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SOUTH SUDAN. Protection Analysis Update. Protection risks facing persons with disabilities and older persons

GLOBAL PROTECTION CLUSTER, UNHCR
October 2023

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This South Sudan Protection Analysis Update places a thematic focus on protection risks facing persons with disabilities and older persons.

The most recent census reported that 5% of the population in South Sudan, or approximately 424,000 people, were living with a disability. However, the current number is likely to be much higher, possibly reaching 1.2 million people, or 16% of the population, according to the global estimate. Data in South Sudan also suggests a rapid increase in the number of older persons each year, mounting to 5.1% of total population with this percentage expected to continue to steadily increase.

People with disabilities and older people in South Sudan are often excluded and face multiple challenges in accessing essential services and protection. Decades of civil war have increased the number of older people and persons with disabilities who are being left behind as they are unable to flee due to chronic health conditions and mobility impairments. People who have managed to flee the violence are often faced with barriers accessing protection and health services. Therefore, older people with and without disabilities in South Sudan face higher risks and greater challenges in getting the necessary humanitarian assistance.

Inclusive design and accessibility of the built environment in Freetown - an Inclusive Infrastructure Case Study from Sierra Leone

PATRICK, Michaela
MULDOWNEY, A
TURAY, A
KOROMA, B
McKINNON, I
October 2023

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Showcasing findings and recommendations for infrastructure, the built environment and urban development in Freetown, Sierra Leone, the case study provides actions towards creating a more accessible and inclusive city. Building a picture of the current state of inclusive design and accessibility of the built environment, the report sets out the potential for inclusive design to address existing barriers to inclusion for persons with disabilities.  

 

Research conducted in Sierra Leone included interviews, co-design workshops and photo diaries, with 15 stakeholders and 20 persons with disabilities living and working in the city.

 

Inclusive Infrastructure is a sub-programme of UK aid funded AT2030, testing ‘what works’ to improve access to life-changing Assistive Technology (AT) for all. The research demonstrates how access to AT is dependent on an enabling and inclusively designed built environment. The Sierra Leone case study is the fifth of six that help build a global picture of the current state of inclusion and accessibility in our cities through engaging local stakeholders and communities. 

 

No tech about us, without us

SALELKAR, Amba (IDA)
BANDUDKA, Maryam (GDI hub)
OJOK, Banya (IDA)
September 2023

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Two short talks concerning the centering of assistive technology projects on persons with disabilities and organisation of persons with disabilities (OPD/DPO). The talks are presented by a representative from IDA in India and one from IDA in Uganda. The talks are introduced by Maryam Bandudka of GDI hub. Story telling, the CPRD, communities of practice and advocacy are mentionned

 

Presented at the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023.

Embedding vital life skills into education to increase access to life opportunities

DONNELLY, Pete (Wheelchair Skills College)
September 2023

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A short talk given in the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023.

 

Difficulties experienced by children who are wheelchair users, both in use of the wheelchair and also in wider society are briefly described. The set up, and some of the associated issues in the set up,  of an organisation to teach wheelchair skills and life skills to wheelchair users is outlined. 

 

An introduction is given by Dr Tigmanshu Bhatnagar entitled "Innovation: are ecosystems ready to scale for success?"

Evolution of inclusive design

MacKINNON, Iain
PATRICK, Michaela
September 2023

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A short talk given in the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023

 

A short account of the development of the knowledge around inclusive design starting with the London Olympic and Paralympic 2020 Games in East London and the growth of that knowledge with the growth of the GDI hub.

The intersectionality of inclusive design and effects of climate change are explored. The importance of inclusive design in future building in cities is emphasised.

Assistive Technology: what’s missing and why aren’t we there already?

BOTHELO, Fernando (UNICEF)
September 2023

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A short talk given in the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023

 

The importance of making accessibility a reality by default is highlighted in the context of business development. Long and short term economics are talked about. Internships and flexibility in job descriptions are highlighted. 

Can cities be inclusive?

PATRICK, Michaela
ARRUBLA PALACIO, Maria Clara
VASUDEVAN, D
JAMIL, Fuad
CHOUDHARY, Utsav
NARANGEREL, Tamirkhuu
September 2023

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5 short talks covering disability inclusivity in cities with speakers from Colombia, Indian, Indonsia and Mongolia. Part of the Disability Innovation Summit: Inclusive Interactions summit of 13 Sep 2023 held by the Global Disability Hub.

