A short review of the literature was carried out which derived some specific recommendations with regards to the needs of people with disabilities in cash transfer programming in the braod categories of: appropriate beneficiary targeting and assessment; accessibility of training and sensitisation materials; physical and sensorial access to markets, vendors and distributions points (including ATM); access to activities in cash for work; accessibility of technology; access to lost goods and services
Database of disability and health information resources
You can search the resource database by using the categories to the left or by typing a title, author or keywords in the search box above. Alternatively, you can browse the most recent resources below.
"Congenital talipes equinovarus (CTEV), or clubfoot, is a structural malformation that develops early in gestation. Birth prevalence of clubfoot is reported to vary both between and within low- and middle-income countries (LMICs), and this information is needed to plan treatment services. This systematic review aimed to understand the birth prevalence of clubfoot in LMIC settings."
"It is time to move from law to practice in the implementation of the rights of persons with disabilities
GENEVA (13 December 2016) – A United Nations human rights expert has urged States to redouble their efforts to end the marginalization of persons with disabilities, in a statement marking the anniversary of the UN Convention on the Rights of Persons with Disabilities.
Catalina Devandas Aguilar, the UN Special Rapporteur on the rights of persons with disabilities, said much work remained to be tackled, 10 years after the Convention was adopted by the UN General Assembly on 13 December 2006"
There currently is a severe Zika Virus (ZIKV) epidemic in Brazil and other South American countries. Due to international travel, this poses severe public health risk of ZIKV importation to other countries. We estimate the prevalence of ZIKV in an import region by the time a microcephaly case is detected, since microcephaly is presently the most significant indication of ZIKV presence. A mathematical model to describe ZIKV spread from a source region to an import region was established. This model incorporates both vector transmission (between humans and mosquitoes) and sexual transmission (from males to females). Account was taken of population structure through a contact network for sexually active individuals. Parameter values of the model are either taken from the literature or estimated from travel data
BMC Infectious Diseases (2016) 16:754 DOI 10.1186/s12879-016-2076-z
"Over the past year I have been working with WaterAid to revamp the Inclusive WaSH website. Our aim? To reignite an online space that promotes current best practice in inclusive water, sanitation and hygiene (WaSH) – inspiring learning and innovation across the sector globally as we work towards addressing barriers so that everyone everywhere has access to WaSH.
This week marks International Day of People with Disability, so I thought I’d shamelessly plug the website to show how important water and sanitation is to realising the human rights of people with disabilities: http://www.inclusivewash.org.au/
Since its inception four years ago, the website has had a diverse geographical reach – it is a great platform and we were excited to be able to bring new life to it! "
By Phoebe Maude, Bachelor of Health Science & International Development Intern, WaterAid Australia
The revamp of the Inclusive WaSH website which provides an online space promoting current best practice in inclusive water, sanitation and hygiene (WaSH) is reported. The importance of water and sanitation in realising the human rights of people with disabilities is highlighted. A “Community of Practice” section is new with a Cambodia Community of Practice now live, and one for Timor-Leste and Papua New Guinea underway.
"This publication seeks to support policymakers in promoting accessibility at a policy and practical level. It contains information on relevant global and regional mandates that support and promote disability-inclusive development and accessibility, with a view to demonstrate the multi-faceted value of focusing on disability and accessibility policies to achieve broader development goals. Readers will learn about the core concepts of disability and accessibility, and be empowered with knowledge on standards, tools and means of promoting accessibility. Furthermore, this publication will outline and analyse examples of good practices of accessibility identified in Asia and the Pacific. The majority of the good practices featured in this publication were initially discussed at two international and multi-stakeholder workshops that took place in 2014 and 2015, with a few additional examples drawn from Pacific island member States. The selection of practices for this publication is based on their embodiment of the principles of accessibility, demonstrated success, measurable impact on the community, and their adaptable and replicable nature"
"To mark the International Day of Persons with Disabilities (3 December), the International Association of Public Transport (UITP), IRU (World's Road Transport organisation) and EDF jointly publish an 'Accessibility Guide' to improve customer service for persons with disabilities and persons with reduced mobility.
The publication aims to show that service quality and inclusiveness are of paramount importance for the public transport sector.
The guide is one of the initiatives that we are undertaking to raise awareness amongst staff about the barriers still existing to a fully inclusive public transport system and how to best overcome them. It is targeted at public transport staff regularly interacting with passengers and can be used in the context of disability awareness trainings.
