Advocacy: memory work

Awareness-raising and advocacy are key components of HIV and AIDS projects. By addressing complex, and often disabling social and political contexts, advocacy can help make the leap from lessons learned to positive, targetted communication for social change. Whether aimed at influencing political systems or changing social attitudes, evidence shows that the impact of advocacy is contingent on how it is approached. This list highlights bottom-up, participatory and citizen-centred approaches to advocacy, which are more responsive to the experiences of people affected by HIV and AIDS, and which build on the skills and resources of the entire community.

We welcome your feedback: please send comments or suggested additions to sourceassistant@hi-uk.org.

Selected resources

Approaches

A new weave of power, people & politics : the action guide for advocacy and citizen participation

VENEKLASEN, Lisa,
MILLER, Valerie
March 2007

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This comprehensive action guide provides an approach for building people’s participation and collective power that goes beyond influencing policy and politics to transforming public decision-making. It offers easily adaptable 'modules' for NGOs trainers, activists, grass-roots organisations, who wish to develop ideas around advocacy. One of the strengths is that it focuses on peoples participation and explores ideas relating to power and politics in citizen-centred advocacy. It emphasises power and constituency-building discussed through the lens of gender/race/class and is based upon the concrete experiences of social change worldwide
It also offers facilitators tips, sample exercises and easily adaptable handouts, along with core information to support anyone through the learning process. Based on long-term experience of a range of practitioners, the guide provides well-tested methods for promoting citizen participation and practical ways of realising a rights-based approach.
The contents, chapters 1, 3, 5, 10 and 13 can be accessed electronically

Communicating for advocacy [whole issue]

HEALTH ACTION INFORMATION NETWORK (HAIN)
2004

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This issue of Health Alert was conceptualized as an offshoot of the Communicating for Advocacy (CfA) Project of Healthlink Worldwide together with its partner organisations in Asia, including HAIN-Philippines. It features articles showing the importance of advocacy in NGO activities to influence polices and advance their cause. It presents some of the basic concepts in advocacy and working with the media. It particularly features the advocacy work and experiences of some of the CfA partner organisations in Sri Lanka (advocacy project on rational drug use), Cambodia (use of radio and soap opera to promote SRH), Bangladesh (advocacy on disability issues) and the Philippines (advocacy project of the Save the Abra River Movement)

Making UNGASS work

ASIA PACIFIC COUNCIL OF AIDS SERVICE ORGANISATIONS (APCASO)
2004

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Workshop manual designed to assist civil society groups working in HIV/AIDS to make the most of the UNGASS Declaration of Commitment on HIV/AIDS made in June 2001. It aims to generate an NGO/CBO national advocacy platform based on the UNGASS declaration and its indicators, and to facilitate the development of an action plan for the NGO/CBO sector based on UNGASS priorities. The workshop structure reflects the need to understand how UNGASS can be relevant to current activities; the need to stay within the limitations of current resources and activities and avoid generating a completely new set of project activities; and the need to work out how UNGASS can add value to what is already happening

Stories and case studies

Inspiring futures : learning from memory work in Africa

DUNN, Alison,
HAMMOND WARD, Sarah
2009

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This learning paper looks at the experiences of applying memory work as part of broader strategies to mitigate the impact of HIV and AIDS in five African countries. It explores how six NGOs in sub-Saharan Africa established memory work as a key component of their community-based HIV programmes and draws on the experience of people living with HIV and AIDS, children and young people who participated in the initiative, partner organisations' own learning and analysis and the end of project evaluation report

Moments in time : HIV/AIDS advocacy stories

POLICY PROJECT
July 2003

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This advocacy manual highlights some advocacy moments, as told by those who are engaged in advocacy work around the world. It offers a tapestry of stories as a practical resource for advocacy training, reflective learning and strategic planning. It begins a process of documenting HIV/AIDS policy advocacy stories as a means of preserving them and making them available to others

Rights passages from 'near death' to 'new life' : AIDS activism and treatment testimonies in South Africa

