A case-control study was conducted, nested within a national survey. The study included 707 people with disabilities, and 465 age- and sex-matched controls without disabilities. Participants reported on WASH access at the household and individual level. A sub-set of 121 cases and 104 controls completed a newly designed, in-depth WASH questionnaire.
"Assistive technology (AT) is a powerful enabler of participation. The World Health Organization’s Global Collaboration on Assistive Technology (GATE) programme is actively working towards access to assistive technology for all. Developed through collaborative work as a part of the Global Research, Innovation and Education on Assistive Technology (GREAT) Summit, this position paper provides a “state of the science” view of AT users, conceptualized as “People” within the set of GATE strategic “P”s.
Disability and Rehabilitation: Assistive Technology
Volume 13, 2018 - Issue 5: Position Papers from the First Global Research, Innovation, and Education on Assistive Technology (GREAT) Summit
This issue has 7 papers from the GREAT summit
There is limited quantitative evidence on livelihood opportunities amongst adults with disabilities in Low and Middle Income Countries. This study adds to the limited evidence base, contributing data from one African and one Asian setting. A population-based case–control study of adults (18+) with and without disabilities was undertaken in North-West Cameroon and in Telangana State, India. It was found that adults with disabilities were five times less likely to be working compared to age-sex matched controls in both settings. Amongst adults with disabilities, current age, marital status and disability type were key predictors of working. Inclusive programmes are therefore needed to provide adequate opportunities to participate in livelihood prospects for adults with disabilities in Cameroon and India, on an equal basis as others
The primary objective of this study is to estimate the expenditure in primary (outpatient) care incurred by leprosy patients in two different health system settings in India. The secondary objective is to compare the effect of the health systems on consumer behaviour and practices.
The study followed a cross-sectional design, where a cohort from the Union Territory of DNH (an administrative division ruled directly by the federal government) was compared with a cohort from Umbergaon block of Valsad district, Gujarat, India. A block is the smallest administrative unit under a district. The cohorts were leprosy cases detected between April 2015 and March, 2016. A sample of 120 participants from each group was selected randomly. In the financial year of 2015–16, DNH reported 425 and Umbergaon reported 287 cases.
A household survey was conducted between June and October, 2016 by means of a structured questionnaire collecting data on patient demographics, HH socioeconomic status, accessibility of health services, treatment seeking history and OPD expenditure. Respondents were asked to report on the last three OPD visits, either in a public or private facility, in the last 6 months.
The costs were categorized as direct and indirect expenditure. The direct part included the expenditure on consultation, investigations and medicines & supplies. The indirect part constituted expenditure on transport, food, and days lost during illness of the patient and attendant
PLOS Neglected Tropical Diseases, January 4, 2018
In Ghana, the social interpretation of leprosy regardless of the language, culture and tradition engenders stigmatisation and discrimination that leads to social rejection and exclusion of persons who have been cured of the disease. Often, these persons are cared for by relatives who happen to live with them in a confined place. From the views of these caregivers, this paper identifies areas of stigmatising and discriminatory tendencies against people affected by leprosy who reside in a Leprosarium in Accra. A qualitative interview with semi-structured interviews were conducted for twenty caregivers.
This article by U.S.-based authors explores key intersectional issues emphasizing their research in the U.S. related to disability and climate change impact, and recommending an educational, research and advocacy agenda for both the Climate Change and the Disability Rights movements
Interdisciplinary Perspectives on Equality and Diversity Special Issue: Climate Change and Intersectionaity Volume 4, Issue 1. 2018.
Research papers in this journal issue are:
- Anticipated Barriers to Implementation of Community-Based Rehabilitation in Ribeirão Preto, Brazil
- Parental Perceptions, Attitudes and Involvement in Interventions for Autism Spectrum Disorders in Sarawak, Malaysia
- Utilisation and Satisfaction with Health Services among Persons with Disabilities in Accra, Ghana
Brief reports are:
- Predictors in the Selection of an AAC system: An Evidence-based Report on Overcoming Challenges
- Negotiating Future Uncertainty: Concerns of Mothers of Children with Down Syndrome in Kashmir, India
- Competencies of Students with Visual Impairment in using the White Cane in their Learning Environment: a Case Study at Wenchi Senior High in Ghana
- Teacher Trainees’ Perceptions of Inclusion of and its Challenges
The qualitative study presented in this article describes the violence experienced by children with disabilities in Guinea, Niger, Sierra Leone, and Togo from the perspectives of children, community members, and disability stakeholders. The study contributes to the literature on violence against children with disabilities, which in West Africa is largely nonexistent.