Global Report on Children with Developmental Disabilities: from the margins to the mainstream

WORLD HEALTH ORGANISATION (WHO)
UNITED NATIONS CHILDREN'S FUND (UNICEF)
September 2023

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This WHO-UNICEF Global Report is a call for action to intentionally include children and young people with developmental disabilities in renewed global and country level efforts to enable transformations towards the SDGs.  It proposes priority actions to accelerate individual-, family-, community-, and society-level changes to achieve inclusion and health equity. The report makes the case for greater investment and accountability to build inclusive and responsive multisectoral care systems for children and young people with developmental disabilities. Using findings from research and practice and guided by the tenets of international human rights conventions, the report provides key insights into the state of knowledge, policy, programming, and public monitoring in respect of developmental disabilities.

What fails: and what's not needed, Disability Dongles

HOLLOWAY, Catherine
LANDRE, Anna
September 2023

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Presented at the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023.

 

A discussion concerning disability dongles (expensive technical solutions to disability problems without sufficient design input from disabled people - examples include a stair climbing wheelchair and an exoskeleton). Setting up networks of disabled people to input requirements, contextualisation of issues (for example the lack of repair facilities for wheelchairs especially in the global south), telemedicine, and the difficulties in appropriate funding for appropriate projects are discussed.

  

How disabled people are leading innovation and systems change in the UK

KANODIA, Kush
September 2023

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The most important part of innovation in systems change is the lived experience.

The successful campaign to eliminate car park charges for people with disabilities at NHS hospitals in the UK is outlined. (Charges from over 200 hospitals are now dismissed).

The ongoing campaign to exempt all people with disabilities who are "Blue badge" holders from charges associated with ULEZ (ultra low emission zones) or the equivalent in cities in the UK is also described. The importance of integrating climate action and disability rights is highlighted.  

Disability justice and stigma – Pathways to change

PUNEET, Singhal
September 2023

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Presented at the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023.

 

A short talk highlighting disability intersectionality, from personal experience of multiple unseen disabilities, poverty, marginalisation and abuse.

The work of the Global Network of Young Persons with Disabilities is highlighted.

Learning opportunities for blind students - numeracy, logical thinking and accessible artifacts

PODDAR, Roshni
September 2023

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Presented at the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023

 

The development of SEEDS (Scalable Educational Experiment with Digital Empowerment) by a collaboration of Microsoft Research India, Vision Empower and the Centre of Accessibility in the Global South, IIIT Bangalore, is described. India has over 240,00 children with visual impairment. The system uses feature phones rather than smart phones, IVR (Interactive Voice Response) - to enable the child to be rung back and HEXIS for braille. The use, piloting and challenges of the system are briefly outlined.

Can para-sport drive community-level change in Sub Saharan Africa

WONG, Jennifer
MAGALASI, Mufunanji
NKHOMA, Samuel Nakhozwe
MOGALO, Sheila
September 2023

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Presented at the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023.

 

Short presentations and a discussion are reported concerning the transformational change associated with para-sport in Sub Saharan Africa, highlighting Sport for Development, Para Sport against Stigma and I'mPOSSIBLE. 

Commentary of the highlights of the Tokyo Paralympic games were translated into the Malawian local language and were shown in mobile cinemas. Theatre for development produced provocative performances with communities re sports and stigma. The importance of a Paralympic sportsman visiting schools as a role model is highlighted. The journey of Malawi from having no paralympic athletes in London to today is outlined, highlighting the transformational growth in the ecosystem of educators, supporters, trainers, coaches and national technical officials. The importance of para-sport in reducing stigma is emphasised.  

Catalyzing action for millions more people to access assistive technology in LMICs

BIJLEVELD, Pascal
September 2023

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Presented at the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023

 

ATscale has a goal of reaching 500 million more people, mostly in low and middle income countries, with AT by 2030.

This short talk focusses on major fundamential issues found in the first 2 years of operations:

  • Awareness - lack of awareness of AT even amongst health professionals
  • Fragmentation - AT is not a sector and is fragmented in types of AT (vision, hearing, mobility etc), in ministries involved (social welfare, health, education etc), in civil society and in the private sector
  • Expertise - implementation is a challenge. AT needs to be built as a discipline

Future tech: revolutionary solutions and AI – the new face of disability inclusion?

HOLLOWAY, Catherine
CHO, Youngjun
CAVE, Richard
MWENDA, Brian
September 2023

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Presented at the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023.

 

Three short talks on future technologies and the use of Artificial Intelligence (AI). All three emphasise the importance of co-creation with people with disabilities. 

 

Topics in the first talk include: contributions of the use of AI to SDGs; problems with regulation; improved holistic understanding of non-communicable diseases; street route optimisation for peope with visual impairment; speach to text apps; storytelling for people with dementia; self care biosensors; improvements in the information seeking journey (example motor neurone disease)

 

The second relates to experiences in Ghana with people with cerebral palsy/speach and language issues and a speach recognition technology project carried out with Google. Issues with measurement of success are raised.