ROBINS, Steven
October 2005

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This paper investigates how the moral politics of AIDS activism in South Africa are contributing towards new forms of biological/health citizenship that are concerned with both rights-based struggles and creating collectively shared meanings of the extreme experiences of illness and stigmatisation of individuals living with AIDS. The paper argues that it is precisely the extremity of 'near death' experiences of full blown AIDS, and the profound stigma and 'social death' associated with the later stages of the disease that produce the conditions for AIDS survivors commitment to 'new life' and social activism. It is the activist mediation and re-telling of these traumatic experiences that facilitates AIDS activist commitment and grassroots mobilisation. It is the profound negativity of stigma and social death that animates the activist's construction of a new positive HIV-positive identity and understanding of what it means to be a citizen-activist and member of a social movement

Tools

Advanced dealing with media : a practical guide

VAN KAMPEN, Joke
2002

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Practical advice for using media to raise an organisation's profile, generate support and fundraising, and stimulate discussion. Discusses news releases and feature stories, interviews, conference presentations, press conferences and press tours

Advocacy for HIV/AIDS [whole issue]

COMMUNICATION FOR HEALTH INDIA NETWORK (CHIN) SECRETARIAT
April 2005

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This issue highlights the situation of HIV/AIDS in India, the need for advocacy and advocating comprehensive strategies, and also brings the glimpses of the workshop on HIV/AIDS. An additional feature is the personal accounts by people living with HIV, and the trauma they underwent, the process of their empowerment to face the situation with confidence

Advocacy guide for HIV/AIDS

HAMAND, Jeremy
June 2001

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This guide describes what advocacy can do, often at little cost, in the prevention of HIV/AIDS. It does not describe how to organise advocacy campaigns, as this is covered in other publications, but instead tries to focus on how advocacy can further awareness, combat stigma, and address barriers to care at all levels. Suggests how advocacy can address issues experienced by all PLWHA and by specific vulnerable groups, such as children, prisoners, drug users and others

Advocacy in action : a toolkit to support NGOs and CBOs responding to HIV/AIDS

INTERNATIONAL HIV/AIDS ALLIANCE
2002

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A comprehensive toolkit designed for people and organisations that support NGOs/CBOs responding to HIV/AIDS in developing countries. Introduces the concept of advocacy ('influencing people and organisations in power to create an environment which protects the rights, health and welfare of everyone'); provides a step-by-step guide to planning and implementing advocacy work; and provides information and skills-building activities. Includes 'A facilitator's guide to participatory workshops' and '100 ways to energise groups : games to use in workshops, meetings and the community'. All materials are on the CD-ROM, which is included in the pack, and on the International HIV/AIDS Alliance website

Advocacy toolkit : practical action in advocacy

GORDON, Graham
2002

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This second volume of Tearfund's Advocacy Toolkit is a step-by step guide to planning an advocacy activity, large or small, and consists mainly of tools and exercises. The introduction describes the planning process and outlines a Summary Advocacy Strategy. The following sections describe five parts of the planning cycle in detail

An introduction to advocacy : training guide

SHARMA, Ritu R
1995

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Sets out the purpose and methods of advocacy; builds basic advocacy skills; promotes the use and impact of information through advocacy. Designed for anyone who wants to influence policies through advocacy. Sections can be adapted for use in training at meetings or conferences, or can inform research dissemination or communication strategies

Dealing with media : a practical guide

VAN KAMPEN, Joke
2002

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Concise, practical advice for dealing with media, developed by the EC/UNFPA Initiative for Reproductive Health in Asia, but applicable to NGOs anywhere. Discusses the benefits of having a media strategy and a relationship with the media. Outlines the steps to developing a media strategy, including defining your message and your target audiences, and building up effective contacts. Finally advises on how to deal with hostile media/negative media coverage