Gunta Anca, EDF Vice-President: “With this accessibility guide we want to give simple tips and advice on how to improve service for persons with disabilities. There is really nothing to be afraid of – we are passengers like everyone else, just sometimes we need a little bit more of your support and understanding.”
Thomas Avanzata, Director of the European Department at UITP: “An average person does not know much about persons with disabilities. With this guide, we hope to close the knowledge gap for our bus drivers and be able to offer an improved service to persons with disabilities. We are very happy about the cooperation with EDF and IRU and optimistic that such small initiatives can make a difference on the ground, especially at times where financial resources for costly infrastructure works are scarce.”
Rémi Lebeda, who leads IRU’s work on passenger transport in Europe: “This accessibility guide is an excellent tool to improve the quality of service offered to people with disabilities by drivers and operators. We thank EDF and UITP for their excellent cooperation in working on this important issue. In further recognition of the International Day of Persons with Disabilities the guide will also be available in accessible format.”
A special issue of the online journal "Intersectionalities - A Global Journal of Social Work Analysis, Research, Polity, and Practice", Vol 5, No.3 (2016) providing 10 articles on the theme of Mad studies. Titles of papers included are:
Doing Mad Studies: Making (Non)sense Together;
An Introduction to Anti-Black Sanism;
Why Mad Studies Needs Survivor Research and Survivor Research Needs Mad Studies;
Recovery-as-Policy as a Form of Neoliberal State Making;
“About Nothing Without Us”: A Comparative Analysis of Autonomous Organizing Among People Who Use Drugs and Psychiatrized Groups in Canada;
Too Young to Be Mad: Disabling Encounters with 'Normal' from the Perspectives of Psychiatrized Youth;
Relocating Mad_Trans Re_presentations Within an Intersectional Framework;
A Desire to be ‘Normal’? A Discursive and Intersectional Analysis of ‘Penetration Disorder’;
Racialized Communities, Producing Madness and Dangerousness;
Psy-Times: The Psycho-Politics of Resilience in University Student Life
Today there are Community-based Rehabilitation (CBR) programmes in a large number of countries. In many countries, the CBR approach is a part of the national rehabilitation services. However, there is a lack of reliable data about persons with disabilities who benefit from CBR and the kind of benefits they receive. This article reviews the disability data collection systems and presents some case studies to understand the influence of operational factors on data collection in the CBR programmes. The review shows that most CBR programmes use a variable number of broad functional categories to collect information about persons with disabilities, combined occasionally with more specific diagnostic categories. This categorisation is influenced by local contexts and operational factors, including the limitations of human and material resources available for its implementation, making it difficult to have comparable CBR data. Therefore, any strategies to strengthen the data collection in CBR programmes must take these operational factors into account.
"Disability, CBR and Inclusive Development aim to enhance knowledge in the field of disability, addressing the needs of practitioners in the field (particularly those from developing countries), policy makers, disabled persons’ organizations and the scientific community. The journal encourages publication of information that is evidence-based, to improve current knowledge and programmes implementation, and will be openly and freely accessible to all readers" ”Published four times a year, previously published two times per year
This Guide seeks to provide practical advice on the critical elements that States need to consider when establishing or strengthening their national mechanism for reporting and follow-up, and illustrates this advice with examples of State practice. It is based on the more comprehensive Study of State Engagement with International Human Rights Mechanisms (HR/PUB/16/1/Add.1), which contains more detailed information on these practices
In her report, the Special Rapporteur provides an overview of the activities undertaken in 2016, as well as a thematic study on access to support by persons with disabilities. The study includes guidance for States on how to ensure the provision of different forms of rights-based support and assistance for persons with disabilities, in consultation with them. In preparing the study, the Special Rapporteur convened a regional expert consultation in Addis Ababa in September 2016 and analysed the responses to a questionnaire sent to Member States, national human rights institutions, agencies of the United Nations system, civil society organisations and persons with disabilities and their representative organisations. As at 5 December 2016, she had received 114 responses.
Purpose: User satisfaction with assistive devices is a predictor of use and an important outcome measure. This study evaluated client satisfaction with prosthetic and orthotic assistive devices and services in three provinces in the Lao People’s Democratic Republic.