 

The third introduces work being carried out on mobility solutions for people with visual difficulties in Kenya and Hope Tech.

 

Accessibility and inclusion for deafblind people living in the Global South

KAMENOPOULOU, Leda
September 2023

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Presented at the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023.
 

A short presentation concerning the challenges surrounding inclusion of and accessibility for deafblind children and adults, particularly in the Global South.

Deafblindness is a spectrum and so a spectrum of approaches and of assistive aids is required. The most common cause of deaf blindness is aging. Most research has been carried out in the Global North. Very little has been carried out in the Global South or into the intersectionality with poverty, race and gender. 

Systems and action to advance disability inclusive financial services in the UK

WARDROP, Pollyanna
TOWNSEND, Kathryn
September 2023

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Presented at the Disability Innovation Summit: Inclusive Interactions conference organised by the GDI hub on 13 Sept 2023.

 

The importance of access to financial services and the challenges and work towards solutions are briefly overviewed with particular reference to innovation in the Nationwide Building Society in the UK.

Priorities identified for long term decision making concerned with services for people with disabilities were people with learning disabilities/neurodivergence/dementia, deaf people and the customer experience. The Nationwide introduced British Sgn Language (BSL) virtual interpretation for deaf people using a third party interpreter to enable independent banking. Difficulties encountered concerning risk and governance are highlighted.  Lessons learned and other progress e.g. provision of letters in BSL are briefly mentioned.

Inclusive Design and Accessibility in Medellín, Colombia. AT2030 Inclusive Infrastructure Case Studies

PATRICK, M
MULDOWNEY, A
ARRUBA PALACIO, M
AGUIRRE, M
McKINNON, I
August 2023

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Prepared by the Global Disability Innovation Hub and partners for the UK Foreign, Commonwealth and Development Office

Medellín, Colombia is the sixth and final case study city under the Global Disability Innovation Hub (GDI Hub) led and UK Aid funded AT2030 Inclusive Infrastructure sub-programme. Colombia’s second largest city, Medellín is well-known for its progress in urban development in the last 20 years, moving forward from its violent history. Medellín has been designated a district of innovation and is known for innovative urban projects such as its cable cars and electric escalators that connect higher altitude, low-income communities on the peripheries of the city. This case study explores the current state of accessibility and inclusion in the city for persons with disabilities and helps understand whether such urban innovations are inclusive for all the city’s residents.

Medellín is home to nearly 80,000 persons with disabilities and Colombia does have strong legal frameworks in place to support persons with disabilities. However, this case study found that the numerous laws and regulations are not always well implemented and there is also a need to consider more diverse disabilities in city planning and design.

The research took place in 3 phases between December 2022 and May 2023, combining both virtual and face to face approaches. Phase 1 focused on understanding the current state of accessibility through desk-based research and interviews. Phase 2 captured the lived experience of persons with disabilities through interviews, photo diaries and co-design activities. Phase 3 then synthesised the findings, running multiple in-person workshops to validate and create actions towards the creation of more inclusive environments. Thematic analysis was applied to understand the research data, identifying key themes across three different stakeholder groups of People, Policy, and Practice.

The themes identified span across daily life for persons with disabilities including, poverty, transport, housing, healthcare, public spaces and recreational activities. Quotes from participants are interwoven throughout the report and strengthen the concluding actions. The report recognises what has worked in Medellin as well as areas for improvement.

WHO disability-inclusive health services training package: a companion to the Disability-inclusive health services toolkit. A resource for health facilities in the Western Pacific Region

WORLD HEALTH ORGANISATION (WHO) WESTERN PACIFIC
June 2023

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The WHO Disability-Inclusive Health Services Training Package is a companion to the “WHO Disability-Inclusive Health Services Toolkit: A resource for health facilities in the Western Pacific Region” published by WHO in 2020. This package offers a range of additional training materials including presentations, workbooks and videos that will allow users to develop the foundational skills and understanding of the Toolkit for its implementation. Together the Toolkit and Training Package will help ensure equitable access to health services, best-quality outcomes and improved quality of life for all people with disabilities to achieve universal health coverage.

Assistive technology: The current perspective in India

SENJAM, Suraj S
MANNAM, Hasheem
May 2023

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Despite many challenges, India needs to formulate evidence-based AT policy, planning within the purview of the healthcare delivery system in collaboration with various government and nongovernment sectors, including industries. This article explores the need, access, and potential challenges associated with AT services in India. Finally, we discussed various initiatives on AT in the country and possible recommendations to improve AT services across.

 

Indian J Ophthalmol. 2023 May; 71(5): 1804–1809.

doi: 10.4103/IJO.IJO_2652_22

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