Networking for policy change : an advocacy training manual

POLICY PROJECT
1999

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This training manual was prepared to help representatives of NGOs and other formal groups of civil society form and maintain advocacy networks and develop effective family planning/reproductive health advocacy skills. The manual's tools and approaches can be used to affect FP/RH policy decisions at the international, national, regional, and local levels. It identifies three building blocks of advocacy: the formation of networks, the identification of political opportunities, and the organisation of campaigns. The manual includes a section on each of these building blocks, with specific subjects presented in individual units. Units within each section contain background notes, learning objectives, and handouts. While the manual can be used in its entirety, it is designed to be used in sections depending on the particular needs of the network

Pathways to partnerships : toolkit

INTERNATIONAL HIV/AIDS ALLIANCE
1999

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Building in-depth relationships and meaningful networks is crucial to an effective response to HIV and AIDS. Partnerships generate greater NGOs mobilisation, NGOs capacity building and favour the sharing of lessons learned. This publication, which draws on Alliance's experience and has been extensively field tested, discusses what developing partnerships entails, how to develop a partnership plan, how to build effective partnership and how to monitor and share lessons about partnerships. Includes activities and exercises for workshops. The toolkit is suitable for use with NGOs and community groups with varied levels of experience in building partnerships and it is designed to be used flexibly by facilitators

Writing for change : an interactive guide to effective writing, writing for science, and writing for advocacy

FAHAMU
2002

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This training resource is designed primarily for people working in the not-for-profit sector, including researchers, scientists, project managers, team members, campaigners, fundraisers, social activists and writers. Divided into three sections: 'Effective Writing: Core Skills', 'Writing for Science', and 'Writing for Advocacy'. 'Effective Writing: Core Skills' helps to develop the skills needed to write clearly and purposefully, organise ideas and express them well. 'Writing for Science' shows how to produce writing for publication in specialist journals. It teaches how to build on the core skills of effective writing and add further skills that apply to this specialised type of writing. This section gives a better chance of getting published, discusses the ethics of authorship, how to respond to editors and correct proofs. 'Writing for Advocacy' contains a wealth of advice on how to win hearts and minds and how to adapt core writing skills to lobbying or campaigning documents. The section looks at articles, leaflets, newsletters, pamphlets, press releases and posters. Extra features include a resource centre with suggestions for further reading and links to useful websites and resources

Websites

Pan-African Treatment Access Movement (PATAM)

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PATAM is a social movement of individuals and organisations dedicated to mobilising communities, political leaders and all sectors to ensure access to antiretroviral (ARV) treatment, as a fundamental part of comprehensive care for all people with HIV/AIDS in Africa. The PATAM was created in response to the unacceptable situation where the greatest number of people living with HIV/AIDS in the world today are located on the African continent but do not have sufficient access to lifesaving medications. The site contains useful information on HIV and AIDS, advocacy strategies, and resources. It also provides links to information on treatment response strategies, treatment literacy and drug pricing

Treatment Action Campaign (TAC)

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The Treatment Action Campaign (TAC) has since 1998 been campaigning for greater access to HIV treatment for all South Africans, by raising public awareness and understanding about issues surrounding the availability, affordability and use of HIV treatments. It campaigns for equitable access to affordable treatment for all people with HIV/AIDS and supports the prevention and elimination of all new HIV infections. It promotes and sponsors legislation to ensure equal access to social services for and equal treatment of all people with HIV/AIDS. It challenges by means of litigation, lobbying, advocacy and all forms of legitimate social mobilisation, against any barrier or obstacle, including unfair discrimination that limits access to treatment for HIV/AIDS in the private and public sector. It educates, promotes and develops an understanding and commitment within all communities of developments in HIV/AIDS treatment. It campaigns for access to affordable and quality health care for all people in South Africa. It trains and develops a representative and effective leadership of people living with HIV/AIDS on the basis of equality and non-discrimination irrespective of race, gender, sexual orientation, disability, religion, sex, socio-economic status, nationality, marital status or any other ground. It campaigns for an effective regional and global network comprising of organisations with similar aims and objectives