Method: A cross-sectional study was done, using the Quebec User Evaluation of Satisfaction with Assistive Technology questionnaire. The sample was drawn from the client register of three of the five Rehabilitation Centres in the country which are under the Ministry of Health’s Centre for Medical Rehabilitation. Clients were eligible if they had received their device in the 12 months prior to the study. Based on the number of registered clients, the sample size was calculated as 274 with a 95% confidence interval, with the final sample N = 266. Qualitative semi-structured interviews were also conducted (N = 34).
Results: Most of the assistive devices were in use at the time of the survey and were reported to be in good condition (n = 177, 66.5%). The total mean score for satisfaction (services and device combined) was 3.80 (SD 0.55). Statistically significant differences were observed in satisfaction between gender and location of residence. Effectiveness and comfort were rated as the two most important factors when using a device; at the same time, these were the most common reasons for dissatisfaction and sub-optimal use.
Conclusion and Implications: Clients were quite satisfied with the assistive device and services provided, yet many reported barriers to optimal device use and difficulties in accessing follow-up services. There is a need to examine how prosthetic and orthotic devices can be improved further for better comfort and ambulation on uneven ground in low-resource contexts and to address access barriers."
ADDC and ten of its members have produced a series of short videos featuring persons with disability who are, or were, engaged in a disability-inclusive development (DID) project or initiative (in Australia or overseas). In these videos they share their personal stories and how disability inclusive development projects changed their lives, benefitted their communities and contributed to a more inclusive society.
The video series was officially launched during a parliamentary event in Canberra on 30 November 2016 in the presence of some of the persons featuring in the videos and of senior politicians from different Australian political parties.
The event was opened by an address by Senator Concetta Fierravanti-Wells, Minister for International Development and the Pacific. In her speech, she confirmed both the Australian government’s and her personal strong commitment to ensuring that all Australian development programs are disability-inclusive and to championing DID internationally. You will find a transcript of the Minister’s speech here attached.
The way in which Value for Money (VfM) is understood and implemented has been a concern of the Bond Disability and Development Group for a number of years. In our experience, programmes that include people with disabilities are often assumed to represent poor VfM – mainly because they have a higher cost per beneficiary when compared to non-inclusive programmes. This paper makes the case for inclusion and argues that interventions that exclude people with disabilities do not represent good VfM. It then provides practical guidance on how to assess the VfM of programmes in an inclusive way. The paper is not about pushing back against the need to achieve VfM. Instead it is about avoiding conflict between VfM analysis and disability inclusion, and progressing the agenda in an inclusive way. We hope it will be a useful resource for those who use VfM assessments including donors, members of the Bond Disability and Development Group and the wider NGO sector.
The microcephaly epidemic, which started in Brazil in 2015, was declared a Public Health Emergency of International Concern by WHO in 2016. Preliminary results of a case-control study investigating the association between microcephaly and Zika virus infection during pregnancy are reported. A case-control study was carried out in eight public hospitals in Recife, Brazil. Cases were neonates with microcephaly. Two controls (neonates without microcephaly), matched by expected date of delivery and area of residence, were selected for each case.
The Lancet Infectious Diseases, Vol. 16, No. 12, pp. 1356–1363, Dec 2016
This report, produced by the University of Sydney’s Centre for Disability Research and Policy (CDRP),
uses data collected in rounds four and five of UNICEF’s Multiple Indicator Cluster Surveys programme (MICS) to describe the wellbeing of young children with and without developmental delay in six Asian countries. The United Nations Sustainable Development Goals (SDG) were used as a framework for identifying indicators of child wellbeing.
The report, authored by CDRP Disability and Inequity Stream Leader Professor Eric Emerson with Dr Amber Savage of the Family and Disability Studies Initiative, University of Alberta, Canada and CDRP Director Professor Gwynnyth Llewellyn, found that children with Developmental Delay in Bangladesh, Bhutan, Laos, Nepal, Pakistan and Vietnam are more likely than their peers to:
• Be living in poverty (SDG1). In five out the six countries children with developmental delay were more likely to be living in poverty than their peers
• Experience hunger (SDG2). In all six countries children with developmental delay were more likely to have experienced persistent severe hunger than their peers
• Suffer poor health (SDG3). On three indicators (poor peer relationships, diarrhoea and fever) children with developmental delay were more likely to have poor health than their peers. On three indicators (obesity, aggression and acute respiratory infections) there was no systematic difference between children with and without developmental delay.
• Experience barriers to quality education (SDG4). On all four indicators (attendance at early childhood education centre, family support for learning, access to learning materials in the home, maternal level of education) children with developmental delay were more disadvantaged than their peers.