A qualitative study design guided data generation with a total of 419 children, community members, and disability stakeholders. Participants were selected using purposive sampling. Stakeholders shared their observations of or experiences of violence against children with disabilities in their community in interviews and focus groups
BMC Public Health 18:153 2018
"This special edition aims to address some of the complexities and challenges faced in mainstream mental health services in three ways. First, to highlight the specific needs of people with intellectual disabilities and mental health problems. Second, to promote the importance of interdisciplinary working and learning in relation to mental wellbeing and intellectual disability, showcasing innovative approaches to care and finally, to offer a voice to specialists from intellectual disability practice and research to foster practical and conceptual thinking in relation to this group of service users"
There is a freely accessible editorial and there are six papers:
- People with intellectual disabilities accessing mainstream mental health services: some facts, features and professional considerations
- Psychiatry and intellectual disabilities: navigating complexity and context
- Development and dissemination of a core competency framework
- Mental health staff views on improving burnout and mental toughness
- Using wordless books to support clinical consultations
- Actors with intellectual disabilities in mental health simulation training
Full articles are not free.
The main aims of this project were to document current knowledge about the intersectionality between sexual and gender-based violence (SGBV), communication disability and refugees, to identify any reported good practice, and to begin to understand and describe the challenges to supporting refugee-survivors of SGBV with communication disability, in Rwanda. The project involved 54 participants, including 50 humanitarian and partner organisation staff and four carers of refugees with communication disabilities, from two locations (camp-based and urban refugees).
International Journal of Speech-Language Pathology, 20:1, 44-49,
Mental health problems resulting from persecution and forced migration are very common among refugees and asylum seekers and evolve into a major public health challenge. Language barriers often prevent timely access to appropriate health care, leading to chronic trajectories and abortive social integration. Tools for multilingual screening and assessment could be of great benefit for this particularly vulnerable population as well as for policy makers. This study aimed at testing the reliability, feasibility and usability of the Multi-Adaptive Psychological Screening Software (MAPSS), a newly developed Audio Computer-Assisted Self-Interview Software (ACASI) for touchscreen devices, for screening purposes in a clinical setting. In a randomized cross-over design including both MAPSS and paper-pencil clinician-administered interviews, 30 treatment-seeking refugees completed clinical measures and a feasibility questionnaire to rate the user interface of MAPSS. Five professionals performed given tasks in MAPSS and completed usability questionnaires for the administration interface.
Conflict and Health 2017 11:18
"Languages are dynamic and change over the years. Changes in sign languages have been usually initiated to accommodate the needs of the local Deaf community. With the increase in smartphone use, sign languages are influenced not only by the local Deaf community, but also by foreign Deaf people on the other side of the screen, regardless of their location. Smartphones influence the sign language itself and the Deaf community by connecting different communities of Deaf people through messages, shared information and experiences, and news delivery. The popularity of this technology among Deaf communities is a social phenomenon emerging from Deaf people themselves. Smartphones may promote the globalization of sign language, shortening distances between Deaf communities around the world"
Disability & Society, Volume 33, 2018 - Issue 2
Cochrane Rehabilitation aims to improve the application of evidence-based practice in rehabilitation. It also aims to support Cochrane in the production of reliable, clinically meaningful syntheses of evidence related to the practice of rehabilitation, while accommodating the many methodological challenges facing the field. To this end, Cochrane Rehabilitation established a Methodology Committee to examine, explore and find solutions for the methodological challenges related to evidence synthesis and knowledge translation in rehabilitation. An international online survey was conducted via Cochrane Rehabilitation networks to canvass opinions regarding the future work priorities for this committee and to seek information on people’s current capabilities to assist with this work. One of the areas of debate concerned whether and how work on the application of Cochrane methods in low and middle income countries should be prioritised.
Eur J Phys Rehabil Med 2017;53:814-7
Ethiopian disabled women’s experiences of intimacy, pregnancy and motherhood are reported. Qualitative, in-depth, and semi-structured interviews along with personal observations were used to explore the full experiences of participants. Interview data revealed that mothers experienced significant challenges with regard to accessibility of health centers, physician’s lack of knowledge about and problematic attitudes toward them and more general societal prejudices towards individuals with disability. The 13 participants were employed women with physical or visual disabilities, and the interviewees were from the Addis Ababa metropolitan area, Ethiopia.
Disability & Society, 32:10, 1510-1533
This special issue of the Journal of Poverty & Social Justice has two aims. Firstly to provide new evidence on the implementation and impacts of conditionality for disabled benefits claimants in order to provide an empirical foundation for the contested claims on both sides of this debate and secondly to prompt further research in this area.
