of the world’s largest populations of people with disabilities.

Safe Back to School: Guide for supporting inclusive and equitable learning for the most marginalised children

SAVE THE CHILDREN
September 2021

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This guide will support field level staff to ensure that all children have access to safe learning opportunities that meet their individual needs. It outlines the barriers to learning that the most marginalised have access to safe learning opportunities that meet their individual needs. It outlines the barriers to learning that the most marginalised and excluded groups of children face and recommends interventions to support their inclusion in remote learning and their return to school. The guide also recommends key resources to use when designing interventions for inclusive and equitable learning.

Sections are included on mild, moderate and severe disabilities. 

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