• Experience barriers to clean water and sanitation (SDG6). On two indicators (improved sanitation, place to wash hands) children with developmental delay were more disadvantaged than their peers. On one indicator (improved drinking water) there was no systematic difference between children with and without developmental delay.
The authors noted that “Since the development of the United Nations Convention on the Rights of the Child (UNCRC) in 1998, increased attention has been paid to monitoring the well-being of children. The UN Convention on the Rights of Persons with Disabilities (UNCRPD) and UNCRC both contain explicit provisions regarding the rights of children with disabilities. These impose obligations on governments to act to ensure that children with disabilities enjoy the same rights and opportunities as other children. In order to promote the visibility of children with disabilities, enable better policy, and monitor progress, disaggregation of data related to children’s well-being on the basis of disability is needed."
The Asia Education Summit 2016 aimed to share the latest innovations and flexible learning strategies in education and educational systems development for Out Of School Children. Innovations can be considered to be the implemented ideas, actions, products, processes, or organisational methods, which bring about significant improvement and change. UNESCO Bangkok defines flexible learning strategies (FLS) as an umbrella term for a variety of alternative educational programmes targeted at reaching those most marginalised. Thus, this report ultimately aims to highlight and give voice to the unique innovative initiatives and flexible learning strategies shared during the course of this three-day summit. Consequently, each presentation summary in this report is intended to stand alone, while contributing to the collaborative nature and understanding of the innovations and Flexible Learning Srategies for Out of School Children C presented.
Inequalities are multi-dimensional, multi-layered and cumulative. The Report makes clear that understanding and acting effectively upon inequalities requires looking beyond income and wealth disparities to capture their political, environmental, social, cultural, spatial, and knowledge features. Untangling such complexity is a challenge we must fully take on – if we are to develop policies and solutions that are feasible and sustainable.
The Report also emphasizes that the costs of inequalities are very high and borne by all – not just by the deprived and the excluded, but collectively, by current and future generations, in the form of heightened conflict and instability, economic and fiscal losses, environmental degradation, and political tensions. Reducing inequalities is thus everyone’s concern.
Countering inequalities requires robust knowledge – but knowledge alone is not enough. The challenge is to improve the connection between what we know and how we act: to mobilize the knowledge of the social and human sciences to inform policies, underpin decisions and enable wise and transparent management of the shift towards more equitable and inclusive societies. In this sense, investment in knowledge is a down-payment for informed change.
And in some respects, even the knowledge we have is not fully adequate. Social science research agendas equally require revisiting. The Report calls for a step change towards a research agenda that is interdisciplinary, multiscale and globally inclusive, creating pathways for transformative knowledge.
Expanding the Circle is a project undertaken by Disability Rights Promotion International (DRPI) that focuses on expanding the conversation about what access to human rights looks like for Indigenous, First Nations, Aboriginal, Inuit and Métis people with disabilitiesin Canada. DRPI has engaged indigenous peoples in many of its projects including New Zealand and Bolivia. It is important that the Canadian indigenous experience be added to this search for knowledge where the rights of people have been neglected. Indigenous, First Nations, Aboriginal, Inuit and Métis people experience disproportionately high levels of disability compared to other Canadians. Indigenous, First Nations, Aboriginal, Inuit and Métis people with disabilities historically, and at present, experience exclusion and various forms of discrimination. This discrimination may take place at the level of individual interactions, but people may also experience discrimination at a higher, systemic level, by their needs not properly being addressed in laws, policies and budgets. This project uses an intersectional point of view, to understand the experiences of people with disabilities who are also Indigenous, First Nations, Aboriginal, Inuit and Métis and considers the unique challenges and victories this population experiences in accessing rights.
Expanding the Circle considers the rights outlined in the United Nations Convention on the Rights of Persons with Disabilities (CRPD), in conversation with the United Nations Declaration on the Rights of Indigenous People (UNDRIP). International human rights legislation not only focuses on specific rights, but also highlights five general human rights principles. These key principles: dignity; autonomy; participation, inclusion and accessibility; non-discrimination and equity; and respect for difference were considered in relation to areas of people’s lives: social participation; health; education, work and privacy and family life, information & communications; access to justice; and income security and support services. This report combines two aspects of this project, first-hand experience through interviews, as well as an analysis that is based on a review of laws, policies, programmes and budgets to have a larger context to understand people’s lived experiences.
Source e-bulletin on Disability and Inclusion