Article titles in this issue are:
- Benefits conditionality for disabled people: stylised facts from a review of international evidence and practice
- Does sanctioning disabled claimants of unemployment insurance increase labour market inactivity? An analysis of 346 British local authorities between 2009 and 2014
- Consequences of activation policy targeting young adults with health-related problems in Sweden and Denmark
- Assessment of work ability in competing strands of social insurance: the German case
- Welfare conditionality and disabled people in the UK: claimants' perspectives
- The bedroom tax in the Supreme Court: implications of the judgment
The papers in this volume on gender, persons with disabilities and WASH in South Asia help to provide important pointers on ways forward. A common thread throughout the four articles is that a constellation of challenges still exists, from 'exclusion' through prejudice at different levels, to institutional realities that render policy and other instruments ineffective in practice. In some cases, even, there remains a complete absence of key legal and policy instruments.
Titles of the articles in this issue are:
- Planning for inclusion: exploring access to WASH for women and men with disabilities in Jaffna District, Sri Lanka
- Breaking down Barriers: Gender and Disability in Access to Agricultural Water Management in Nepal
- The Gender Gap between Water Management and Water Users: Evidence from Southwest Bangladesh
- Are policies enough to mainstream Gender in water and sanitation programs? Experiences from community managed drinking water supply schemes in India
The aim of this study is to systematically review quantitative studies exploring associations of social relationships with mental health and wellbeing in persons with physical disabilities. The objective is to summarise a complex and heterogeneous body of empirical research on the association of different social relationship constructs with mental health and wellbeing in physical disability and to highlight conceptual and methodological deficiencies in the field of research. The literature search included original articles published in English between January 1, 1995 and May 31, 2016. Data was extracted on study and participants’ characteristics, independent and dependent variables, used measures and effects sizes of associations between social relationships and mental health or wellbeing. A narrative review was performed to synthesise findings along the constructs social support, social networks, negative social interactions, family functioning and relationship quality. Of the 63 included studies, 47 were cross-sectional and 16 longitudinal.
BMC Public Health (2017) 17:414
Mental health issues are the leading cause of disability in adolescents aged 15–19 years in all the world's regions, contributing 45% of their overall burden of disease. Early intervention to prevent mental health disorders is crucial to suicide prevention and to improve lifelong wellbeing. In April 2017, Mission Australia, in association with the Black Dog Institute (a research institute based in New South Wales) published the 5th Youth Mental Health Report. A survey of 21 000 Australian adolescents recorded 22·8% of young Australians meeting the criteria for probable serious mental illness (PSMI), as assessed by the Kessler 6 measure of non-specific psychological distress. Adolescent girls were almost twice as likely than boys to meet the criteria for PSMI. A significantly higher proportion of Aboriginal and Torres Strait Islander responders met the criteria for PSMI (31·6%) than non-Aboriginal and Torres Strait Islanders.
Vol. 389, No. 10080, p1670, 29 April 2017
The transformation of community care for people with intellectual disabilities (ID) through enhanced access to assistive technology (AT) is discussed. The problems associated with lack of access to AT and the extent to which these occur are reported. Issues in lack of AT provision, including lack of global standards, are discussed. A call to action is made with reference to the appropriate parts of CRPD.
Disability and Rehabilitation: Assistive Technology, 12:5, 426-428
The central aim of this anthology of papers is to consider the place of law in political, social, scientific and biomedical developments relating to disability and other categories of ‘abnormality’. The papers consider how categories of abnormality relate to the privileged and frequently unmarked position of ‘normality’ and how legal interventions in abnormality relate to existing normative designations in the dominant cultural imaginary. This collection of papers has a range of disciplinary approaches
- Fit or fitting in: deciding against normal when reproducing the future
- Eccentricity: the case for undermining legal categories of disability and normalcy
- Eugenics and the normal body: the role of visual images and intelligence testing in framing the treatment of people with disabilities in the early twentieth century
- The construction of access: the eugenic precedent of the Americans with Disabilities Act
- Disability and torture: exception, epistemology and ‘black sites’
- Mental capacity and states of exception: revisiting disability law with Giorgio Agamben
- Not just language: an analysis of discursive constructions of disability in sentencing remarks
- Policing normalcy: sexual violence against women offenders with disability
- ‘The government is the cause of the disease and we are stuck with the symptoms’: deinstitutionalisation, mental health advocacy and police shootings in 1990s Victoria
- Disruptive, dangerous and disturbing: the ‘challenge’ of behaviour in the construction of normalcy and vulnerability
- Making the abject: problem-solving courts, addiction, mental illness and impairment
- Cripwashing: the abortion debates at the crossroads of gender and disability in the Spanish media
- ‘Figurehead’ hate crime cases: developing a framework for understanding and exposing the ‘problem’ with ‘disability’
Journal of Media & Cultural Studies, Vol.31, No.3, pp. 337-340
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